Hypotonia Support Group

Hypotonia is a condition of abnormally low muscle tone (the amount of tension or resistance to movement in a muscle), often involving reduced muscle strength. Hypotonia is not a specific medical disorder, but a potential manifestation of many different diseases and disorders that affect motor nerve control by the brain or muscle strength.

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Hypotonia question

Posted by: Slj029

Posted: 06/03/2020

0

Hello everyone. I have a daughter who was born with hypotonia. We have never gotten a true diagnosis. She is now 7... READ MORE
My son, 10 months old, mild hypotonia.

Posted by: BoBos_Daddy

Last Reply: MollyGAllen 03/22/2020

1

New to group..just looking for support from parents who are going through this like me. My son is such a fighter, so... READ MORE
referral for pediatric developmental specialist

Posted by: babyboy2017

Last Reply: LovingRosie 05/23/2019

3

Hello all,I have just joined the group for my son (1 year today) who has low muscle tone diagnosed by family... READ MORE
8 month old beautiful baby boy with hypotonia

Posted by: Citygirl1

Last Reply: Citygirl1 07/17/2018

4

hi everyone,I feel like I have been reading blogs about this condition for months but don't have anyone who I can talk... READ MORE
No Diagnosis?

Posted by: deleted_user

Last Reply: Silentone63 06/03/2018

26

Is there anyone else who has either had hypotonia or has a child w/ hypotonia, but never got a diagnosis? My son Luke... READ MORE
9mo baby hypotonia

Posted by: BabyHay

Posted: 03/22/2018

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I have a 9mo old boy with severe hypotonia. We have done genetic testing and mri's of the brain and spine and... READ MORE
2 year old almost 3 with hypotonia

Posted by: ritkat

Posted: 03/06/2018

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My son has always had gross motor issues and finally the PT through EI referred us to an orthopedic surgeon. He and the... READ MORE
New to all of this

Posted by: AS81

Last Reply: Hopeforsavannah 02/28/2018

2

Hi, my daughter is 11 months, she was diagnosed with hypotonia 2 months ago and is getting input from SALT and physio.... READ MORE
looking to meet others with hypotonic babies

Posted by: anash0489

Last Reply: Hopeforsavannah 02/28/2018

2

Hello, my name is Ashley, my almost 10 month old daughter, Brooklyn has been diagnosed with hypotonia/muscle weakness.... READ MORE
New to group

Posted by: Jgillis85

Last Reply: Hopeforsavannah 02/28/2018

1

Hello my 7 month old son has Hypotonia. I'm hoping to meet others with experience so that I can prepare myself for what... READ MORE
Potty Training with Hypotonia

Posted by: Meandmyboys

Posted: 01/15/2018

0

Hello all! I'm hoping some of the parents with older kids with hypotonia will be able to help me out here. I have a... READ MORE
My Hypotonic Timeline

Posted by: deleted_user

Last Reply: MrsSnuggy 09/10/2017

17

Hello! My name is Bree, I am twenty years old. I am an artist, an athlete, a student, and I have hypotonia.I have... READ MORE
I have a 7-yr daughter with hypotonia

Posted by: ale

Posted: 07/23/2017

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i have been searching a group to exchange experiences a while, but finally I found this. I live in brazil. My daughter... READ MORE
Some food for thought

Posted by: resih

Posted: 05/17/2017

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I am a physical therapist with pediatric experience. I also have some undiagnosed mixed tone issues--probably... READ MORE
Adult hypotonia

Posted by: deleted_user

Last Reply: Seasiren770 05/13/2017

9

I was born with hypotonia as a result of the placenta becoming detached in utero - i am 22 years old now and still... READ MORE