Hepatitis C Support Group
Hepatitis C is a blood-borne viral disease which can cause liver inflammation, fibrosis, cirrhosis and liver cancer. The hepatitis C virus (HCV) is spread by blood-to-blood contact with an infected person's blood. Many people with HCV infection have no symptoms and are unaware of the need to seek treatment. Hepatitis C infects an estimated 150-200 million people worldwide.
I just started TX yesterday, I'm putting this thread here for anyone else who has tried, is trying, or will be trying this combo for us to share our experience. If there is already a thread on this please point me, but I didn't see one.
Me: Stage 4 cirrhosis, long term hcv/hiv, Isentress and Truvada.
A few years ago I tried Pegasys/Riba but only made it through 24 of 48 weeks, never went fully undetectable but almost. This time, going for 12 week TX with Sovaldi added. High dose of Riba, 1200mg, and 180 mcg of Pegasys. Hitting it hard going in. My platelets are already low, 50k or so, and liver function tests are elevated. Varices but no bleeding, take propronalol as a beta blocker. This will probably be my last shot at stopping the cirrhosis and curing the hcv. So I'm all in, and very thankful for the opportunity. Do or die. Literally.
Like I said I just started yesterday, and I'll update with side effects and bloodwork as we go along for hopefully the next 12 weeks.
Anyone else have experience with this combo?
Me: Stage 4 cirrhosis, long term hcv/hiv, Isentress and Truvada.
A few years ago I tried Pegasys/Riba but only made it through 24 of 48 weeks, never went fully undetectable but almost. This time, going for 12 week TX with Sovaldi added. High dose of Riba, 1200mg, and 180 mcg of Pegasys. Hitting it hard going in. My platelets are already low, 50k or so, and liver function tests are elevated. Varices but no bleeding, take propronalol as a beta blocker. This will probably be my last shot at stopping the cirrhosis and curing the hcv. So I'm all in, and very thankful for the opportunity. Do or die. Literally.
Like I said I just started yesterday, and I'll update with side effects and bloodwork as we go along for hopefully the next 12 weeks.
Anyone else have experience with this combo?
I had my week 5 doctors visit today and we are rockin' the tx at undie, got a copy of my labs just so I can sit and stare at them sometimes :-)
It definitely is a Motivator to see the "not detected".
12 weeks should be a breeze to get through as long as no infections from low neutrophils.
I just did my shot for the week, I do that on Fridays. It seems to give me a slight "buzz" or pick-me-up on the day I do it, for several hours. So I'll probably get out and walk or something.
I now have help come for about 10 hours a week, but the thing is I feel good enough to do most stuff on my own. I thought I would feel much worse than I do. Still it helps to have someone with me when I go out for a walk in case something happens and I get dizzy or something.
If it keeps going like this, the next 5 weeks will be a breeze. I always wait for the other shoe to drop, I'm afraid to be too optimistic. But I'm liking the chances of a SVR, and looking towards hopefully going back to work once this is over. I hate being at home doing nothing. It feels like being a loser when I'm not productive.
You mean it hurts worse if it's doing it's job??
I'm probably close to UD then!
jansumner55 I think Sovaldi will be just the trick to make everything work for you. Within a few months there more meds coming on board so whatever they put you on you can rest assured it will be better than interferon/riba alone.