Welcome to the group! What you describe is not IMHO a symptom of Fibromyalgia. Fibromyalgia is a disorder of the central nervous system that causes widespread chronic pain.

Chiblains or erythromelalgia both come to mind with your description. The latter being closer to what you described but it is pretty rare. You need to get in to see your rheumy and if they don't have an answer, try someone else. Often, university based hospitals are better for a diagnosis if something doesn't fit mainstream medicine. Good luck to you and take care.

Thank you Fantod, my doctor said possibly Fibro or Erythromelalgia, I used to get chillblains when I was younger but they would only last a few days in the cold seasons and then go, but now they get so painful I can't walk or do anything, and I have ended up in A&E a few times with it because I am in so much pain. I am going to phone my Rheumy next week and get my appointment moved forward.
Thank you for your help and advice!

The symptoms you describe on your feet don't sound familiar. But Fantod is very smart and experienced, so I'd say any advice given by her is probably good advice.

Quite a lot of Fibro people have other diagnoses going on as well. Whenever possible, push for the most exhaustive diagnostic list, since there are a lot of Fibro symptoms that overlap with other ailments as well. Until they come up with a more conclusive test, Fibro is a diagnosis made by elimination, and you also don't want them to miss out on something additional (and possibly manageable) that's also going on. It doesn't necessarily have to be either/or on the medical problems, but multiple things at play.

It's not a fun process to be in. Best of luck and welcome to the board.

Hi Sonyacon, I have had every other test possible and all is coming back clear which doesn't explain my constant aches and pains all over, I have also lost a lot of weight which is also being looked into and again all coming back clear, so my doctor thinks maybe fibro but I wanted to know if there is something else going on causing the problems in my feet or whether that could be linked to fibro, but now I have had you both say it doesn't sound linked to that I will push for the other tests too.
Thanks for your advice

It is very common for people with Fibromyalgia to have multiple underlying health issues. If you have constant widespread pain and have been thoroughly tested than Fibromyalgia is probably part of your health issues. It is a diagnosis of exclusion. When every other possible thing that could cause chronic pain is ruled out Fibromyalgia is the culprit. It is *not* a waste basket diagnosis. Fibromyalgia is recognized by the Centers for Disease Control, the National Arthritis Foundation and the World Health Organization. It also has it's own diagnostic code making it a valid medical issue/disease.

Our go-to book on this website is "Fibromyalgia for Dummies." You can purchase it on Amazon. It is a great book for a comprehensive overview of this complex illness. We also recommend it as an educational tool for friends and family. Ocasionally, we also use it to beat idiot doctors who don't know what they are talking about over the head.

See if you can get into the rheumy sooner and get some of your symptoms sorted out. You are not alone! Take care.

Ditto all of the above, and I used to have that problem as a child.... from my *shoes*. Changed the material of the shoes, feet felt better.
(And I'm another one who advocates smacking docs upside the head with Fibro For Dummies, btw. Sometimes just showing it to a doc and saying, "You needt his?" makes the point!)

NEVER assume it's always fibro, okay? We can have a cold *and* have a broken leg, right? So we can have fibro and other things. We once had a member, many many years ago, who insisted it was "only her fibro". By the time docs were notified of her troubles, it was too late to save her life. The oldest-timers of us do *not* forget that ever.

Start with your GP, btw, b/c sometimes it's a fungus, or a dye in the leather/vinyl of which your shoes are made, take your pick. Heck, my mom ran into trouble b/c she developed a latex allergy and found out b/c it was in the stethoscope she used at work as a nurse. So much for her mystery rash, y'know? Sooo.... rule out and look for what is exposed to your feet and vice versa, okay?

Luck and healing blessing.

BTW - Chilblains and lupus *can* be associated. And yes, it is possible to have both Lupus and Fibromyalgia.

Leo makes a good point about footwear. Make yourself a chart and start tracking what seems to set things off. That will also be a good diagnostic tool for your doctor/s too. You have to be your own best advocate to get this figured out. If you are not getting answers and the doctor is not working with you in a collaborative manner, fire them (yes, we do this too) and move on.
It is very important to be well educated on what ails you. Sometimes, it is our best defense when it comes to dealing with the medical profession. Cheers!

Thank you Fantod for the info and book advice, will look into that :)
I have tried all sorts of different footwear but still have the same issues, nothing seems to settle it down, I could be sitting indoors and all of a sudden my feet flare up and I am in so much pain when I haven't done any different, the doctors can't seem to work out what it is that causes it, as chilblains and raynauds are usually caused by a difference in temperature so going from cold to hot too quickly etc as I am sure you know already, but mine can flare for no reason. I have tried all the advice they have given and nothing works.
I will do the diary keeping of when they flare up what I have been doing etc to keep track, I also have numerous photos of my feet to prove to them how bad they get.
Thank you Leo also for your advice, unfortunately the Doctors have tested everything and they then sent me to my Rheumy and they in turn have passed it off as raynauds but I am after a 2nd opinion and have pushed my an earlier appointment as the next one they have given me is August 2017! I don't match raynauds symptoms and my partner and friend suffer from raynauds and never get the amount of pain that I do or the severe reactions either.

Thanks again for all the advise and help, it's been a big help