Saw the quack yesterday, calcium levels normal. Dr not interested in checking pth or calcium in urine. Dismissed the fact that so many symptoms fit with this disease and just wants to refer my wife for counselling to manage the intractable nausea she has endured for the last 3 years. In other words give up trying to find out the cause or a suitable treatment or drug to cure or alleviate the problem.

My wife is 37, doesn't drink or smoke and is not overweight. She is in trouble at work (ironically she works for the NHS) we have 2 young children and we have very little quality of life. We both still suspect that she has hyperparathyroidism. Looks like we will have to go it alone as we attempt to prove or disprove our theory.

I am in the same boat. Very symptomatic and only had a slight elevation of PTH. Endo just doesn't think 2 plus 2 =4 here. Thinking of going to the Mayo clinic. I already have three autoimmune diseases and know the autoimmune road can be annoyingly bumpy. Good luck. Find another doc for a second opinion!

Hi, I hope by now you have managed to get sorted out. If not I can recommend a fantastic website parathyroid.com
I have been suffering the same symptoms for years and only in the last few weeks have i got answers. i have a large tumour in my parathyroid which has been there over a decade making me sick. I'm travelling from NZ to Florida to get this removed next month. I've been exhausted for years now and the doctors just weren't listening. You don't need a high PTH to have this tumour. I didn't just high calcium. I feel so robbed of my health. I hope you are able to get sorted!

I feel for your wife- I have some of the same symptoms and they really wear you down. I am NOT diagnosed with hyperparathyroidism, but have had a high calcium result on one blood test. My doctor similarly refused to pursue the idea any further once subsequent blood tests came back w normal Ca levels.
A few things that have helped me-- and I hope they will help your wife:
I found that taking a 250mg magnesium citrate supplement every night really helped with the nausea. So did getting enough Vitamin D each day- either from the sun or from supplements. Some caution against taking D if you have hyperparathyroidism, but for me it makes all the difference in getting rid of the nausea.

For the GERD, try the following:
Track "trigger" foods carefully- I've had to completely give up onion, tomatoes, potatoes, eggplant, cashews, anything acidic (citrus or cola) and wine or coffee. If I avoid these things completely, I don't get reflux. Her trigger foods may be different. Heartburn/acidity can actually be a sign of a food allergy-- many people don't know that.

Also, when I switched from a sitting desk to a standing workstation at work, my reflux improved. My crackpot theory is that sitting all the time kind of forces your stomach back up into your esophagus, and generally slows down digestion, both of which lead to over-acidity. Stand up to work for as long as you can, then sit when you can't stand any more.

I also only really got my GERD to go away when I diligently avoided eating within 2 hours of lying down for bed. We've elevated the head of our bed by propping up the legs with blocks. This keeps my stomach acid from flowing the wrong way while sleeping.

I know everyone's different, but I hope something I've written helps your wife find relief. You're a good partner for writing on her behalf.

Also, how are her iron/ferritin levels on her blood tests? Anemia can really give you fatigue...

A normal calcium level does not mean there is not a problem. Especially after having a previous high one. One characteristic of this disease is fluctuating calcium levels. Find another doctor that specializes in parathyroid disease. I have had 2 previous surgeries for this.