I have severe osteo-arthritis in most of my joint, my muscles ache, I can't sleep good at night, I have osteoporosis and other things that I can't think of right now but my ferriten was ove 20,000 and my sat. was 98 or 99% in 1992. 21 years of blood letting but it keeps us alive! In this part of VA there are lot of people who have the gene because there are a lot of Welsh, Scots/Irish and English. Which I have all three and my wife is a carrier too from having Welsh in her. I pray that there will be a cure in the genetics in the future for people who have a double gene. My two boys 37-38 have HH.

Joints hurt, hands swell, can't sleep, always tired, restless legs, and my vision has gone to hell in the last two years.

I have most of those problems, especially the joint ones. My knee makes that grinding sounds on a regular basis and my hip is sore and tender every day! Trouble sleeping but was just diagnosed with sleep apnea...not sure if this is connected to HHC. Issues with my stomach for a long time. Don't really have any issues with supplements but I only take calcium with vit D. From my experience on various facebook sites a lot of people with HHC have most or all of those symptoms!

No to all except
3) slight joint pain (mostly fingers)
6) not indigestion but did have IBS type symptoms until I was deironed.

(I'm C282Y/C282Y)

I just want to comment on the sleeping issues. I'm still fairly new with the whole HH thing and after reading several of these discussions realize that each one of us has our own journey that is unique yet somewhat similar. I used to wake up in the night and stay awake for hours too but I've found Tranquil Sleep by Natural Factors works wonderfully! I take two a little while before going to bed to read and usually only wake up one time to use the restroom. I also don't have any droggy feelings in the morning, I actually feel great! I hope this helps.

By the responses you can assume HH affects everyone differently. My latest ferritin level is 425 so getting close to range. Was diagnosed only at 770. The two significant symtpoms for me are fatigue (some days just no energy), and indigestion (uncomfortable full feeling after eating even a small meal and burping. I think the HH has also put me on the low end of testosterone which then creates even more symptoms.

* I am 23, and only had a ferritin of 110 when I was diagnosed.

1) bone loss or osteoporosis; a grinding sensation in your joints when you move around.
No bone loss that I'm aware of.

2) your body can't seem to tolerate any kind of vitamin or nutritional supplement---or you are very sensitive to supplements and just can't tolerate them.
I haven't had this experience with supplements, but I get sick to my stomach when I eat eggs, bananas, avocados, and milk.

3) your joints hurt
mainly my wrists, but I sometimes have pain in my hips and knees too.

4) your bones feel like they are coming kind of loose out of the socket; like your shoulder sockets aren't holding your arm bone in place very well. Or---leg bones in the hip socket or knee sockets.
I feel this sometimes with my hips.

5) trouble sleeping---wake up in the middle of the night and can't get back to sleep?
I wake up during the night frequently, usually to use the restroom. This actually has decreased somewhat since my first phleb a couple weeks ago.

6) chronic indigestion
I go though periods where I get indigestion almost every day and then others where I have no issues. I used to try acid reducers which would help somewhat. But I heard somewhere that sometimes people who experience heartburn actually do not have enough acid to digest protein, instead of too much acid like many people believe. I tried taking food enzymes with meals which helped. I have stopped taking the enzymes but I get indigestion a lot less frequently than I used to.... not really sure if there is any significance here or not.

Just found out I have Haemochromatosis. Yes I have severe joint pains particularly in my hands but also feet, knees and hips. Before my diagnosis I had x-rays on my hands and feet which did not show any signs of osteoarthritis and blood tests for rheumatoid were clear. The pains in my hand are accompanied by horrible numbness and tingling sensations.
I can also relate to the feeling of loose joints I sometimes feel that in my wrists and shoulders.
I have trouble sleeping and never seem to get a full nights rest. I cannot get comfortable because of pains in my hands and arms.
i have always had disestion prooblems but only now realise they may have been related to HH.