Fragile X Syndrome Support Group
Fragile X Syndrome is the most common inherited cause of mental retardation, and is associated with autism. The fragile X syndrome is a genetic disorder caused by mutation of the FMR1 gene on the X chromosome. Mutation at that site is found in 1 out of about every 4000 males and 1 out of about every 6000 females.
-
Hello, I'm looking for advice from those of you who have experience. My daughter will be 2.5 in February. When I was... READ MORE
-
My son was recently referred to a neurologist due to pediatrician concern about his weight. My son is very social and... READ MORE
-
Hi, my son just got diagnosed with Fragile X. I have an appointment with his genetisist next month to talk over... READ MORE
-
Hi. Sorry I don't know where else to post this.Five years ago my son met a woman who was pregnant three weeks later. We... READ MORE
-
I'm 11 1/2 weeks pregnant and I had my second doctors appointment a few days ago. In the first appointment they did... READ MORE
-
I found out this week that I am a pre mutation carrier of fragile x. I am currently pregnant with my second child, a... READ MORE
-
Shortly after getting married almost 2years ago, a family member (cousin) shared that her three boys had all been... READ MORE
-
Hi,I am currently 15 weeks pregnant and found out at 13 weeks that I am carrier of the fragile x premutation with 159... READ MORE
-
I understand some researchers are reporting significant improvement in males with FXS using something called... READ MORE
-
This is my first baby, they think I am 6-7 weeks. I go in for my ultrasound on the 20. I have mutated x syndrome. I... READ MORE
-
Does your child with fragile X have difficulties with problem behaviour? Maybe anxiety or hyperactivity has been an... READ MORE
-
Hi Im just on this discussion to see what its like to be a parent who has a child with fragile XI look forward to... READ MORE
-
I'm a Fragile X carrier with 75 repeats. I'm doing IVF with Preimplantation Genetic Diagnosis. Has anyone else gone... READ MORE
-
Hello my names cristobal and i doing a project to inform the rest of my class over Fragile X, and wanted to learn a... READ MORE
-
What daily struggles do you face when dealing with fragile X syndrome?
