Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Muscles & Bones
/ Fibromyalgia Support Group

Too damn young to feel so old!!

maysa25
maysa25
Alright, I have been a member for quite some time but never really poured me heart out about how miserable I have been. Being 26, I expected to be carefree, have amazing sex with my husband, travel the world, and have babies---- sound like anyone else? So what's the reality? I think I am still in denial aboutthe disease myself; like do I really need to be this lazy today or am I looking for an excuse to get out of exercising? The sad part is, I take care of patients like me and bend over backward to be their advocate to get the best care, yet here I am feeling alone and pathetic that I dont even have the same advocacy for myself. I get so mad at my husband when he wants to take a day "to rest" because I would do anything to have his energy and ability to function normally- I battle a lot of resentment and jealousy to others. I shouldn't feel 80 yrs old in this body. I have begun to sympathize with self-medicators of drugs and alcohol for relief- and it shames me to say that I have drunk myself into a stupor in hopes of quality sleep. I am so down right now, I feel the thoughts in my mind of "at least if I had terminal cancer people would take me seriously and maybe I could have a true reason to the suffering- because I would be dying." who thinks that?!? I have questioned faith in god over and over because I am trying to figure out the message I am supposed to be hearing. I am sick of wasting money I tests and suffering heart ache repeatedly. I don't want to end up on disability and become helpless and obese- I have become obsessed with gaining weight and calorie restriction. It even feels like doctors don't have time to take a Patient like me seriously, and I am a nurse- that's the irony in all this. I just keep thinking to myself- if I feel this terrible now- what's 20 years from now like and how could I possibly have children- or how could I possibly make a child that could suffer the way I do?! Please help!!
moonbeams
moonbeams
All I can say is you're not alone. I'm 30 and have been this way for 15 years. Sending you love and support!
deleted_user
deleted_user
I had to have neck surgery when I was 28. It resulted in the two discs beneath it in my neck herniating. I now, at 44, have full blown fibro. Have for years. I know how bad it can be. Like your life is being siphoned away by pain and weakness. I understand. I know it is frustrating. It seems that those of us who have this are cursed. But I know that it will not be like this every day and I live for those moments. I am on a medication that is helping me quite a bit also. I wish you the best
deleted_user
deleted_user
I am 24, and you are not alone. I have questioned this world and God repeatedly. I also battle resentment and jealousy of others and want to slap them upside the head when they are complaining about stupid things that I would just be happy to be able to do. Its hard and though I am recently diagnosed- I have been fighting FM for over 10 years. You need to find a doctor that is right for you- that is probably the number one thing that has helped me. Granted, it took me over 10 years to find one but I finally did and it was just a fluke that I did find them. Sometimes signs are giving to us to push us in the right direction- you just have to listen. I am a little different- I already have my daughter- but I learned early on you cannot wonder about what ifs. I sometimes wonder if I caused or the diseased caused her problems but it doesnt matter. She is in my life and the only reason that I keep going day in and day out. I am sorry that you are having so much trouble right now- but take light in that you have this amazing group to talk to at least and we all know at least a little of what you are going through.
xobliquityx
xobliquityx
I'm 21 feeling like a 70 year old.. definitely sucks.
deleted_user
deleted_user
This is on my mind a lot these days. I'm 43 and can't keep up with my 70 year old mother. It's a huge blow to my self-esteem and I'm constantly comparing myself to everyone else and feeling that I fall short. I'm limited in how much I can do and I absolutely HATE that. I hate being so tired and sore and in pain. I don't know what the answer is. I'm working harder at accepting the fact that it's not my fault that my body is this way, but I still blame myself. And about babiesI had planned to have one a few years ago but guess what? With my age now and the pain I'm in, I just don't think I can do it. Another dream out the window.
ZenEm
ZenEm
I hear you. I'm 41, about to turn 42. I feel like I'm 72, and I can say that because my mum who *is* 72 has MS and we have conversations where we complain about *exactly* the same pains... which come to think of it is a little scary but I refuse to entertain the notion of MS just yet.
I, too, wonder what message I'm supposed to be getting out of all this. Surely there's a reason. And if there's not, well heck...
Yeah, 20 years from now at the moment doesn't bear thinking about for me.
I really, really understand the way you feel, you're not alone. People here on DS understand and certainly take you seriously. If your doctors are not listening or taking you seriously then try to shop around, if you can. There are some good doctors out there.
Sending gentle *hugs*.
ZenEm
ZenEm
I hear you. I'm 41, about to turn 42. I feel like I'm 72, and I can say that because my mum who *is* 72 has MS and we have conversations where we complain about *exactly* the same pains... which come to think of it is a little scary but I refuse to entertain the notion of MS just yet.
I, too, wonder what message I'm supposed to be getting out of all this. Surely there's a reason. And if there's not, well heck...
Yeah, 20 years from now at the moment doesn't bear thinking about for me.
I really, really understand the way you feel, you're not alone. People here on DS understand and certainly take you seriously. If your doctors are not listening or taking you seriously then try to shop around, if you can. There are some good doctors out there.
Sending gentle *hugs*.
ZenEm
ZenEm
I hear you. I'm 41, about to turn 42. I feel like I'm 72, and I can say that because my mum who *is* 72 has MS and we have conversations where we complain about *exactly* the same pains... which come to think of it is a little scary but I refuse to entertain the notion of MS just yet.
I, too, wonder what message I'm supposed to be getting out of all this. Surely there's a reason. And if there's not, well heck...
Yeah, 20 years from now at the moment doesn't bear thinking about for me.
I really, really understand the way you feel, you're not alone. People here on DS understand and certainly take you seriously. If your doctors are not listening or taking you seriously then try to shop around, if you can. There are some good doctors out there.
Sending gentle *hugs*.
ZenEm
ZenEm
I hear you. I'm 41, about to turn 42. I feel like I'm 72, and I can say that because my mum who *is* 72 has MS and we have conversations where we complain about *exactly* the same pains... which come to think of it is a little scary but I refuse to entertain the notion of MS just yet.
I, too, wonder what message I'm supposed to be getting out of all this. Surely there's a reason. And if there's not, well heck...
Yeah, 20 years from now at the moment doesn't bear thinking about for me.
I really, really understand the way you feel, you're not alone. People here on DS understand and certainly take you seriously. If your doctors are not listening or taking you seriously then try to shop around, if you can. There are some good doctors out there.
Sending gentle *hugs*.
Judy-Anderson
Judy-Anderson
Yes, I was in my twentys when i got this, thing called fibro. yuck. I guess I didn't want to believe it myself so I wouldn't tell any one really ... it kind of imbarassed me because it was something they don't know much about, what it is and WHY ! Now I am 48. I am having another bout of this stuff and was being miserable. The DR. gave me some neuron tin and it is starting to help. Along with muscle relaxers, and stuff for pain. Finally getting some relief. I Thank the Lord for this! I know he loves me and will never leave me. He is my rock. He never promised me heaven on earth. When I leave here, and I see him in heaven there will be no pain. That is what keeps me going for him...I hope that your pain is relieved soon. I know its a hard road.
Judy-Anderson
Judy-Anderson
Yes, I was in my twentys when i got this, thing called fibro. yuck. I guess I didn't want to believe it myself so I wouldn't tell any one really ... it kind of imbarassed me because it was something they don't know much about, what it is and WHY ! Now I am 48. I am having another bout of this stuff and was being miserable. The DR. gave me some neuron tin and it is starting to help. Along with muscle relaxers, and stuff for pain. Finally getting some relief. I Thank the Lord for this! I know he loves me and will never leave me. He is my rock. He never promised me heaven on earth. When I leave here, and I see him in heaven there will be no pain. That is what keeps me going for him...I hope that your pain is relieved soon. I know its a hard road.
Judy-Anderson
Judy-Anderson
Yes, I was in my twentys when i got this, thing called fibro. yuck. I guess I didn't want to believe it myself so I wouldn't tell any one really ... it kind of imbarassed me because it was something they don't know much about, what it is and WHY ! Now I am 48. I am having another bout of this stuff and was being miserable. The DR. gave me some neuron tin and it is starting to help. Along with muscle relaxers, and stuff for pain. Finally getting some relief. I Thank the Lord for this! I know he loves me and will never leave me. He is my rock. He never promised me heaven on earth. When I leave here, and I see him in heaven there will be no pain. That is what keeps me going for him...I hope that your pain is relieved soon. I know its a hard road.
deleted_user
deleted_user
When you start having thoughts related to death it disease like cancer it is likely you have reached the point if clinical depression. Unfortunately depression is heavily associated with fibromyalgia whether it's caused by the constant pain and fatigue or an underlying contributing cause. You should talk to your doctor about your thoughts and feelings. Incorporating an antidepressant or a stronger one if you already take one, may be what is needed. Ignoring the symptoms will not help as these thoughts and feelings are likely to get intense.
deleted_user
deleted_user
When you start having thoughts related to death it disease like cancer it is likely you have reached the point if clinical depression. Unfortunately depression is heavily associated with fibromyalgia whether it's caused by the constant pain and fatigue or an underlying contributing cause. You should talk to your doctor about your thoughts and feelings. Incorporating an antidepressant or a stronger one if you already take one, may be what is needed. Ignoring the symptoms will not help as these thoughts and feelings are likely to get intense.
deleted_user
deleted_user
When you start having thoughts related to death it disease like cancer it is likely you have reached the point if clinical depression. Unfortunately depression is heavily associated with fibromyalgia whether it's caused by the constant pain and fatigue or an underlying contributing cause. You should talk to your doctor about your thoughts and feelings. Incorporating an antidepressant or a stronger one if you already take one, may be what is needed. Ignoring the symptoms will not help as these thoughts and feelings are likely to get intense.