Hepatitis C Support Group
Hepatitis C is a blood-borne viral disease which can cause liver inflammation, fibrosis, cirrhosis and liver cancer. The hepatitis C virus (HCV) is spread by blood-to-blood contact with an infected person's blood. Many people with HCV infection have no symptoms and are unaware of the need to seek treatment. Hepatitis C infects an estimated 150-200 million people worldwide.
I am on just S & O and my doc did my first VL test at 2 weeks and it showed great improvement but not UD. It was 50 as i recall. Then he tested again at 4 and 8 weeks and I was UD. Next test is 12 week EOT.
It's very very hard to wait! but also scary if one of those comes back NOT undie. In the days of INF and Riba based txs, they tested during tx to see if it was working so as to allow pts and doc to decide to continue or not with a rough tx. the new txs have virtually no sides, so no one is going to opt out...and the truth is it really doesn't matter till your done...just hard to wait!!
Is he doing other labs??? You can get a good idea how things are going from your AST, ALT and Platelets.
So I don't know my 4 week VL yet - but I will this week; but regardless, those every two week labs tell the story - Sovaldi/Olysio is working! My platelets are steadily going up too as is my albumin - although it's now at the high end of normal. Bilirubin is up a couple tenths of a point, but that's to be expected during tx.
I am happy that I at least get to see those tests every two weeks - very motivating and inspiring.
Just frustrating. Some positive news could help with getting through some of the sides effects.
Patience needs to be a cultivated art of any "hepper" - or we'll drive ourselves nutz. :) Two years ago I found out I had gone from Stage 0 in 2002 to Stage 3+ (2012). I've had HCV since 1969 or 1972. So the virus got very aggressive in those 10 years. I was born in 1947, so i am certain age played a factor. I refused to do triple tx with Interferon (no regrets).
All of us who are receiving tx with Sovaldi are VERY fortunate. Insurance companies have clamped down since mid-February - they are taking a stand because of the cost and refusing to pay for it. I was approved in mid-January and am tx naive - VERY lucky!
So - I wait..... (tap tap tap).....
Your doc certainly has to be checking on those things, along with white blood count, etc etc etc, during tx. So VL is of course the "big deal" - but those other things tell a story too. A GOOD one!