Hi:

What are your Free T3 and Free T4 levels?

If your thyroid antibodies of the TSI is still positive and high, remission will be hard to achieve.

{{{hugs}}}

My T3 Free Jan 2018 - 2.5 Dec. 2018 - grater than 20 range 2.3 to 4.2
My Free T4 Jan 2018 - 0.83 Dec. 2018 -4.74 range 0.40 to 1.64
I'm pretty sure since I tried twice remission will not ever be achieved sad face

With having Graves' Disease we do better with getting the Free T3 at mid range (for you that's at: 3.25) and the Free T4 at the upper third range (for you at: 1.3 at least).

How much MMI (Methimazole) is being taken?

{{{hugs}}}

P.S. I haven't been able to achieve remission either and I have had Graves' Disease since 2000.

I was at 2.5 mg per day. Now since its so high I'm at 7.5 mg per day to try to ease into not being Hyper.

I wonder myself. Have been off meds for approx. 2 weeks. I tried to do this as slowly/evenly and balanced, as possible.
I see my metabolism is slowing down and my weight is going up. Holidays make it so difficult. (Desserts and all) I am approx. 153 at 5’5”. I felt so much better having lost 35 lbs in the first couple of months - very exhausted from the GD but much lighter being 35 lbs less. I kept most of it off until the past couple of months. RE-introducing gluten (bread) into my diet because of my GI doctor’s requests have made it so difficult to get off of it again. Hence, most likely, most of the weight gain. The last amount of MMI I took was a 5mg split into 4 pieces taken every other day. THAT was pushing me into the HYPO side.
Metabolism has everything to do with our weight gain.

May I ask you what types of diets you have tried?
You are of petite height and to carry that weight must be doing a job on your back and knees.
Have you stopped eating processed foods, gluten, dairy, soy, salt (iodized) nightshades, etc.?

When you went off MMI, were you feeling any GD symptoms? Anxiousness, hunger, sleeplessness, heart palpitations?
I wonder if you can handle some GD symptoms (including the weight loss) at the same time. There are some natural things one can do to override some of the symptoms while your metabolism adjusts.
Take Care.

I tried to be vegetarian for while but I couldnt do it. I also followed Danette May and had lost about 8 lbs but that was it. I have not cut any certain food group out but do watch sugar and started to watch gluten as well. We use Himalayan sea salt. When I went off the meds I wasnt hungry but did take advantage ate ice cream which I hardly ever have. I'm always anxious even before this dx and stressed. I think in 09 when my hubby lost his job and the stress was sky high is what my trigger was. Noone in my family ever had thyroid issues. Lucky me lol. Sometimes I think I feel palpitations but dont dwell on it. I still work out and have all through this. I'm not letting it overtake me! Its just frustrating when you eat decent and work out and the scale dont move. When I started walking like I did when I was 7/8 months prego thats what did it for me! No more!

Tmredneck91,
I cannot say enough about what foods are really no good for people who have hyperthyroidism. Just wondering, what caused your thyroid issue? Was it Graves Disease?

T,
Being 5’1” and being 150 - you would have to be solid muscle to be in fit condition. Check your BMI. Being 190 would be overwhelming to say the least. Carrying that kind of weight is so unhealthy. Has your doctor checked your (female) hormones? Working out is another issue - you need to be careful when exercising. Hyperthyroidism has a direct impact on the heart and metabolism - certain types of exercising can make it worse.
Since I was in your condition and are now coming out of it (It took me a year) I will be continuing what I started to do.....remove as many triggers as possible - fluoride free toothpaste, filter the water from chlorine, cut out ALL gluten, ALL dairy, ALL soy (endocrine disrupters), processed foods (anything that has ingredients where I have no clue as to what preservatives, flavors or colors have been added is a no go for me) Change of personal and cleaning products - no SLS. The government couldn’t give a “:rat’s ass” on what foods they approve. It’s all money and politics. Keep it simple when eating foods. Keep your proteins up because one loses muscle mass when you have this thyroid issue. Salad, some nuts, certain fruits and certain vegetables.
If you go outside the realm of eating certain things, it WILL come back to bite you with weight gain and symptoms from the thyroid. One needs to be strict. This is the way to lessen the medications and keep a balanced life. And, for your own sake (I had to do this) do NOT bring any “bad food” into the house because we know eventually, we will crave it and eat it. Being conscious of what we eat is important.
I want you to know that I understand it is not easy (at all) to do all this. I am saying it helped me. Not sure if the doctors said this to you - this thyroid issue is like a dormant virus. If something wakes it up (like stress of the foods we consume) it will start reeking havoc within your body. No matter what we do, we will always have it but it is the way we take care of our bodies that make all the difference.
Don’t poke the tiger - someone told me.
I hope you find what works for you - everyone is individual. Take Care.

Hi:

I definitely would add to what Still says, consuming organic, non-GMO, gluten-free diet is a must for me. I also have to use safe green household and personal products to avoid symptoms.

Chemical laden products have made my thyroid levels go up. If I go out any where I have to be careful of my exposures to people's scents they use, be it the perfumes, deodorants, lotions, hair, etc. Otherwise I find myself with heart palps and getting hypER, anxious, and panicky from these.

When my husband and I go out to dinner, we usually eat at our favorite organic, non-GMO, gluten-free Italian restaurant.

I am starting to see more selections of healthier restaurants in our town so I am going to give them a try.

Look in all areas to find the triggers that sets of the thyroid issues. I am still finding triggers since 2000.

{{{hugs}}}

P.S. Right now you're hypO. The MMI needs to be lowered and begin looking for the triggers setting off your thyroid.

I am able to keep at between 0.625 mg to 1.25 mg daily dosing of the MMI while I keep the triggers to be bare minimum.

Check out this article.

https://www.restartmed.com/destined-to-be-overweight-forever/

mmztcass I'm actually Hyper right now not hypo. The dr called yesterday and then the office today to schedule an appointment. I'm not in too much of a rush. She wants to do blood work in 3 weeks but thats too soon so I'll stretch it out. I dont know if I can change everything I still have a hubby and kids. I actually dont notice triggers. I just know what started it and it was stress when my hubby lost his job. The stress level was off the charts. I've worked out prior to and even now. What kind of exercising makes it worse? I do combo of cardio and weights. Weights as we age are actually more important. My BMI currently is 31.7. it have been 34.39. Its not fun or encouraging when the drs office has you listed as overweight or obese. sad face

I apologize, I thought it said January 2019 for your latest labs not January, 2018.

Stress, indeed, is one of the triggers next to the diet and environmental triggers to make things worst for thyroid.

If you are exercising, ask doctor if it is okay to do the strenuous types. For very high thyroid levels it is more ideal to do the gentle types as stretching and yoga until the levels comes down.

{{{hugs}}}

I hope you don’t mind me asking.....
What caused your hyperthyroidism?
What kind of blood tests does your doctor prescribe?
Do you have your blood labs taken every month and a half?
Did they test your “female hormones? FSH & LH
How did your pregnancies go? .....Having hyperthyroidism and pregnancy can be tricky. (Hormones and all)
Do you take vitamins or supplements?
Has the doctor tested for deficiencies? Vitamin D, Magnesium, Zinc, Copper, etc.

9 years and haven’t been able to get the thyroid in a euthyroid level.....?
I wonder how much your female hormones are playing in this scenario.
You must be young because you said you had babies.
Unfortunately, Graves Disease (I don’t know if you have that) comes around puberty, pregnancy and menopause - ALL female hormone related. There is some connection there.
BTW, my dad was confirmed with GD at the same age I got it (58) I know mine is hereditary.

I didn’t get a chance to say....I am sorry you and your husband went through a lot of stress - I know how stressful it is to loss jobs - and depending on “stable” finances. It’s scary!!!
Has that situation been fixed?

I get how stress can trigger this.
It can be a lifetime of little stresses being built up or one be one that blows you out of the water.

Do you get a little downtime to relax?

For you to go from always thin and then to balloon at 190 (having babies........something else is going on. I would definitely check other possibilities (hormones)

So, you don’t feel symptoms, huh? Lucky you.
Last night, I was deep in doing my monthly budget and paying bills when I felt my focus lessening and felt a little jittery. I took some liquid magnesium and felt better. If you get a chance, read the article I posted. It has something interestingthings to say about where the weight gain might come from. And BTW, you are in a good category of being in the “young” category - more promise for losing weight.

T,
I think the goal of losing weight is a good one. When I was taking my MMI in higher doses very day, I was able to keep the weight off. Now, I am off the meds and gaining weight. Go figure!

Let’s see if we can figure this out. Take Care.

The only thing we could figure out to cause it was the stress. I was promoted to see the Endo only once a year with blood work twice a year. She orders the TSH free t 3 and 4. I’m hoping that won’t change since I’m hyper now. She’s nice it’s just a pain. She does check Vit D and I’m at 28 which is low. I am taking prescribed vitamin D and also otc. My hormones were checked by my OB several years ago and they were good. I’m 45 and didn’t have this with any pregnancy. It ticked me off when I got it cause there is no family history! I was terrified when I got it and read how some people’s lives change and determined I wouldn’t let it control me. I even ran a 5K before all this! I’m not a runner. I don’t fill my hubby in on a lot of it and he was ticked when I stopped meds but he knows I can’t keep being heavy either. Right now stress is at an all time high with medical issues with my father in law. Yes I do try to relax but there’s alwaya something to do. Is there any place with good recipes for this?