Worst most disabling would be Neuropathy which I just developed. I also think that the no sleep is definately a major problem. If I could get my sleep under control I would be able to handle the pain better.

I would have to say the pain & heaviness in my shoulders & the insomnia. Also not really part of fibro but the arthritis in my back is getting worse. I can't bend over to do any chore w/o having to head for the couch very soon after either trying to complete/or completing the chore. It hurts like well you get the idea.

I REALLY DON'T KNOW THE ANSWER TO THAT RIGHT NOW . I'VE BEEN IN SUCH A SLUMP FOR THE PAST WEEK THAT I REALLY DON'T EVEN KNOW WHAT I'VE SAID TO YA'LL . THE PAINHAS JUST OVERWHELMED ME AND I'VE NEVER HURT LIKE THIS BEFORE, BUT THE DR. DID SEE ME YES. AND GAVE ME MORE PAIN PILL AND THE TRAZADONE TO SLEEP. I'VE NEVER FELT THIS KIND OF PAIN BEFORE IN MY LIFE AND I CAN'T EVEN FOCUS WHEN I'M THERE. I CERTAINLY HAD NO BUSINESS ON THE COMPUTR, SO IF I'VE HURT ANYONE'S FEELINGS, PLS FORGIVE ME, I'M PRAYING THAT THIS IS ENOUGH MEDS TO RELEASE ME FROM THE PAIN SO I VCAN AT LEAST THINK MORE CLEARLY. I LOVE YA'LL AND ALL I CAN ASK OF YOU IS TO PRAY THAT THESE MEDS WORK.....MUCH LOVE...HELEN. I DON'T HINK THAT THIS IS WHAT YOU WERE ASKING FOOR MICKI,BUT I KNOW THAT YOU LOVE ME ENOUGH TO OVERLOOK MY CRAZY SIDE.....

Oh Helen I could never over look your crazy side..that is the side I love the best!!

micki, the thing that I hate is the days when I am in fiber fog and tired to death those are days that keep me in bed all day with not even enough scents to find bathroom. those days do not hapen too often[thank god] but when do I feel like I am living but dead the pain is real bad but I can handle that better and I can also funtion little better. the exteme tiredness/with fog puts me down and out and sometimes used to come after intense overdo,like we all do when have a good day

micki, the thing that I hate is the days when I am in fiber fog and tired to death those are days that keep me in bed all day with not even enough scents to find bathroom. those days do not hapen too often[thank god] but when do I feel like I am living but dead the pain is real bad but I can handle that better and I can also funtion little better. the exteme tiredness/with fog puts me down and out and sometimes used to come after intense overdo,like we all do when have a good day

i think for me... fibro fog and just all around pain are tied... because i've been hurting alot lately especially cuz i just started dancing and i hurt like crap!!! but also the fibro fog is so hard... cuz im 13 and i have the memory of my 73 year old grandfather!!! i am CONSTANTLY embarrasing myself for not doing stuff because i forgot or just getting made fun of cuz i can never remember nething!! its so freaking frustrating!!

I think the most irritating symptom is my head feels really heavy or maybe my neck feels very weak im not sure. but basically i feel like i am trying to stand a bowling ball up on a limp noodle

Micki,
I guess the worst for me is when your body is so tired that u can't even make yourself get up from your chair and go to bed, and when my body gets that tired my mind is the same way. I wish someone would tell me what fibro fog is. Sorry, that I sound stupid but, I don't know what it is. I might go through it and not know it.
Thanks

My most disabling symptom has always been the brain fog and cognitive dysfunction which were also the symptoms I always sought treatment for and the reason it took years to get diagnosed.

I've read that there are subsets of fibro and I think this is one.

I've always had pain but never realized it went with the other problems.

Mine is many lol, IBS, the wicked sore feet, the pain in my neck and shoulders, lack of sleep.

The unrelenting, 24/7 pain. I have been in a constant state of pain for about 5 months now. Don't try to take away my pain medication, I might kill you. :)

I think for me it is the constant burning in my neck and shoulders, it is always there no matter what meds I take but it has various degrees of intensity as I am sure you have all experienced. it's amazing how much energy it takes out of you to hurt isn't it. wish everyone around us understood what we deal with on a day to day basis. i just thank God for this support group, you all have been a little sanity for me in my insane world. lol.

Great question! Mine would be the painful burn in my back, shoulders, neck. Second runner up would be that I walk around like Frankenstein because the muscles in my arms and legs are so stiff and painful that I cannot bend them while walking :)

Sometimes, small patches of my skin (the size of a softball, perhaps), will feel like they are being pressed against a hot stove burner for several minutes. This is far more severe than the usual pain.

Another bad part isn't necessarily painful, but disruptive and irritating. I can't sleep anymore. Maybe an hour or so a night, and every once in a while, very rarely, maybe once a month, I'll sleep for a whole day. But mostly, perhaps an hour of sleep a day.