Graves' Disease Support Group

Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of hyperthyroidism.

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  • I tried looking on the living with graves site but I couldn't find the information or if there is information on the hashimotoes side of things. I would like to read up on some information if someone could direct me to the information that would be awesome. Specifically dosing of synthroid and if people dose differently. My Endo increased my synthroid to 100mcgs. I have recovered from GD but...
  • I was diagnosed with Graves around 15 years ago, took Tapazole for 9 months or so and went into remission. At the time I was diagnosed I had most of the classic symptions tremors, hot all the time, sleeping poorly. Some time back my FP retired, while I thought the new FP was monitoring my TSH I guess either he wasn't or it just recently reappeared. I went in about 2 months ago because I was...
  • Gravesrookie

    Clueless

    1
    I have just been diagnosed! I am clueless I have read and read stuff online but it seems my symptoms are not as bad as some I feel hot and moody with some muscle pain rapid heartrate and such I guess I don't know what to expect from here......please help!
  • mcdevitt07

    Considering a suppliment

    5
    Hello,I am pretty much in remission again and this is my 4th time. I go into remission and then wait for a flare up and start over again. I was considering a block and replace but can't seem to find anyone or a Dr that will do this. Has anyone tried a dessicated thyroid suppliment from a vitamin store and take methmazole at the same time?
  • Severett0831

    BLOODWORK

    2
    I was diagnosed with GD in 1997, had RAI the same year. I was not offered options or other treatements at the time. Regardless, what's done is done. After reading some of the posts, I see many people talking about having their T3 tested. I checked my lab work for the last 15 years and my T3 was tested once. How important is it to have them include that in the bloodwork?
  • jenleigh1

    Heat Intolerance

    1
    Ok, so I don't know what my numbers are at the moment but have blood work ordered. Have to drive 30+ miles to get it drawn. I was diagnosed with diabetes 1.5 and graves 5 years ago. Walked around in a fog following white coats orders. Had the RAI therapy and now on levothyroxine 125 daily. I have such an intolerance to any heat it is crazy! Wondering if anyone suffers who is supposedly in...
  • justicecm

    Radioactive Iodine

    3
    I just had the RAI treatment done yesterday for Graves Disease and I fell horrible today. I have always been extremely active, but I dont have the energy to even move. Going to the bathroom makes me tired. I am just concerned as to how long this will last? I have always had to exercise alot to keep my weight down, but I know I am to tired to as is. Have any of you had this done? What were your...
  • Purplegirl123

    RAI vs thyroidectomy

    3
    Has anyone had to choose between radioactive iodine or a thyroidectomy? Who wants surgery but RAI doesn't sound much better. Thoughts?
  • Krypticos

    Let's Talk - I need HELP

    2
    So my wife has graves and she has had it for several years but just got diagnosed last year. As of her last testing her leaves are normal. I have been with her for 16 years now. we got together in 2000 in high school and it was great for about 7 years or so. Then she changed from the person i loved so so much to what she is now. Now i don't mean that is a bad way but her attitude about our...
  • Hi Everyone...its been some time since I last contributed to the message board. I have been on Methimazole since February and my levels have normalized. I was initially diagnosed with Graves, but since then, my endo said its sub acute hyperthyroidism. I go for routine check-ups with the endo, and he says it looks like I am on the right path. I started out on a dosage of 10mg per day in Feb, 5...
  • Avrilc1971

    Hello

    4
    Hi. I'm Avril. 45 from Ontario Canada and I was just told yesterday that I have Graves disease. So thanks for having this group and I look forward to reading stories, getting advise and support from you all. Thank again Avril
  • CreativebutTired

    Hello

    5
    I am a 16 year old female who was told last saturday through the E.R that I have Graves Disease. I just started meds and dont really know if they are working or not. The Dr. told me it would take a month for it to full work. I only have one main complaint. My throat feels like a knife is stuck in it. This is due to my Thyroid being swollen. I cant help but to feel bad all over and lost all...
  • beckysharma

    New

    Hello, I'm Becky. I was just dx with GD a few weeks ago, but I have had symptoms for about 9 months. I have started taking 10mg of methimazole daily, but I feel the exact same although my tremors have decreased. Hubs and I want to start a family soon, but my DR adviced to avoid for the next few months. What would happen if we got pregnant? And why do we have to wait a few months? Also, what are...
  • Hi I have graves diease and hyperthyroidism just dx with it, but had symtoms for over a year there is a wounderfull group on facebook if you like to join, , https://www.facebook.com/groups/FTWOGravesDisease/ the more info thats out the better people will under stand.
  • Hi Everyone, My names Tesse, im 27 from Melbourne, Australia. I was diagnosed with Graves disease back in 2013 and have unfortunately been unable to reach a remittive state yet - despite being under the careful watch of a great endocrinologist.In the last 12 months, I have had recurrent and serious infections that have resulted in hospitalisation, in fact, I even copped a double whammy most...