Fibrous Dysplasia Support Group
Fibrous dysplasia is a disease that causes growths or lesions in one or more bones of the human body. These lesions are tumor-like growths that consist of replacement of the medullary bone with fibrous tissue, causing the expansion and weakening of the areas of bone involved. Especially when involving the skull or facial bones, the lesions can cause externally visible...
Endocrine System
Fibrous Dysplasia Support Group

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just found out my 9 year old has this along with XQ25 duplication she is already 5'6 wont be 10 till the end of... READ MORE
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So my recent checkup said I might be getting double vision, I have FD in the orbital bone btw, and I just want to know... READ MORE
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Hi, I’d love to hear from some of use, I was diagnosed with FD at the age of 6 I am now 20 and am in discomfort and... READ MORE
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hi, iam recently diagnosed with f/d of the skull and have a golf ball size lesion pressing agianst my brain. i find it... READ MORE
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Hey all. My name is Kyle, and I was diagnosed with FD at 3 years old. I was lucky enough for it to present in my skull... READ MORE
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I am a 24 year old female and have recently been diagnosed with Fibrous Dysplasia in my right lower jaw/mandible. I... READ MORE
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Hi all-Im a 41 yo female diagnosed with FD at 38. To my surprise, a CT scan showed a large amount of growth, likely... READ MORE
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Hi there everyoneI was diagnosed with FD seven years ago.I get really bad headaches and have a constant sinus... READ MORE
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Has anyone had the weather effect their pain with fd? I seem to be worse on rainy days.
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hi I have been recently diagnosed with FD in several areas. My right hand and arm are dominating the pain, the pain is... READ MORE
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Does anyone else have pfd? Does anyone know if you can get disability for it? The only thing I really know is that it... READ MORE
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Ive got FD in my lower right leg. I got diagnosed with it last year. Had been getting some major 'shin splints' before... READ MORE
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I'm so happy I found this group! I have FD and have had multiple surgeries. 4 surgeries on FD and 2 related to... READ MORE
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fibrous dysplasia of skull - surgery advice please
Posted by: deleted_userLast Reply: michellewaddsHi Guys, I've had FD in around my eye and head for years now and have recently finished the process of having it... READ MORE -
My 17 year old daughter has fibrous dysplasia in her optic canal. She gets yearly cat scans. So far the dysplasya has... READ MORE

