Hepatitis C Support Group
Hepatitis C is a blood-borne viral disease which can cause liver inflammation, fibrosis, cirrhosis and liver cancer. The hepatitis C virus (HCV) is spread by blood-to-blood contact with an infected person's blood. Many people with HCV infection have no symptoms and are unaware of the need to seek treatment. Hepatitis C infects an estimated 150-200 million people worldwide.
Hi Everyone.
after almost a year of not following DS I am back with news that I am still infected with the Hep C. After completing the 3 TX last March things were looking good but after follow blood work in July I found out that it had returned or actually never gone away..
Since I found out I never told anyone including my wife until two days ago.
I just had returned from a long extended vacation to Western Australia to visit relatives. This trip was planned in advance of completion of the 11 month treatment that I endured. It was my so called pot of gold at the end of the rainbow.
Before I left after Christmas I read about the approval of the latest treatment that was approved. I guess at some point this year I will start on this once I get clear up another issue. While away I slipped and fell tearing my rotator cuff in my right shoulder. It has to be fixed so I don't want start anything new until I get it fixed. That should happen soon.
If and when I start the new stuff it will be the 5th time I have tried TX since being diagnosed in 1992. The last biopsy before TX two years ago showed the old liver is pretty much getting to the end of its usefulness so this may be my last gasp before symptoms start setting in. As of now I'm still healthy as a horse. Continue to be in great shape and constantly working out, biking, and walking. Other than neuropathy in my feet I have no symptoms of anything else related to a bad liver.
Not looking forward to new treatment but from what I read its nothing compared to the 11month 3TX and it's only 6 months. I'll probably be back on here from time to time to follow the conversation so as before I look forward to being part of the discussion on everything about Hep C
As always thanks for the support you guys provide
after almost a year of not following DS I am back with news that I am still infected with the Hep C. After completing the 3 TX last March things were looking good but after follow blood work in July I found out that it had returned or actually never gone away..
Since I found out I never told anyone including my wife until two days ago.
I just had returned from a long extended vacation to Western Australia to visit relatives. This trip was planned in advance of completion of the 11 month treatment that I endured. It was my so called pot of gold at the end of the rainbow.
Before I left after Christmas I read about the approval of the latest treatment that was approved. I guess at some point this year I will start on this once I get clear up another issue. While away I slipped and fell tearing my rotator cuff in my right shoulder. It has to be fixed so I don't want start anything new until I get it fixed. That should happen soon.
If and when I start the new stuff it will be the 5th time I have tried TX since being diagnosed in 1992. The last biopsy before TX two years ago showed the old liver is pretty much getting to the end of its usefulness so this may be my last gasp before symptoms start setting in. As of now I'm still healthy as a horse. Continue to be in great shape and constantly working out, biking, and walking. Other than neuropathy in my feet I have no symptoms of anything else related to a bad liver.
Not looking forward to new treatment but from what I read its nothing compared to the 11month 3TX and it's only 6 months. I'll probably be back on here from time to time to follow the conversation so as before I look forward to being part of the discussion on everything about Hep C
As always thanks for the support you guys provide
me out during my TX. I hope the best for you with the new TX.
I've been wondering how you've been. I have been riding my bicycle a bunch after treatment, and I seem to remember you going on a bicycle tour after your last treatment.
I can only imagine how tough the news must be. I go back for bloodwork next week to see if my 48 weeks in hell were successful or not.
The good news is that the new treatments really do seem like a cakewalk compared to what we went through.
I sure hope you can finally slay the dragon.
Bob
My hopes & prayers are with you
Well, the good new is the times they are a changin'!!! No more Inteferon, no more riba and the new txs are shorter duration 12 weeks and higher success rates! I'm on one now and ZERO SIDES!! Not kidding you. I am on Sofosbuvir and Semeprivir aka Sovaldi and Olysio. It's off-label but with your history your doc would have no problem getting approval - depending of course on your insurance.
Read my posts on these two drugs and also the post on Off-label - getting approval and also Catmagic's post....and best of luck to you with the shoulder and TX!!
I'm waiting for a clinical trial to began recruiting in IN. My Dr. Said he'd get me in.
It's all pretty scary.
I wish you the best in your endeavors in life. We will survive !!
This is just something to ask your doctor about or to do some research on. Every doctor has a different opinion on most issues.
I have already discussed with the doc. Since I am geno 1 non responder I will have to be on 24 tx. I am not worried about the side effects as I rarely ever had any symptoms other than depression. That was mostly due to the long term use. 24 weeks is nothing compared to the previous treatments that I've gone through. The thing I hated most about last years TX was the Incivek and having to eat the fatty foods with it. Don't want to go through another TX where I have to constantly be drinking milkshakes late at night but then again that's really nothing when I think back to all the rough times others have gone through with treatment...
Like I said if the next TX doesn't work it's not the end of the world but might be pretty close to it with the condition of the liver showing microscopic deterioration as it is.
I'll probably find out more later this week as I am scheduled for an endoscopy with the GI specialist that has handled all my TX's...
Regardless I am still very positive about things going forward and will always remain so. I don't ever want my family to perceive me as a week person. I believe in the saying " Only the strong survive"
Thanks again to all YINZ (pittsburghese for you all)
I'm anxious to know my 24 weeks results. At that point - maybe I'll finally feel SVR.
The published 12 week post Tx results.
http://www.gilead.com/news/press-releases/2013/12/gilead-announces-svr12-rates-from-three-phase-3-studies-evaluating-a-oncedaily-fixeddose-combination-of-sofosbuvir-and-ledipasvir-for-genotype-1-hepatitis-c-patients