Lupus Support Group

Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.

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General Energy Levels

kitty3
kitty3
I'm wondering if any other lupus folks go thru period where they just have energy level issues. It's not that there's issues on-going, i.e., pain, stiffness, fevers, etc. etc. It's just simply low energy levels.

I go thru this so much yet there's nothing really at least that I'm aware of that contributes to it. I feel more or less balanced otherwise.

I shd mention I do continually battle with sleep issues at night and if others feel that maybe it just boils down to not enough regular sleep then I guess I know how I need to tackle this.

I'd just really like to hear anyone's thoughts on this.
Allisonc79
Allisonc79
Yes sometimes low energy levels are my only symptom. I can go a whole day without pain, which is rare, but the fatigue is the only thing that likes to stick with me. It is my running mate! But its severity goes up and down throughout the day too. I find when I take my supplements and rest and don't over do it, the fatigue backs off a bit.

Sleep is important I know I definately can tell a difference between days that I sleep and days when I don't get sleep. If I don't get any, I am flaring the whole next day. If I sleep, I am definately at my best and the fatigue isn't near as bad.
mar1976
mar1976
The heat and sun also make me tired. I can feel okay and be in the heat or sun just going in and out of my car WITH sun block, and get tired and ill. I used to love the warmth and summer but now I HATE it. Even if my house is warm I get hot and sick.

I am tired most of the time it is normal to be fatigued. I have no answer of a remedy. B-12 shots helped me sometimes.
deleted_user
deleted_user
It's part of the disease; that's what they mean when they say "fatigue".
deleted_user
deleted_user
Sleep and energy are both problems for me. When I feel halfway decent and have some energy sometimes I think I push myself more to get more things done and often find myself exhausted afterwards. I've had about a month of having higher energy levels and feeling better and sleeping better. Then last week it all fell apart.

I too have a harder time in the summer than the winter because of the heat and humidity in Florida. It makes me hot, tired, muscles hurt, headaches, breathing problems, etc. I have to take a nap every day and can still sleep at night. I'm just always fatigued.
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