Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Rockwell 2l9, I believe that the vitamins are certainly in my blood. I take tons of supplements. I don't think my doctor ever checks for vitamin levels with the blood-work he orders, just liver functions and tests like that. I will ask for that test on my next visit. I'm not sure it would mean anything because I know about this inability to absorb materials in my blood. I wonder what causes that...
Do you have to pay for every test they give you? When my Rheumatologist was trying to narrow down my issues I was tested for everything you could think of. There was even a rare african disease on the blood test (just in case...I have never been to africa).
My friends Aunt had similar symptoms to ours and was diagnosed with Fibro. She thought she had it for some time until she found out she was misdiagnosed and had a vitamin D deficiency. (I'm not saying thats what you have... but if your doctor can do additional tests, perhaps they may find something they haven't looked for yet causing your additional fatigue). I'm sorry everyone is feeling this way. Its so frustrating. I take iron every day and have for years, yet my iron levels are still well below anything normal.
I know this year my fatigue has become dramatically worse, but with all the tests I have had, I was told it was the Fibro causing it.
Wish you the best!
I've never tested low on iron - no anemia.
We're up to day three and I can feel the energy change - I am cautiously hopeful.
TSH - 1.3 (normal .3 - 3)
T3 free - 2.8 (normal 2.3 - 4.2)
T4 free - 0.6 (.7 - 2.0 per internet so this is low)
TPO - 2 (normal she said was 0-11 I think)
So why does my thyroid often feel swellon? Doctor is on vacation until Tuesday so I won't get results of the ultrasound until then. I do have most all of the hypothyroid symptoms but many are the same as the fibro symptoms. Will wait and see what US is I guess.
Hope you find an answer and please share.
Have a ultra sound done have them look for nodules. The symptoms form the Mayo Clinic:
Most thyroid nodules don't cause signs or symptoms. Occasionally, however, some nodules become so large that they can:
Be felt
Be seen, often as a swelling at the base of your neck
Press on your windpipe or esophagus, causing shortness of breath or difficulty swallowing
In some cases, thyroid nodules produce additional thyroxine, a hormone secreted by your thyroid gland. The extra thyroxine can cause problems such as:
Sudden, unexplained weight loss
Nervousness
Rapid or irregular heartbeat
I called the doctor's nurse again this morning, he was on vacation, to get my ultrasound results. When she called me back she just said the doctor wanted me to follow up with my regular doctor (who was not available at the time) in about two weeks. No explanation why or what the ultrasound results were. So I'll have to wait another couple weeks. I'm guessing they are going to take more labs.
I have had only a few times with a rapid heart problem...The first time I called my PCP who told me to watch it for a bit or have my husband take ne to a drug store that has a blood pressure machine and test myself...this happened on a friday after hours for my PCP so it was a lot cheaper then a ER visit!
With weight I lost 20 lbs at the start as I stopped smoking and wanted to be ahead of the 20 lbs they say you gain...I have stayed about the same up and down a few, more down then up, but I have switch my eating habits due to the large amount of Gabapentin I take I want to be on top of the ball game...
I am 10 days into my thyroid medication and still getting good energy.