my worst is my back. the muscles mess with my back all day and all night. all day i'm puting my back and neck in place over and over again. and i go to bed in place and wake up so out of place i want to scream sometimes.
when the back goes so does the head and the stomach and other places. it even flares up my IBS. it sucks.

My worst problem is the pain I have in my left butt region and all down the outside of that leg to my knee. Some days it is so bad I can hardly function, but I always have it to some degree.

This is easy for me, standing. I miss standing soooo much. I can no longer cook, clean, stand in line at a grocery store, go to an amusement park. I can't stand still long enough to carry on a conversation! I want to stand again!

YES YES YES - All the things mentioned !!! I would love to be able to stand and carry on a conversation...to not break into a horrible sweat from doing nothing and feel the heat leaving my body from everywhere, and have the energy to actually play with my grand kiddies, and and and ... the pain. Sometimes I just wonder what it WAS like. I can't hardly not remember not feeling this way.
God Bless us with an answer !!
-Anne

brain fog is the worse for me. especially at the moment, so if this doesn't make sense that's why. i can deal with pain and being tired, but i can't deal with not being able to think. today's better than yesterday but that's not saying much. i've backspaced in this short space more than i've typed. lol.

hard choices...lack of energy.Iam lucky, I am OK (if I take my med's & supplements) but no energy. Any ironicly I DO sleep,12 hrs a day. Then I hate to go to bed that nite 'cause tomorrow I will be the same. No longer work & no longer do all the things I so vvery much loved to do up to 8 yrs ago. So lack of energy for me

Wow, that is a tough one to answer and I know this isn't really a direct answer, but for me it changes from day to day. Some days the migraines keep me from even functioning so I would say that was the worst, but other days it's the fibro-fog and other days it's the debilitating muscle cramps and spasms my body goes through (this week has been one of the worst with cramps so bad in the right side of my back I can barely move or walk). Sorry, I know you asked for one, but like I said for me it varies depending on the day.

Hang in there everyone, we will get through this. :)

--Blessed Be

you could try burdock root 3x's a day with the last dose at the lastest of 3pm becasuse any later and you wont go to sleep easily. i've found that that works for me

For me its the brain fog,talking rubbish and pain and heaviness in my arms.

All of it! pain, fog, IBS, insomnia, depression it has caused, effect on my family & possibility that I may have passed this on to my son!

you mentioned passing this on to your son what are his symptoms i think i may have passed this on to my 6 year old little girl

Newest spot to RUB till raw, right over my ribs, constant care I give but no end,been over a month guess its a knot. Pain pills dont touch it, everything else am used to. Guess the newest is my biggest right now! ask tomorrow might have a mutitude of answers....like many of us. Hoping all has less to rub, soon! Daun...:)

Pain, pain and more pain. It varies from day to day. Pain is the worst. Then fatigue, stiffness. Getting to the point that I don't want to do anything. Trying to explain to family and friends is getting so tiresome.They just don't get it. The worst part is my doctor does not seem to understand and I am limited because I belong to Kaiser.