Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Well, Hurricane Florence took a left turn, apparently. Actually, she slowed, hwich changed what weather patterns on th econtinent would affect her path, and now... Look out Carolinas and Georgia, but Virginia will only catch a *little* rain. Like, a little little. Like pfft. Like whatever. Like *yawn*.
Here's the NOAA maps as of this morning. Veryd iff from 12 hours ago even. https://www.nhc.noaa.gov/refresh/graphics_at1+shtml/085212.shtml?key_messages#contents
That said, of course, 1. stay prepared and 2. things change. If you're anywhere near North Carolina, eyes on the weather, and if you're anywhere from the Adirondacks to Atlanta, Georgia (as I said before), watch the rainfall and wind forecasts. Looks now like Flo will fizzle out right around northern Georgia-ish. Glad this time of year is when people aren't on the Appalachian Trail, but damn. Gonna be a bad time to vacay in teh Great Smokies.
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Now, that said, I could still "vanish" b/c the rain around here is just ridiculous. Every day. So we're one gusty storm from having trees fall over b/c the ground's so wet. Oh yay.
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And because I was supervised by critters yesterday... Heroic pet animals! Cheers, all
https://www.cheatsheet.com/culture/heroic-pets-saved-peoples-lives.html/
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Welcome to the Perseid meteor showers, the "biggies" usually every year. (The Leonids beat 'em one year IMHO).AND today much of the northern hemisphere will see 5 to 99% solar eclipse. How cool is that? Your best bet is to be in the UK or norhtern Spain, where totality is excellent before sundown. Me, I'll get a super duper tiny itty bitty slice of it, so little that it won't be noticeable. New...
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... observed a solar eclipse.
My stress level is through the roof today. It's still raining, I'm flaring and my depression is still bad (I have no good memories to focus on from that event, my mom cut me off from the 2 friends I talked to so I had no support system even). Then for whatever reason it took me 2 hours to get to work this morning. My coworker still isn't here over an hour later. I'm so tense I have to remind myself to breathe and unclench my teeth, and my jaw hurts like crazy. All I want is sleep. And chocolate. And to not have to talk to people. Part of the problem is I'm nearing the end of marathon training and I always feel overextended when I run this much, but that'll improve soon. I need to be better about taking care of myself and not staying up late, now that I don't have anything coming up (like the concert or wedding) that should be easier...I just need to make it through the next couple weeks
CHOCOLATE! ahoy!
Miki, I hope your day at work goes fast and you can rest at home. Sorry you feel so bad.
I have a migraine and had to cancel my doctors appointment for my knee injection. My head is throbbing.
I’ll try and come back later.
I'm going to the food truck rally tonight just to get out of here for a while.
Miki - I'm sorry that you are so tense today. I hope that your coworker has finally arrived.
Ida - I wish that you did not have a migraine. I hope it goes away quickly.
Twin - I did some quick reading on scleroderma and GI issues last night. As far as I can tell, that is exactly what has been causing your heartburn and everything else. Your rheumy needs several slaps upside the head for totally dropping the ball. Thank goodness that the infectious disease specialist is a smart cookie. You should ask her for the name of a scleroderma specialist because you will probably need one going forward.
Its another beautiful day here in the neighborhood. Shout out to Bear, Pam, Shakota, Autumn and Susan. I will check back later.
My pain is thru the roof, PT pushed me way too far again yesterday ugh.............. I hate how she does that too me! i am relieved that it showed no cancer, my moms sister was a year older than me and died of ovarian cancer. My moods all over today. But day 6 no migraines!!!!!!!!!!
Ida, gentle migraine healing to you.
Fan, loved Moaning Myrtle ref.
Big hgus and purring hugs to everyone! :-) Stay safe,
Leo I hope you don't get so much rain that the trees decide to lay down and take a nap. I am glad you are ready for whatever comes.
Miki depression is the worst. I hope your day goes by quickly and you are able to rest. Please know this too will pass but in the meantime we are here for you.
Ida I am praying your migraine passes quickly.
Fantod I am wishing you a quiet day. I hope your hubby feels better soon.
Angela I am glad you have answers but sad that you are dealing with so much. At least now you can get the right treatments.
It is going to be another rainy day. I am loving the rain. I am going to do small chores around the house today. I seem to have absolutely no energy. Have been treating my iron, vitamin d and others for weeks now but nothing. I don't feel any better than when we started treatment. I guess this is my new norm?
Hi to Blue I hope you are safe. Twins, and all who follow.
I looked at Flo last night on windy .com that's one scary storm. Carolinas, please take the storm seriously. My prayers are with you. Leo, I hope you guys aren't affected hardly at all. It's a good thing you're prepped though, because you never know when they feel like changing route.
Tropical storm Olivia is right on us. It's a bit gusty and rainy right now, but we still have power and..... (drum roll).... I SPLEPT!! Strange while a tropical storm is beating on us, but I couldn't sleep during the quite before the storm. Pffttt! All schools, county workers and the VA are closed today so hubby is off. THANK GOD - no heart attack alarm at zero dark thirty!
Miki, sending peace and comfort your way.
Ida, go away migraine!
Fantod, I hope the chiro straightens his back out so he can get off the couch and on with life. Also so you can sleep again. Has he tried acupuncture too? I would throw the whole bucket at him at this point.
Angela, so glad they got to the bottom of your issues. I agree with Leo, they should back off and take it really slow if you have that much pain.
Autumn, did the doctor say how long it takes before results? I'm sorry you still feel like crap. Just give yourself time, we have bad years and good years with this illness. Hang in there and keep plugging away at symptoms like you're doing.
Miki ... I certainly admire your marathon training ambitions and hope that the physical stress subsides. Sounds like you may be doing too much but I guess you know that already.
idajoy ... So sorry about the migraine hope it's gone by now.
Fantod ... Silence so good for the soul; wish I didn't have such an aversion to it.
AngelaJo ... Sorry to read of your diagnoses. I'm not familiar with those two illnesses but would be happy to learn more.
Autumn Song ... I love rainy days two and we've been having a lot of them in Pennsylvania, at least where I am, which is Delaware County.
BlueSky ... That quiet before the storm is probably charged with wild electrons or something.
I'm good today. Still feeling myself up though about not doing enough, not getting enough exercise. I've always hated exercise and I’ve always forced myself to do it. Now that I'm 73, I still do exercise but a gentle amount that does not involve forcing. Have a slight weakness, stiffness in my right hand and fingers which I will show to the nurse practitioner when I go next week. I have traces of sciatica when I first get up but it goes away quickly. I sleep on my same old mattress but have put it on the floor now which is a great improvement for me in terms of joint pain.
Leo, I hope you don't get hit, but I also hope nobody would get hit by this storm and I know that's not going to happen. I will continue praying for everyone in the storms path.
Autumn, I'm with you on the low and NO energy. MY thyroid med and supplement aren't helping me at all either. I hope you find little things to enjoy today. Blessings on your day.
Miki, I can see how preparing for a marathon can leave you feeling overextended, you have a hard job too for someone with chronic pain, then you run. I would never walk again when I left work if I was in your shoes. You are truly amazing and do so much, remember that and take time for yourself. Hugs
ida, I'm so sorry, I have a bad sinus/tension headache and I'm praying it stays that way. I hope you get over the migraine soon. Good idea on rescheduling the knee appointment.
Angela, I'm so happy no cancer, but boomer on the rest. I'm sorry you have endometriosis and adenomyosis, the later I need to look up not sure what that is. I hope they can treat you for it and you will get some relief.
I find out my labs on Sept 21st. I hope they find something helpful . :-)
Fantod, yay some peace and quiet. I'm the same way with the TV and music in my house. I feel like something is always blaring.
enaid, I say you're doing good if you are trying and just moving your body. It doesn't have to be hard work to count. Hugs
Moaning Myrtle - super funny.
Monday -oven guy came - parts too expensive , makes more sense to get a new oven,
Tuesday - dishwasher guy came , easy fix , just paid for service call
Wednesday - different company came re replacing water heater, I couldnt continue on with previous company - their customer service sucks and they dont deserve my business and I feel less stressed knowing I dont have to deal with them ever again . Yay !!!!!!!!! But BOOOOOOOO , still need new water heater $$$$$$$$$$$$$
Thursday no fix it people coming to my house -YAY, I am so thrilled not to have my space invaded by a stranger.
Friday - going to go pick out a new oven/stove
Next week I will hopefully have my new oven/stove and water heater installed and be done with this nonsense. I have been having streak of things
breaking/not working right and I am sick of it and $$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$
Twin - what did the new Dr have to say about the candida ? Infectious Disease Drs I have met in my past life as a nurse were brilliant , at least years ago in my area. Scleroderma , I wonder what kind of Dr treats that?
Have a good evening everyone . Good sleep and low pain levels wishes to all.
I've had a rheumatologist diagnose me with fibro saying it's because of your drop in estrogen. He was convinced of it. But a nice guy, just not good science, or any science for that matter.
Back in 2000, I've had a rheumatologist who trained at Johns Hopkins when they did the tender point research (she was part of that team) tell me that because of a high ANA (which happens to normals) and a few minor and exaggerated (to me) signs, I had an autoimmune disorder (but all labs were negative) and she put me on Plaquenil and of course, that didn't do a thing for pain-fatigue so she wanted me on methotrexate, a cancer drug. I said, no, just fill out the disability form (she was good at that).
A fill in nurse practitioner gave me an RX for amyltriptalline (can't begin to spell that but I think it's Elavil) a tricyclic that turned out to be quite useful except for the side effects. This all was years ago, the NP and MDs. A license doesn't mean uniform quality of practitioner, by any means.
The main thing though is to get diagnosed. And treated.
I have more energy than usual. A back to fall, mammalian, get the food in storage quickly response to the waning light? Or because of sleeping more? Dunno.
Do regular over the counter TENs units work well or is that Quell device the best?
Hope y'all are prepared for the rest of the coming week. Take care, take shelter.