Graves' Disease Support Group

Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of hyperthyroidism.

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  • Avrilc1971

    Hello

    4
    Hi. I'm Avril. 45 from Ontario Canada and I was just told yesterday that I have Graves disease. So thanks for having this group and I look forward to reading stories, getting advise and support from you all. Thank again Avril
  • CreativebutTired

    Hello

    5
    I am a 16 year old female who was told last saturday through the E.R that I have Graves Disease. I just started meds and dont really know if they are working or not. The Dr. told me it would take a month for it to full work. I only have one main complaint. My throat feels like a knife is stuck in it. This is due to my Thyroid being swollen. I cant help but to feel bad all over and lost all...
  • beckysharma

    New

    Hello, I'm Becky. I was just dx with GD a few weeks ago, but I have had symptoms for about 9 months. I have started taking 10mg of methimazole daily, but I feel the exact same although my tremors have decreased. Hubs and I want to start a family soon, but my DR adviced to avoid for the next few months. What would happen if we got pregnant? And why do we have to wait a few months? Also, what are...
  • Has anyone had to choose between radioactive iodine or a thyroidectomy? Who wants surgery but RAI doesn't sound much better. Thoughts?
  • Hi I have graves diease and hyperthyroidism just dx with it, but had symtoms for over a year there is a wounderfull group on facebook if you like to join, , https://www.facebook.com/groups/FTWOGravesDisease/ the more info thats out the better people will under stand.
  • Hi Everyone, My names Tesse, im 27 from Melbourne, Australia. I was diagnosed with Graves disease back in 2013 and have unfortunately been unable to reach a remittive state yet - despite being under the careful watch of a great endocrinologist.In the last 12 months, I have had recurrent and serious infections that have resulted in hospitalisation, in fact, I even copped a double whammy most...
  • I was diagnosed with Graves around 15 years ago, took Tapazole for 9 months or so and went into remission. At the time I was diagnosed I had most of the classic symptions tremors, hot all the time, sleeping poorly. Some time back my FP retired, while I thought the new FP was monitoring my TSH I guess either he wasn't or it just recently reappeared. I went in about 2 months ago because I was...
  • My partner and I have been together for 2 and a half years, most of it extremely loving until recently they started off so kind, considerate. We are usually very happy. They have had Graves since they were 19. They are 35 they have not had RAI. Recently, the last four months have been a rollercoaster , two very nasty blowups . As we live in South Texas they are always hot, always...
  • Candi

    Thyroid levels are up

    1
    Hey I have had Graves disease for about 5 years. First remission was about 3 years and the 2nd only 1 year. Anyway, started getting symptoms so got my levels checked.TSH less than .01 ref is .27-4.2 uIU/mlFree t4 2.39ng/dL ref is .9-1.7 ng/dLDoctor put me on 5mg methimazole per day (which I thought was a bit low but my levels didn't seem too crazy so oKay whatever)Month and a half goes...
  • Ok - I reckon I had this undiagnosed since this time last year (finally diagnosed in Jan 2016).I lost nearly 2 stones in 6 months and was down to nearly 7 1/2, a lot of the problem seemed to be symptoms of menopause.I was diagnosed in Jan, levels then Free T4 37.8 Free T3 22.2 TSH less than 0.01. Started with serious hand shaking in Feb, beta blocker added, prescribed in March - carbimazole 30mg...
  • my wife was diagnosed with graves disease earlier this year,she has seen a specialist and is getting treatment.i am posting this for help and answers if possible.even though my wife is on medication and her levels have dropped to a near normal level she has changed so much at the moment we are fighting again over sometthing silly.i was wondering even when on medication is it normal for her to be...
  • I was diagnosed with Graves Disease in 2012, after being on Carbimazole and doing black and replace my GD went into remission and all medication had been stopped. After 16 months it came out of remission and I am now back on carbimazole 20mg per day. I declined RAI and opted for long term ATD. Due to the palpitations and tremors my GP put me on Propranolol 2 x 40 mg per day, I developed water...
  • mcdevitt07

    muscle fatigue

    Hello, When I am hyper or hypo my calves start aching. It literately hurts to stand so I will do much sitting and it still bothers me unless I can put my legs up.In the past I would take two ibuprofen and this would work well. I remember watching a Dr. Weil DVD and he said a small daily dose of ibuprofen helps keep inflammation down. Of course I hear much information to the contrary lately and...
  • marybeth123

    New Here and Worried

    7
    I am glad to find this group. I need someone who understands to talk to about my thyroid function levels. I started having symptoms of palpitations, my heart rate is slightly elevated at 95-110, feeling shaky so I went to see my doctor who did a TSH and free T4 level. The results was TSH .3 and free T4 was 3. It looks like I may be hyperthyroid but when searching hyperthyroid it looks like...
  • mcdevitt07

    Block and replace?

    0
    Hello, I have had Graves for going on 9 years now, so I am no stranger to this. I have been in remission several times in the past years but always seem to go hyper with in a month or two. My question is: Are any of you on a block and replace? I have heard it called other names too. Where you take methamzole to put the thyroid to sleep and then take a replacement. How has that worked for you? ...