Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hi there fibrofriends ; )
I've started seeing a new doc as my pcp deciced not to treat me for fm or cfids anymore - I've been off all pain meds for 2 months now - ouuuuch.
Docs here in Hawaii seem to be strongly opposed to using opioids for chronic pain - could be because we have a big drug addiction problem in the islands - wrong drugs but oph well...
Anyway - I like the doc - his practice uses a multidisciplinary approach - accupucture, massage, pt, chiro, naturopathic, local traditional merdicine, eastern and western approaches. So the do agrgeed that my med regimine from my docs in california before I moved were very good - but that he wanted to up my cymbalta dose to 90 mg (that was my does before my Hawaiian pcp lowered it! - HA!) and he suggested neurontin or lyrica - I told him I'd taken neurontin succesfully 8 years back for 4 yeayears for nearve pain and was prescribed it again 2 years ago - but with no positve result - and both times i was sluggish and gained weight. So he prescribed Topomax. (another anticonvulsive, also used for migraines - and off schedule for weightloss, depression & pain management) I'm starting at 45 mg twice a day and doubling that each week til I reach the optimal dose somewhere between 100 and 400 mg.
Anyone have any experience with Topomax with Firomyalgia? (I understand it is used with cymbalta, welbutrin and advair or clairatind and lots of water anf fiber...)
thanks for any input!
Oh - tho' I had hoped forfor more immediate pain relief ( vicodin used carefully worked well)I will try this. And he did give me Lidocaine patches which I am using on my back where I used to gettrigger point injections long ago... so far they are a bit helpful.
wishing you all painfree energy filled days and deep sleepy nights
Elaine
I've started seeing a new doc as my pcp deciced not to treat me for fm or cfids anymore - I've been off all pain meds for 2 months now - ouuuuch.
Docs here in Hawaii seem to be strongly opposed to using opioids for chronic pain - could be because we have a big drug addiction problem in the islands - wrong drugs but oph well...
Anyway - I like the doc - his practice uses a multidisciplinary approach - accupucture, massage, pt, chiro, naturopathic, local traditional merdicine, eastern and western approaches. So the do agrgeed that my med regimine from my docs in california before I moved were very good - but that he wanted to up my cymbalta dose to 90 mg (that was my does before my Hawaiian pcp lowered it! - HA!) and he suggested neurontin or lyrica - I told him I'd taken neurontin succesfully 8 years back for 4 yeayears for nearve pain and was prescribed it again 2 years ago - but with no positve result - and both times i was sluggish and gained weight. So he prescribed Topomax. (another anticonvulsive, also used for migraines - and off schedule for weightloss, depression & pain management) I'm starting at 45 mg twice a day and doubling that each week til I reach the optimal dose somewhere between 100 and 400 mg.
Anyone have any experience with Topomax with Firomyalgia? (I understand it is used with cymbalta, welbutrin and advair or clairatind and lots of water anf fiber...)
thanks for any input!
Oh - tho' I had hoped forfor more immediate pain relief ( vicodin used carefully worked well)I will try this. And he did give me Lidocaine patches which I am using on my back where I used to gettrigger point injections long ago... so far they are a bit helpful.
wishing you all painfree energy filled days and deep sleepy nights
Elaine
Hate to tell her though, I haven't had or taken any in awhile and I am still having headaches. So why not just let me have it...lol It gives me a little more energy, I wasn't addicated to it I was addicated to having No Pain.....lol
I hope you find something to work.