Hepatitis C Support Group
Hepatitis C is a blood-borne viral disease which can cause liver inflammation, fibrosis, cirrhosis and liver cancer. The hepatitis C virus (HCV) is spread by blood-to-blood contact with an infected person's blood. Many people with HCV infection have no symptoms and are unaware of the need to seek treatment. Hepatitis C infects an estimated 150-200 million people worldwide.
See wasn't booted. Chat you soon. Took a very short break from here myself but I'm back too. Greetings to NorCal from SoCal. :-)
I'm glad I still have this group and my IRL Support Group!
I have a habit of challenging some incorrect information in here and I don't get in as much trouble for doing so in here because I believe after all, that it's all of our responsibilities to make sure that the newcomer has the most accurate and up to date information regarding the most noteworthy aspects of battling HCV, post the latest research developments in a format that can be easily understood and by supporting everyone in here by supplying facts vs fiction and explaining certain things that may lead to confusion at times...
I will say that I'm not always correct either and have learned from many in here about certain things I wasn't even aware of so I don't pretend to be perfect but, I do demand mostly from myself the most accurate information available to me and others in order to post it here for anyone who needs to know about it...
And I'm in the habit of checking and rechecking the sources that would substantiate those facts before I either start a thread or add to one already started as well as when I rarely need to challenge the accuracy of certain misconceptions that occasionally get posted in here...
I also enjoy reading about some of the different folks in here with respect to their stories and struggles in fighting this disease and by doing so, it let's me know that I'm not alone in some of the experiences I have personally have gone through as well as relating to them in many aspects...
That's something that really does separate this group from the other forums as well as not being afraid to post the bad news as well as the good news...And being able to post&read off topic stuff which is widely frowned upon in other forums, the really good vibes I experience in here as well as the friendships I have found in here which is why I found a second, a cyber - virtual home in here!!! ;>) ;>) ;>)
I too am glad you're back here Cassy! I was wondering what happened to you so I'm glad you're hanging in there like the rest of us!! ;>) I look forward to reading more of your posts!;>) ;>) ;>)
Respectfully,
Henry
Say a final good riddance to it, girl.
Great to see you - I was thinkin' about you yesterday!
Me - still not treating and won't until they Interferon and Riba are out of the mix for geno 1's. Just won't do it.
The bottom line is here you can agree to disagree and all of those other "clickish" sites will always tend to put someone new under a microscope and unless one follows their particular pseudo-philosophy verbatim one will most likely be restricted or banned completely by these so called support group which are actually nothing more than tightly controlled online social clubs with very specific criteria that must be met in order to be accepted as well as to continue their membership in such a pile of elephant dung!
You really have the whole thing figured out nicely and neatly. I KNEW that, but still tried to fake "being normal" it was SO pathetic, yet I can laugh at myself, and I did meet some nice peeps over there, and hopefully they may find me here also!
@CatMagic: I will never forget when we first met over there,and the fun we had with topic, "Anal Dragon Butt-Fire", while referring to Incivek sides~ I was telling you that your butt would have to be scrupulously scrubbed, and then patted dry, after every poo, and you popped THE BIG QUESTION: "But what do I dry my butt with??" My reply, " your Hubbys clean boxers" lmfao!
I am really glad you didn't Treat with Incivek. I see you are holding out for the One pill a day, no Riba...you are smart!
Once upon the time i have tried a petition for more research money. I have called and emailed to 50 of this so called non profit folks. I had one single email response from one site, and not with a single respond . No one cared about my hepatitis signature drive , of all together i had like 47 names. Whoa. Whopping number out of the millions with the disease.
This sites obviously got to careful what they put on the front page , because the grant wont come in next time around. You don't see advertisements of products in many of the HCV sites and that is for a reason, as most website makes revenue with ad sales.Someone got to pay the bills.
I hope now this post answered why many of this sites so tightly regulated. Including the liver foundation one of the biggest, whom could really reach out to lots of folks if they wanted to, but i guess asking the Gov for more educational money for TV ads to explain to the viewers how many of us not exactly drug user, never have been, how many of us ashamed to tell to others about are issue with Hepatitis, because this is supposed to be the disease of junkies, and people with blood transfusion. there are no TV ads, even as estimated now 2.6 - 5 million people has the disease.
The worst is how many people can not afford insurance , and Gov wont treat until folks got to deteriorate to a certain grade.You rot alive because you poor. You see non of this sites even mention that. Why? And Obamacare is a blessing in the sky or a brand new gimmick we will find it out in a short while, as i have just read today, some people insurance just doubled under the new rules..
Sherry Houston, a director of a San Jose nonprofit, said the Kaiser insurance policy she's been buying on her own is increasing from about $281 to $579 a month. She received a letter Monday from Kaiser that said her rates were going up partly because of the "new benefit and enrollment rules under health care reform."
http://www.mercurynews.com/nation-world/ci_24218860/californians-celebrate-curse-first-day-health-insurance-exchange
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I did notice that there were big "no no's" on the MedHelp site, and they were: mentioning health-foods, healthy exercise type of life-style, mentioning the dangers of Interferon during and after treatment, and suggesting people now wait for the easy all orals...I thought maybe Pharma is trying to unload the Interferon while they can~~~
MedHelp partners with doctors from hospitals and medical research institutions to deliver online discussion boards on healthcare topics. The company's slogan is "Finding Cures Together."
Well if you are healthy you are WORTHLESS to MedHelp partners , to the doctors and hospitals and medical research institutions. they want to sell you pills for everything.Doctors has quota's in many hospitals how much money they got to bring in annually. Someone you trust will sells you shit just to keep his half a million per year job. Smile on his face of course. But somehow we all love our doctors. They are the best of course. Well who is bad one? I think my neighbor doctor is. Someone got to be.Ha!
I also noticed some Transference issues with my Dentist??? Yes, I am a sick, sick lady ;p
I thought medhelp was great for information, anything inaccurate would have been immediately challenged and backed up with links.
No one on ds did my trial but I knew quite a few on medhelp who did the trial, some where I did.
DS was good for handholding, but medhelp was one of my favorite source of information.