Hydrocephalus Support Group

Human papillomavirus is a diverse group of DNA-based viruses that infect the skin and mucous membranes of humans. More than 100 different human papillomavirus (HPV) types have been characterized. Some HPV types cause benign skin warts, or papillomas, for which the virus family is named. HPVs associated with the development of such "common warts" are transmitt+B224:E226ed environmentally or by casual skin-to-skin contact.

0 Online
  • realgirl

    Any others diagnosed ~ age 10? Connect with others

    3
    Hi everyone,After 5 years of looking everywhere for other similar stories I've decided to make my own post. As it is my lovely daughter's 15th birthday coming this week, I feel I really owe it to her to make some new effort to find anyone she might be able to relate to. I will call her Skylar. After a fairly long period of unfortunately attributing her symptoms of intermittent nausea, headaches,...
  • smerikalynn

    Something wrong with my shunt?

    1
    Hi! My name is Erika, I am 25 years old and just had a shunt placed in November. I was feeling okay up until about 3 weeks ago. I started noticing some increased pressure in my head and having dizzy/nausea spells. I had called my neurosurgeon and they told me it was most likely due to my congestion (I had just gotten over a nasty flu). Well a week ago I hit a wall. Complete exhaustion and I...
  • Tatchic

    Diagnosed @ 12, now 26 with severe abdominal pain

    5
    Hi all,I am brand new to all of this. I was diagnosed when I was about 12 years old I am now 26. My first surgery was my vp shunt placement. A while later they found I have a brain tumor. Second surgery was in 2005 to remove but was unsuccessful.I followed up with 2 months of radiation. Tumor has been stable for the most part. My reason for this post is unexplained right abdominal pain. On and...
  • Dyzneybrat

    hydrocephlaus... concerned..

    1
    Hello, new to the group.. just wanted to say hello  and i have had a shunt for 5 years now. im 47 and had 2 surgeries from one malfunction of the shunt.. i have extreme anxiety.. always thinking something is wrong.. constantly calling my neuro surgen.. it seems like he doesnt care and doesnt wanna see me... i get frustrated on why i dont feel good.. my head feels heavy.. ears ringing.. vision...
  • puffy1976

    Just diagnosed...

    0
    Hello, my name is Suzanne. I am a 40 year old lady who just happened to be getting a MRI of my head due to a MS excerbation. Along with the lesions they saw evidence of hydrocephalus. I was in the hospital for 3 days but they didn't do anything for the hydrocephalus.  They just gave me high dose steroids for my MS. I am getting these HORRIBLE headaches and I am getting worried after reading...
  • Jeremy

    I think something is wrong with my VP shun

    1
    Hi. I'm new here and this is my first post. I have a VP Shunt that I've had for a year. I always have pretty bad headaches and am on pain meds for them. For about the last. 3 weeks my headache has been worse and the meds that usually work pretty well have only taken the edge off. I have also been very tired and have had a few times when I felt nauseous but it only lasted for a while and then went...
  • CanadianChick

    Hyrdo & VP Shunt Since Birth - Never Replaced

    3
    Hi, I've had hydro since birth (over 25 years) and I've never had anything done to it; no malfunctions, no infections, no surguries, nothing whatsoever.I'm kind of paranoid about that, cause I've not found anyone else in this situation and I feel like I'm just waiting for something to be wrong with it as if it's inevitable.Is there anyone else in this situation who's had one shunt as long as I...
  • amber9690

    Hydrocephalus pain

    2
    Wanting to know how everyone with hydrocephalus manages their pain. What pain do you have on a daily basis? I was diagnosed in 2011 with hydrocephalus when I was 23. Tried the ETV, when that failed had a VP shunt put in. I've had over 21 surgeries trying the VPL shunt (infections)...no shunt (REALLY bad idea) and now back to VP shunt. Seems like even though my hydro is managed as well as it can...
  • Zen1

    Child with Hyrdrocephalus and Dandy Walker varient

    6
    Hi guys! My 5 month old daughter is getting ready to have surgery this month for her condition. This condition is new to me and I am a nervous wreck with her. I'm afraid to let anyone hold her. If I do, I'm always right there with my hand near her head. If her head flops a little I take her back immediately. Am I being too much? I think anything with the head is serious. I watch her through the...
  • ckosel

    Hydro without shunt?

    1
    I was wondering if any one here has hydro that did not require a shunt? Our adopted daughter from Bulgaria was born with internal hydro of a slight degree not requiring shunt but exhibits many hydro symptoms. Wondering if we should have it checked out (nothing new has come up, she has been this way for four years since we brought her home) just wondering if damage is permeant.
  • amyferris

    Bike helmets

    0
    Hi, I'm looking for some advice about bike helmets. My daughter (21 months corrected) was born at 28 weeks. She had bilateral grade 3 bleed on the brain and developed post-haemmoragic hydrocephalus. She had a shunt fitted 1 months after her due date. She's doing fantastically well. As a family we would like to go out on the bikes, with Eliza in a seat. We are having real difficulty finding a...
  • Bryan-Gifford

    In Utero Hydrocephalus, 14 years ago, questions

    1
    Hello everyone, my name is Bryan and almost 15 years ago my wife and I hear the worst thing ever. We were at our first ultrasound for our first baby and the doctor looked, looked again, left, 3 more doctors did the same and then he returned. He said in 20+ years he has never seen this...Long story short, Skyler was diagnosed with congential in untero hydrocephelus. We were told we told an...
  • jackgsmom

    Coping with my son's hydrocephalus

    0
    My son has a genetic form of congenital hydrocephalus along with a migration issue. He's a happy, pleasant 9 month old and we have him in every type of necessary therapy and we're fortunate to see a wonderful team of doctors. Although his condition is genetic, its a spontaneous mutation meaning he just has terrible luck and there is no trace of this in our family history. Even though I know...
  • Megan0123

    Chiropractic Treatment and Hydrocephalus

    2
    Has anyone been treated by a Chiropractor when they have been diagnosed with hydrocephalus? I am looking into seeing a Chiropractor but am unsure if it is safe for me to do so. I have a VP shunt. I do not have a neurologist that I can follow up with about this. Just curious...
  • mattuk123

    Hi all

    1
    Hi everyone I am new to the group. I suffer from Spina Bifida Hydrocephalus I just wanted to introduce myself to the group. :-)