Hello. I just found this site and I am very happy to find people who are going through the same thing I am going through and can fully understand. I will be on here everyday if I have to be. No one in my circle gets it. They just thinks its hurts and I need to get over it. there are days when I don't want to move. I am so glad to find people who can understand that. I have been dealing with this issue for over 10 years now. I just would love to find something other than pills to help out.

I've actually been living with this condition since I was I'd say 17? I had no idea what it was. I would see doctors and specialists and no one could help me figure this out...all of them would say it was just ingrown hairs. I was finally diagnosed about 4 years ago.

You're not alone. I'm here to talk, share, listen.

Hello! Sorry you have been hurting. It's nice to talk with someone who can relate. I was so happy to find this site when I was finally given a name of what I had been fighting since I was 9. Now at almost 40 years of HS in many areas my best advice is don't suffer in silence. It's not easy but if you share what you are going through with those you love it helps. They may be able to help when times are tough. HS is a war that we battle every day. Many will never understand but maybe one will. It is a great idea to research and test things for yourself because everyone is not the same with reactions to styles of treatment. You know you best.
I read about using nursing pads for bandages on this site...best advice ever. Saltwater and sunshine always help. Many prayers for you! Stay strong for the battle. Don't let it keep you down!

You are not a freak. You can do this. <3

https://autoimmunejune.wordpress.com

You are not alone.

I have been misdiagnosed for years! It's ingrown hairs, it's folliculitus. Finally I found the right dermatologist to tell me what this really is. Living with HS is the hardest part about living, if that makes sense to you all. It determines how my day or even week is going to go. Flare ups are often around "shark week" for me, and to make matters worse I drive for a living so I have no choice but to sit on it! So painful, embarrassing if something oozes.
I have to share this however, for a period of about 10 months I had no flare ups. I worked out 2x a day, cut dairy, carbs, sugars and nicotine out of my life and had so much confidence, I was even able to wear a bathing suit and was a frequent visitor to the beach! That's how much it cleared up for me! No embarrassment! However life and work took over and I quickly picked up all those bad habits again! I want to know if I'm the only one who has experienced relief from healthy life style. What else has worked for you? I'm suffering again and can't find the motivation to lead a healthy lifestyle again.

@autoimmunejune
I read your blog, I'd love to chat with you sometime about AIP diet

You aren't alone. I was living in silence until i realized I had a support group around me. Your friends and family can help. Start by reaching to one and so on. If they are friends they will be understanding and maybe give you some comfort. They may not understand why or how and you can explain it to them. I have had one friend of a friend ask me questions and she went to the doc and got diagnosed with it. I am far from silent about it anymore. People need to know about it. Your first step about getting out and open about it is here with us. We all know the pain and suffering and the mental torture we go through during this. You are never alone

Hey, I'm trying to get the word out about what I just discovered! Drinking a TON of Cranberry juice every single day stopped the reoccurring cycle of my HS. I am no longer in pain and I feel great. I don't know if this will work for you and I'm not saying this is not a cure but it wouldn't hurt to give it a try.

P.S When I stopped drinking the Cranberry Juice, the HS started back up again so I started drinking it again and it stopped

I really hope this helps :)