Get off your ass and do something!!!

A friend of mine who is a nurse said, just go outside, take one of your dogs and just walk. Helllooooo it's February the wind chills are below zero and I don't have the strength to walk my dog, he would end up dragging me.....people just don't get it!

quit smoking cigarettes
get a job
stop thinking of yourself as a sick person
just get back into life

These are good ideas for life, but have nothing to do with my pain {or illness}.

So far my favs are"it can't be that bad" and " I know,I feel so bad today too"
If normal people only knew.

The exercise thing, I guess would be the stupidest thing for someone to say. If the person would take the time to learn about FMS, they would learn that although exercise is helpful, if you don't have the energy or strength to do it, it can't be helpful.
Another one is to "push yourself..." Yeah, sure, I'll do that....and then end up in bed for a week.
Ignorance drives me crazy. There is so much info available, and if those who love us would just read and learn for themselves, it would be much different.
Oh yeah, and one more: When I filed for SSD, I used my dad as a person who could verify my illness, etc. He lived right across the street at the time. He saw me quit work, lay on the couch or in bed for days at a time, have to have my son cook for me, quit driving the car....etc..... and when he received papers in the mail to fill out about how my illness has affected my life, he brought them over to me and said, "I'm not filling these out. You don't really think you are disabled, do you?"
Gotta love the stupid people.
Take Care of You

thanks guys for the replies i guess theres at least one in everyones life my mother in law said to me well i guess theres something wrong with you your always in the bed that is the nices thing she said after all these years of me being sick

I have a family member that keeps telling me if I would just get a shot of antibiotics I would be fine.

The psychiatrist I was seing for depression told me that I was " Being a bad wife, mother, neighbor and friend" because I had been unable to follow her advice about "getting active" She knew that I had been diagnosed with fibromyalgia.

I guess my favorite one gets repeated again and again...."Don't just go to doctors, PT, support groups, do something fun"....fun? okey dokey...

Book me for a trip around the world....ha

Yeah - I agree with the exercise one. If I try, then I am laid up worse for days on end. People just don't understand what our muscles do to us when we do exercise just a little. Since it has been said our muscles think they are doing low pact areobics 24/7 then add more to that and we litterally can hardly walk from room to room without feeling we need to sit or lay. Just because our outward appearance is normal, if only they could look inside us and see what's going on. I have tried to let my friends and relatives in on what is going on inside by sending links to the description and symptoms. Some it helps others shut it out. So we need to just shut them out and do what we find best for ourselves as individuals.

i agree to get toxic people out of our lives it is hard enough to be like this without them they only add to the problem by up setting us to the point we cry charlene

Hi, I'm new here but can totally relate. My husband likes to say, "Be happy...you are always depressed, you have so much to be happy for. You have to have faith".

I guess the one that BUGS me is "so and so has fibromyalgia and does just fine, why don't you?" hmmmmmmmmmm guess cause I am NOT so and so!!!!!!!!! And I read this one.... "I'm having muscle pains today from moving (insert heavy object here), so I know just how you feel." REALLY?????????

ive gotten the one that so and so has it too and can do things i mean do people really think i want to be in bed all day long everyday i know not everyone is this bad but this is where it has gone for me i shake inside and this makes me even weaker you would think that everyone that knew me before would know better as bad as i am everytime i get up for 10 min i do something in my house thanks for listening to me dump charlene

When I was working, it was obvious that I was ill and I had a male friend ask what I had. I told him fibromyalgia. He said "oh yeah,my sister has that. She's nuts" I was so shocked I walked away. I don' know if he ever put 2 and 2 together and realized that he offended me. I told him later to be nicer to his sister because she's going through alot. He seemed surprised but agreed that maybe he should be more supportive.