Hepatitis C Support Group
Hepatitis C is a blood-borne viral disease which can cause liver inflammation, fibrosis, cirrhosis and liver cancer. The hepatitis C virus (HCV) is spread by blood-to-blood contact with an infected person's blood. Many people with HCV infection have no symptoms and are unaware of the need to seek treatment. Hepatitis C infects an estimated 150-200 million people worldwide.
The use of solvaldi is new in the general population. Long term results are not available yet, we are the pioneers.
Yes, would be happy to swap notes with you.
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Then my Riba had to be lowered to 600mg due to low hemo/RBC.
Now I feel pretty yucky most of the day,. I do have good days, I have to drink 6 bottles of water, or I pay for it by being sicker.
Today is a better day. Actually depending on how much I do in a day will dictate how I feel the next day.
It tolerable. I did Interfeuron, and trust me this is like a cakewalk.
Easy compared to past.
Good luck - everyone has different sides effects or NO side effects!!
I say this as I sit in dental chair about to have an extraction. My dentist (my brother) spoke to my pharmacy and that is how I learned this
Many on Sovaldi without Riba experience no sides at all. Some have headaches.
Drink lots of water and use the best sun screen you can get!! I was given SPF 100 on clinical trial using Riba and still got a rash on my hands,
Tell your doctor about any sides effects as there are ways to mediate them. I was given sleep medication and anti-nausea meds and I had my dose reduced to lessen the anemia that was causing shortness of breath on exertion.
Best of luck! It's a powerful and very successful treatment!!
I also have been leading a pretty healthy lifestyle for the last few years: mostly good diet, very active, etc, and I think this raw material has been the most important.
This past week much better. First week may have been my body shocked by drugs
Itchiness like fiber glass- manageable
One nite bad sleep but that normal for me
head ache very slight better than last week
ringing in ears mild
Stomach upset -better
Sometimes my muscles feel on fire
Sometimes feel like a bad sunburn all over (not due to sun)
The sides come on like a rush hours after taking riba
FOR ME ANYWAY. Just spent the last 2 day in bed on ice!!
I also just turned down a plum job where the people were going to allow me to stay at home and oversee from afar. I just do not wish to add any stress to my life right now, and possibly jeopardize the ongoing treatment. While every cell in me is screaming, 'earn money, work!' I need to self-care, and something will work out when the time is right...
Fell asleep in movie theatre watching "A Million Ways to Die in the Wild West", while my Hubby laughed and laughed.
Could not stay awake.
Emotional rollercoaster also - finally went to church and told Priest I have been biting my husband's head off - he wanted to know more about the new tx as his sister has Hep C - last thing I expected!!
There are soooo many of us out there!!!
Better you focus on yourself for now...
Good luck and God Bless
I to am on Sovaldi/Ribapac
cant help with whats to come but we can compare.
had the condition since 1975 and haven't had any health issues from it, and still don't but before I go on Medicare this Dec and while my insurance is covering it I figured I better go for it.
liver is cool , swelling is gone , and unless something stresses me , my urine has been as clear as water since week two . low grade headache the whole way . piece of cake ..
Hemoglobin is falling.
Getting tired sometimes so tired I can't wave my hand.
Its up & down.
If I notice I'm almost at halfway, that helps. Sometimes the feeling of rolling in fiberglass gets on my nerves.