KarmylKisses

About Me

Hi everyone, I am 32 yrs old & have been suffering from this scary disease for @ least the past 6yrs. I was finally given a name to this maybe about 2yrs ago. Before then I just knew I had something, but of course was never given a name to it. When I would go to the doctor they would always mention some big name for whatever it was i might have had, but of course it was never in plain english just some big word from the \"medical world.\" I was always sent back & forth to many doctors, but of course no one knew exactly what it was i had & they definitely didn\'t have a treatment plan for me. It was always me going into the appts. giving them ideas of what I could do because it was something i had already tried for something else i had been treated for and that really makes u feel like crap because u feel that nobody cares & they don\'t really have an interest in what u are going through. At that time the biggest solution they might have had for me was to lose weight, everyone always had to blame it on the weight. Of course I always felt that was a cop-out for them, it was the easiest answer they could give to someone instead of really helping them. They always had to put the blame on something else. Well I thought i fixed all of that by finally having my gastric bypass surgery to lose the weight, but of course that did not help, everything has only gotten worse. I\'ve lost a total of 180lbs & I have been nothing but miserable in the last 2yrs since I\'ve lost all the weight. I have more flare-ups now than I did before, actually instead of them being flare-ups they just don\'t go away. They\'re in places that i didn\'t have them before & they are very severe to the point where i have been off of work for the past 7 months. I have these sores on every part of my body where they say u can get them. It all started under my breasts then to my armpits, both thighs my groin area & my buttocks. It has been very hard to live with this condition and there has been many of times where I just tell myself to suck it up & deal with it, because that\'s all u could do, life had to go on & things had to be taken care of. But finally it got to a point last summer where I couldn\'t take it anymore & I had to get my doctor to take me off of work because of the knots I had on my buttocks. I was to the point where i could no longer go to work everyday due to the severe pain I was in & I couldn\'t perform my job duties or I couldn\'t even live my daily life without being totally miserable & just breaking down & crying. I feel like everybody else I\'ve read about where u have been to point where u just want to give up & call it quits, u just can\'t take it anymore. But u can\'t quit u just have to \"TRY\" & be strong & keep moving on, which is very hard to do most of the times. I am just so excited that I have finally found somewhere I can go & I know that there are people out there just like me. I no longer have to feel like I am the only one out there anymore suffering from this horrific disease. I am NO longer ALONE. I am NOT a \"weirdo\" I am \"human\" too.