Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
Hi everyone,
I have been suffering with HS for the last 10 years, diagnosed about 4 years ago. In the last 2 years the boils in my groin kept getting bigger and bigger and the area has numerous scars now. My doc tried almost everything including Accutane. Nothing really worked.
This year I went to Poland and my friend there told me about Vinilin Balm also called Shostakovsky Balsam. It is a Russian product. Vinilin is sold in Poland in pharmacies as a medical product for burns, boils, difficult to heal wounds. It has been know in Russia for over a century. I started to apply it to my groin area 3 months ago and I havent had a boil for almost 2 months. Also, the small bumps under the skin, that with time would have became boils have disappeared. The only thing left are scares and discoloration.
I have been applying Vinilin for 3 months and have decided to stop this weekend. I am really hoping boils wont return.
Vinilin is relatively cheap - external use version is about $8-$16 online. Amazon and many Russian online pharmacies, some in US, do sell it. 1 bottle lasted me for about 2 months.
Vinilin is very thick and sticky and not easy to apply. It only dissolves with mineral oil so if you apply the product with your fingers you have to clean them with a mineral oil first then with soap.
Vinilin doesnt stain clothes.
I am writing this post hoping it may help someone. I know how devastating this condition is. I cant be yet 100% sure that Vinilin is the cure. I am hoping it is. In my case so far so good.
I have been suffering with HS for the last 10 years, diagnosed about 4 years ago. In the last 2 years the boils in my groin kept getting bigger and bigger and the area has numerous scars now. My doc tried almost everything including Accutane. Nothing really worked.
This year I went to Poland and my friend there told me about Vinilin Balm also called Shostakovsky Balsam. It is a Russian product. Vinilin is sold in Poland in pharmacies as a medical product for burns, boils, difficult to heal wounds. It has been know in Russia for over a century. I started to apply it to my groin area 3 months ago and I havent had a boil for almost 2 months. Also, the small bumps under the skin, that with time would have became boils have disappeared. The only thing left are scares and discoloration.
I have been applying Vinilin for 3 months and have decided to stop this weekend. I am really hoping boils wont return.
Vinilin is relatively cheap - external use version is about $8-$16 online. Amazon and many Russian online pharmacies, some in US, do sell it. 1 bottle lasted me for about 2 months.
Vinilin is very thick and sticky and not easy to apply. It only dissolves with mineral oil so if you apply the product with your fingers you have to clean them with a mineral oil first then with soap.
Vinilin doesnt stain clothes.
I am writing this post hoping it may help someone. I know how devastating this condition is. I cant be yet 100% sure that Vinilin is the cure. I am hoping it is. In my case so far so good.
I got Vinilin for external use and started to use it. Thanks to you I did it!
I want to ask you something:
Could you, please, tell me what is your HS stage comparing with the success of Vinilin?
I have no information about Vinilin for an oral use. What do you think about it, is it enough to use it only as an external care?
Have you heard about Russian "folk" antibiotic? I have heard all the best about it, but due to I live in Croatia, it is hard for me to get it, as well as to get Vinilin.
Once again, thank you very much, no matter will it work for me or not.
Wish you all the best and hope to get your answer.
Until August 10th, there is an opportunity for me to order from Russia what ever I need. This is why I am asking about Vinilin for an oral use.
If you have any useful information, please be so kind and share it with me.
Thanks