Yeh i have chronic vitimin d deficency. I take 2200 iu a day in fultium d3 tablets. Its very slowly going up. Its taken 11 months to get to a reasonable level but still not as high as they would like. I get terrible pain if it even starts to drop again. Thing is i dont get out side cos of fibro pain but then i miss the sun.

I wonder what damage its done. I was on tablets when i was 22 then moved and came off them for 3 yrs. ive now been on them the last 11 months. I just hope i have no bone damage/weakness. I did break my wrist before when i was deficent badly.

Deficency can certainly cause alot of pain, fatigue, headaches ect. Making fibro worse.

Glad u have discovered it so u can try raise your levels. I am feeling alot better since going bk on tablets. Still got fibro though.

When I was severely deficient I was in a lot more pain. I took a very strong pill once a week for 6 months and it helped a lot.

Wow. Maybe finally something will help me. I had no idea. At this point I have so many problems including an eye thing that is running wild. I'm trying to get in to see a new eye doctor.

But your responses, Time and BBMom, at least tell me that maybe something can be alleviated. At this point anything that helps even a little is welcome.THANK YOU.

Here in uk you can get either prescribed tablets or injections. Hope ur dr can help with either one u need. Good luck.

Hi there. About a week ago I received my latest pathology results revealing a vit D deficiency. It's not severely low but I have been given tablets to take. My doctor told me that a deficiency can cause weakness. However I have been tested for this several times over the years and my levels were fine, and my fatigue remained. I hope you do actually feel some improvement in your energy levels from increasing your vit D . I have been given 50000 IU capsules to be taken once a week. I had actually forgotten to take it until I read your journal just now. Hope it's fine to comment here when I don't belong to this group. Hey Wolfgang this might be some really good news for you. Especially if your deficiency is quite severe. There just might be a new more energetic you about to happen. Hugs

It is very common for people with Fibromyalgia to have a Vitamin D deficiency. It can contribute to wide spread pain.
I am deficient and have to take a supplement every day. Mine fluctuates and has to be checked regularly. Take care.

I also suffer vitamin D deficiency and it has been a battle. I take 3000 IU a day but my numbers are still way low. It causes muscle pain and can even cause muscle loss. I have lost almost half the muscle in my body over 30 years. I exercise and lift light weights but nothing has helped. I hope that taking a supplement helps you. It is also often seen in chronic fatigue syndrome. I just feel very weak all the time.

I don't think it is a matter of avoiding the sun either. I'm outside a lot swimming, gardening and wandering around my yard. For some reason, people with Fibromyalgia tend to be prone to issues with Vitamin D. Take care.

I take 5000ui a day, I get a big bottle for $10 at the big box store.

We're jsut Vit-D difficult, for some reason. Me, it's my epilepsy med. We can't change that, so I take the supps and do sunshine. Sun works more for me, but my meds are weird, so I've got a unique situation. I say go for it like Jon does. Big bottle, cheap-o, and battle on!

Oh my doctor told me that vit D doesn't absorb without calcium. I drink a small juice glass size of milk when I take it.

Yes, it's very common for people with fibromyalgia to have a vitamin d deficiency. When I was first diagnosed with fibromyalgia I was very deficient, and at that time I had a terrible deep, bone aching pain. It felt ias if a giant was squeezing my bones. It took a year to get my vitamin d to optimum levels. Optimum levels are between 60-80 mgs. There are what's considered normal levels (20 mgs or higher), but researchers have found optimum levels to be between 60-80 mgs. In the beginning of my illness I was taking 20,000 ius a day. I now take 10,000 ius a day under doctor's supervision. My blood levels are drawn every 4 months to ensure that I'm not getting too much vitamin d3. Vitamin d can build up in the blood and too much can become toxic, so doctor's supervision is needed for very high doses. I take a brand of vitamin d3 suspended in olive oil by nutrigold. The olive oil gives better absorption. Also, calcium and vitamin K help with its absorption.

Wow. So much great info. All of you know more about this than my doctor does.
Thank you all so much.

It is pretty much standard protocol for doctors to test patients with Fibromyalgia for a Vitamin D deficiency - just saying....