Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
KarmylKisses
Hey folks, well first off just wanna say thanx for all of your responses to my post. Feels really good when u have others that show that they genuinely care. Well i did wanna let everyone know that i did go to my appointment on Monday & i guess u can say that it went ok if thats what u wanna call it. I mean when she finally came in the room she might have asked a cpl of questions looked at a cpl of my affected areas & basically did the typical ol' try this antibiotic & this cream or lotion & cleanser & there's pretty much nothing else i really know to do. Well that didn't really feel too good.
I'd finally thought that i had found somebody that was new & that would be able to give me a little more input for a change, but yea i guess not. I guess the one good thing that did come out of it was that she did put a referral in for me to see the plastic surgeon & they called me the next day to set me up to go the class that's a pre-req for me to go to now that i've switched over to Kaiser. I mean everything has been moving very fast for me considering i just switched over to Kaiser a cpl weeks ago & i've already seen 2 different docs within a week, so i cant complain too much about that.
But now the downer part is that now that i have all of this stuff moving quickly for me, now my insurance is getting ready to get cut again because i am still off work on disability & i don't have enough hours left that were donated to me by co-workers to help me keep my insurance. So that really really sucks right about now. When i found that out again all i could do was cry. Don't care about the money, i just want to be able to keep my ins. so i will be able to take the steps needed to get rid of this devastating disease as much as possible. I really thought i was doing something for a change, damn how devastating.
But like i said all i can do now is just keep my head up & stay as strong as possible. Hard as it may be i know i must do it. Well SOOO SORRY for making this so long, but once again just had so much to say, there's just so much going on as u all know very well. Now i'm just getting ready to suck it up once again & go back to work in worse condition that i was before i left 8 months ago so i can keep this ball rolling. I can't afford to stop again like i had to do a few months ago when they cut my ins., i just have to continue to stay strong.
Like i've said before, i just wanna say THANK U to everybody for all the support, appreciate it a whole bunch. I will continue to keep everyone updated on everything.
I'd finally thought that i had found somebody that was new & that would be able to give me a little more input for a change, but yea i guess not. I guess the one good thing that did come out of it was that she did put a referral in for me to see the plastic surgeon & they called me the next day to set me up to go the class that's a pre-req for me to go to now that i've switched over to Kaiser. I mean everything has been moving very fast for me considering i just switched over to Kaiser a cpl weeks ago & i've already seen 2 different docs within a week, so i cant complain too much about that.
But now the downer part is that now that i have all of this stuff moving quickly for me, now my insurance is getting ready to get cut again because i am still off work on disability & i don't have enough hours left that were donated to me by co-workers to help me keep my insurance. So that really really sucks right about now. When i found that out again all i could do was cry. Don't care about the money, i just want to be able to keep my ins. so i will be able to take the steps needed to get rid of this devastating disease as much as possible. I really thought i was doing something for a change, damn how devastating.
But like i said all i can do now is just keep my head up & stay as strong as possible. Hard as it may be i know i must do it. Well SOOO SORRY for making this so long, but once again just had so much to say, there's just so much going on as u all know very well. Now i'm just getting ready to suck it up once again & go back to work in worse condition that i was before i left 8 months ago so i can keep this ball rolling. I can't afford to stop again like i had to do a few months ago when they cut my ins., i just have to continue to stay strong.
Like i've said before, i just wanna say THANK U to everybody for all the support, appreciate it a whole bunch. I will continue to keep everyone updated on everything.
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