Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

Dear everyone: An internet survey is such sloppy, shoddy methodology that no legit study would do it, and if allowed, no legit publication would consider the results legit. If you spot any, report 'em as possible/probable abuse. This pandemic has had the critters crawling out from under rocks every which way, hasn't it? Online, in real life, ugh!
If you're in central Michigan, I hope to heaven you're okay andout of the way fo the flooding caused by two burst dams, about 140 miles north(ish) of Detroit.
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Mom's MRI showed no new growth... oh wait, it did. She couldnt' fit in th emachine. It's an older "open MRI" and doesn't have as much clearance as newer ones. Yes, she's gotten that large. I can't discuss it without ranting, so... When the hospital up in Maryland has an opening, we'll drive her there for her MRI. Or not. Even her doctors dont' try with her anymore. Why should I? At least she wore clean shirt and new trousers. Yay.
So I'm looking at my "I'm 50, and I have menopausal muffin belly" and freaking out, and the weird thing is, every attempt to exercise more has been thwarted the last six months ----- double whammy infection in winter, then a pandemic! Yay! ---
So, I have to go fibro slow. And we all know how frustrating FIbro Slow feels. (Like reverse, frankly.) Wlel, I could do high-intensity cardio right away, but then I'd be immobilized for a week from pain anyway!
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Now to the actual check-in, LOL.
THINGS MY GODKIDS SAY
(ages range 7 to 21)
"I flunked on purpose. I don't want to graduate without (girlfriend). I want to stay with her another year."
"I love Fortnite. I want to get rich playing Fortnite. Then I will have a mansion and never share Pepsi again."
"I miss hugging you, Aunt Leo. You have a mushy middle!" (Thanks, kid. Just... thanks...)
"Why should I listen to you? You're a GIRL." (My reply: "Yes, and you asked how to get a girl to like you.)
"My dad is horrible. He took away my car keys twice this week!" (My reply: "You don't have a driver's license. Good for him." Yeah, not speaking to me now. Oh well.)
"Why are old people so SLOW!" (Oh, kid, you just wait... I'm gonna live to be 90 just to see karma get that one...)
"I want to make a drink that tastes like bacon. But hot bacon. Not cold bacon. Cold bacon is disgusting."
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Anyway... I hope you are all having a good Wednesday. Happy hump day. Whatever. Just... hugs, purrs, and peace for us all!
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Another day, another ouchie?My bruised achilles tendon (don't ask) makes my foot numb. Wonky on meds, whacked it.Now, as to fibro:A lot of reports are going around some parts of social media that fibro (and dang near anything else) are caused by post-Covid, post-flu, post-vaccinations, post-pick-something.1. Your risk of death or serious complications beyond "ow, that shot hurt!" are typically...
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Today (August 8) is INternational Cat Day. Don't click away! International DOG day is August 26! Both were created to raise aweareness and funds for the well-being of critters. We have many such dayts, to the pint that every day is like an old Catholic saints' day calendar: Take your pick!I'm home, obvs, and still ill. Left calf and foot not great after a tangle-fall, but i'll live. Just can't...
I am drained. I crashed hard last night after being up 43 hours. I was out cold other than when my bladder would wake me up but i am still exhausted. We get the rest of dads test results today. i am going to go hide from life for a bit in a long hot shower.
Leo, I'm so sorry about your mom. I used to work in MRI and I know how disappointing it can be if you can't fit into the machine.
Angela, I hope you get some good news and good rest.
The plumbers come today. They got all the walls down and the flooring up. The electrician is supposed to be here tomorrow or Friday. So far, so good! We're staying on schedule which is a good thing. They managed to keep the dust down pretty well, so it's not too messy yet. The cleaning lady is coming by on Monday so we'll get all the stuff we've tracked around taken care of.
Hoping everyone has a good day!
Angela-I'm glad you finally got some sleep . I have no doubt you're still exhausted, you probably still have tons of sleep to catch up on. Fingers crossed that his results are good (non aggressive, treatable). Hugs
Well this has already taken an hour. The phone thankfully isn't too crazy but we're fully booked this morning and it has been a day full of caution cats. First one needed anesthesia to touch her-usually we schedule extra time for that but she didn't have an alert in her file, next 2 were handleable but we had to be very careful while still getting everything done before they totally lost patience. One of those we were shocked we were able to get blood awake, it was one of those "let's give it one shot and immediately abort if she flips out" because we weren't sure if anesthesia would be safe. So it's been interesting. Thankfully the dr is behaving himself so far. Hopefully from this point the phone won't be so crazy, I need a break from it. Yesterday was really busy and we noticed significantly fewer people in NH are wearing masks or listening to our protocol when we make/confirm appointments compared to last week. It's like people think that since things are starting to open the threat is gone. They have barely been testing anyone so no way to know for sure if infections are truly decreasing, but either way this is definitely not over. I have to run some errands tomorrow so I guess I'll see how much of a cluster everything is firsthand. On the bright side, my new mask I ordered came in. I wanted at least one spare since this is probably going to be a long road, and it's adorable-mint green with little evergreen trees and woodland critters. But now I really need to go because I think it's been another hour, I'm sorry if I missed a ton of people.
Leo, sorry about mom having gotten so big. I still fit in the MRI machine , but it’s a tad snug. I have gained a lot of weight over the past 3 years. Bummer your mom doesn’t listen on her food intake. Hope you can get her MRI done somewhere. I’m sure your tummy is not squishy, by the way. :0)
Angela, I pray you dad’s tests aren’t so bad. This is such a strain on you. God bless.
Pained, I enjoy hearing about your new kitchen. So fun. I’m sure you will love it.
I got my X-ray results back. They still saw the DDD, but the doctor wants me to have rehab. So I guess I will do that, knowing I’ll be in more pain. But I have to prove that to my doctor and go through it. But what else can he try. I don’t need surgery. At least I don’t think so. I’ve never had a back MRI. Ugh. So sick of this. Anyway, the dr has put me on a stronger muscle relaxer that they give to MS patients. I looked it up. I hope that works. Hubby will bring my new med home later today.
That’s about it for today. Take care, everyone.
Leo, I don't do MRI machines (not the tube ones at least) anymore. It's the uprights or knock me out. One or the other. Heck even the masks are triggering my claustrophobia when I go out. I start to hyperventilate and pull them away from my face, which, makes it all redundant. Yet, I continue to wear them. I'm considering starting to shop during the hours designated for those at risk because of it all.
I hope your Mom's MRI comes back with stable news. It's too bad they put her through them if there isn't much they can do for her anyways. Or are meds helping?
And yes, the smaller the box, the bigger the cat butt must fit! (I swear that is Pudge's life motto).
Angela, I'm so sorry to hear about your Dad's cancer. I too am hoping it's a treatable kind. When will you find out what stage he's at and what kind of cancer? Is that all today??
Pained, I am about to join your work with juggling contractors. We bout a big pool, that will have a deep end. I need a pool contractor, a plumber and an electrician to run gas lines and electricity out to where we want the pool. In addition to that I need another guy to build a deck area for it. This all happened yesterday. Oiy!
So happy to hear that your project is going so well!
Miki, ugh, it sounds like today is a Monday with how things are going. Glad you get tomorrow off. We too ordered new masks. I'm still beside myself that everyone needs to wear them. Its all too surreal for me still.
Ida, I'm glad your doctor is trying something stronger for you. And I do hope the rehab helps for some. The PT, and OT telehealth services we have for the boys wear me out. Because what the kids do, I have to do. And I've been in a flare that I keep pushing through for the past week. I'm afraid to just stop and rest fearing the repercussions of ignoring all of this.
And then my darling hubby says to me this morning...well, if you need a day off to rest.....I immediately burst into laughter. I reminded him if I crash, it's going to be for days/weeks not just a day to recoup.
He sometimes forgets about my fibro.
So the other day was Danno's Birthday, I ran around trying to make it all good for him and it was. That kid was smiling from the moment he woke up to the moment he feel asleep in my arms as we snuggled that night. He may be becoming a young man, but to me, he will always be my baby.
And then as I shared above. We bought a pool yesterday. 28ft round, above ground with a recessed deep end / zone. That can expand to 7ft deep. We might stick to 5 or 6. Not sure yet.
So now comes the contractor juggling bit.
And if that wasn't enough, we are finishing up going through our boxes o' crappo from the past 16yrs of our lives together. We have eliminated so very much and all the stuff I ordered to create a therapy room is arriving this week. The floor mats come today. The scooter board is amazing, it as oversized race wheels on castors and that puppy flies. (Hence the reason for the mats, LOL)
I best be going. That basement isn't finishing itself. Mr Hubster is down there working from his second desk/office set up. He likes the view out the basement windows (Ground view of the pond). And well it's his bat cave.
Hoping for good news for your Dad, Angela, get some rest if you can. Its an exhausting journey.
Wishing everyone else a good rest of your day too.
Wonder, I'm very excited for you guys. The boys will have a blast this summer with the pool. I don't like the face mask, but thankfully it doesn't set me off. My mom is claustrophobic so I do understand how hard it is. I kind of get that way with winter coats, which is crazy because I'm freezing all of the time and must wear it. LOL.
Leo, I'm sorry your mom has to possibly go through another MRI. I"m sorry I know how incredibly hard this is for you. I wish you could have your old mother back too.
Angela, I"m praying for you. It's hard running on fumes and you need a mental break. Hugs
Pained, It sounds like things are going perfect so far. Yay! I wish we could see before and after pics.
Miki, I think everyone is being way to careless now that things are opening back up. I agree things should open, but it's sad that people are too stupid to be cautious on their own and that our government has to make them. Be careful out there.
ida, I'm so sorry your pain is so bad and all that they recommend is rehab. In my experience, the pain never gets easier with fibro. My neck and back pain only gets worse and I"m active and try to strengthen them, stretch, and so on. It never gets easier or loose feeling. It really is frustrating. I wish you the best of luck.
Overall I'm feeling down and like I will never belong anywhere. I'm so sick of pain and disabilities. I just want to be a great mother and that's it. However, I feel like a failure with this pain and exhaustion.
Mrs. Leo, I understand entirely about the menopause muffin top. I have gained since the hysterectomy and I mean substantially. I am trying to get in with the endocrinologist but COVID is not helping. Exercise is meant to feel invigorating which is hard to do when you feel like a turtle moving through peanut butter. You will get there though. You are one of the most determined women I know.
Angela I hope the hot shower helped some. 43 hours awake is torture and you deserve some rest.
Pained I'm glad to hear the reno is coming along nicely and you are able to get some relief from the dust on Monday when the cleaning lady comes.
Ida I am very glad that the doctor at least gave you an increased muscle relaxer. I am sorry though that you are having to go to PT just to prove it hurts. I really do wish we were taken more seriously in that department.
Wonder you truly are a wonder mom. All of the things you do for those boys is such a blessing to them. The pool sounds great, I didn't even know they made ones now with recessed areas in them!
Sending hugs and sun tea to Fantod, Twin, Leo, Wonder, Miki, Ida, Pained and our entire wonderful group.