Hemochromatosis Support Group
Hemochromatosis is a hereditary disease characterized by improper processing by the body of dietary iron which causes iron to accumulate in a number of body tissues, eventually causing organ dysfunction. It is the main iron overload disorder. Hemochromatosis is notorious for having symptoms that are often initially misattributed to other diseases.
I go to Carolina Cancer Care in Huntersville.
I have a fantastic RN that takes care of me. With my small veins I was incouraged to get a port. I see Dr Fisher, she seems to be quite knowledgable about HH.
Sandra
My doctor is doctor Fisher as well, but I haven't seen her yet. My first doctor's appt. was in Harrisburg. That was too far for me to drive so they are sending me to Dr. Fisher next. The phlebotomist tells me she trained with the Hemochromatosis Expert in med school! I had an appointment for this week and they called and rescheduled it at the end of November. The phlebotomist is supposed to be getting an answer from her as to whether I should get a port. Maybe I should try another phlebotomy after taking asprin. Does your RN go to other Carolina Cancer sites. What is her name? It might be worth a drive to Huntersville.
Many thanks,
Pat
When I first saw Dr. Fisher I told her how hard I was to stick and that my internist had said he thought I would need a port for the Phlebs. She had one of the Chemo nurses come in and look at my arms real good and she said my veins were so small that she definately recommended that I get a port. They actually tried to do a regular Phleb 3 times and my veins just blew and this is kinds gross but when they took the needle out my blood was so thick that it looked like a red string.
Anyway my nurse is Suzie she is great. She does not travel to the other offices. I wish
you lots of luck with your Phlebs.
Keep in touch,
Sandra
Did you end up getting a port?
Pat
Sandra
Pat