Hypotonia Support Group
Hypotonia is a condition of abnormally low muscle tone (the amount of tension or resistance to movement in a muscle), often involving reduced muscle strength. Hypotonia is not a specific medical disorder, but a potential manifestation of many different diseases and disorders that affect motor nerve control by the brain or muscle strength.
Hello! My name is Bree, I am twenty years old. I am an artist, an athlete, a student, and I have hypotonia.
I have occasionally checked out online support groups for the disorder and most commonly see parents of young children and infants seeking questions about hypotonia, but I rarely see testimonies from adults and young adults living with hypotonia. I am here to prove that we do grow up to be happy and "normal"... for the most part!
Recently, my mother and I wrote out a timeline of things that I accomplished in my life, or small obstacles I faced that may have either been influenced by or correlated with my hypotonia. Here is a chronological timeline of how my life went. If you have a young child with hypotonia I would highly recommend you read it so that you can have some assurance that your child can live a totally normal life. Keep in mind that I was not diagnosed with hypotonia until the age of seven (I see many cases of parents with infants as young as five months who have been diagnosed). I hope my story encourages some of you, and I would love for questions to be asked!
My hypotonia timeline:
I have occasionally checked out online support groups for the disorder and most commonly see parents of young children and infants seeking questions about hypotonia, but I rarely see testimonies from adults and young adults living with hypotonia. I am here to prove that we do grow up to be happy and "normal"... for the most part!
Recently, my mother and I wrote out a timeline of things that I accomplished in my life, or small obstacles I faced that may have either been influenced by or correlated with my hypotonia. Here is a chronological timeline of how my life went. If you have a young child with hypotonia I would highly recommend you read it so that you can have some assurance that your child can live a totally normal life. Keep in mind that I was not diagnosed with hypotonia until the age of seven (I see many cases of parents with infants as young as five months who have been diagnosed). I hope my story encourages some of you, and I would love for questions to be asked!
My hypotonia timeline:
deleted_user
Oh for the person who posted above of me, I'd say yeah, it's possible to be a fast runner but if you have hypotonia, you have to really train hard for it and keep the training up for people with hypotonia don't have muscle memory and their progress will deteriorate just as quickly as the improvements made. You can gain muscular strength still as you grow older and with the flexibility. Some of that will go away as you build strength but (at least for me) you'll still have some. I'm not as flexible as I was when I was younger but I can still bend my arms and legs past being stretch my arms past behind my head.
MrsSnuggy
Hello Bree, you probably will not read this because I'm responding to a very old post but just wanted to thank you for the time line you posted. I have a 20 month year old son just assessed that he has hypotonia and I'm just so worried about him and his future. But reading your post gives me hope that he will live a somewhat normal life. It has been seven years since your post. I would love an update on how you're doing if you read this. Thank you
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