Good Evening

Thanks for doing the check-ins Miki while Leo is gone. I have been enjoying the pics of your fur babies.

I had PT today and my neck freaking hurts bad. I am sleepy and will probably take a flexeril and crash out for a while at least I hope so. I saw my provider via video yesterday and she ordered XRays of my neck (it has been 3 1/2 years since last one). and and my thoracic spine ( never had ). Its disheartening to tell your provider how much pain you are in and how little of a tolerance for PT because of the increase pain and you just get a shrug. Drs are so afraid of ordering pain meds , even one a day. The Hospital that owns the office probably forbids it. I have been having numbness and tingling in my hands and fingers which is new the last few weeks. .

We are suppose to have super gross weather this weekend so I will be hiding in the a/c

Miki adorable kitty! I have not had a period in 6 1/2 years and have been off depo since my last dose in early Janurary. I had my ob/gyn yearly this past Monday, made it thru with no flashbacks or panic attacks, i do take the higher dose of seroquel like my shrink says before something like that plus my klonopin, and my Ob/gyn tells me everything before and while doing it. Guess what? My last was at 39, but i have only been 41 for a week, starting at 40 you only have to do the pap smear part every 3 years so i get to skip that part next year too wooohooo! As long as you only have one partner and both are clean of stds i guess. I have severe pain when he doest he exams but teh pap was even worse, but i have damage from rape, PCOS and endrometroysis. My endrometroysis pain is back and i can just double over any given day whether its pms or not. Each month PMS is getting stronger but no period so far. My ob/gyn said there is a safe way to do depo shots when ive had the pulmonary embolisms but for one he doesnt want to this soon and 2 he would only do it working along with hematology and my PCP to make sure its safe (adjusting warfarin etc) and only if i start getting close to hemmoraging which i have in the past which is one reason i was on it that and the endropmetroysis pain, it helps PCOS and it lowered my cancer risk 80 percent. But my ob/gyn and hematologist said with how good i am about keeping up on all tests and exams that i would have a much greater chance of beating cancer than blood clots again. I had a rare blood cancer years ago but its been gone for about 10 years now. Myleoprolefitive neoplasms. TWO oncologists diagnoised it, i asked my first who to go for a second opinion he gave me names of severeal. Hes the one who is my hematologist now, the originaly oncologist since he does both things. He also was my dads oncologist and got us 5 months extra with him. Not long but better than losing him right away. I know i am in good hands

milily i hope your pain eases up! Neck pain is pure misery for me if i get neck pain i get a migraine along with it, my dr just did a medrol dose pack for my whip lash in my neck and its helped a lot, still have pain but much better. I wish they would do something for your pain. Flexeril to me is like candy it does nothing. I am on 8mg of zanaflex and even that does not make me tired at all plus other meds for pain. zanaflex only goes up to 6mg so they have me take 2 of the 4 mg 3x a day. My mom knocks out from 4mg. But most sleep meds make me hyper so does benedryl (suspected adhd)

I do have mild heart failure bsed off my echo last week

I need a third carpel tunnel surgery on my left wrist, yes third. My fingers are numb at all times now the pinky and ring finger, and at times both other fingers and thumb. My thumb locks up where i have to move it with my right hand, and the 2 tumors they said are not cacner are getting more painful. Ive know about the carpel tunnel being back since 2011 but back then was caring for my late husband. My Dr said now i have to do surgery if i want to have feeling in the part of my hand and fingers again. She doesnt wnat permement damage done. Shes setting up the eeg and i hate those they are so painful..

My physical therapistsaid today with my pain so far out of control we need to pause PT until the lupus tests can be redone. My Drs sure they will be positive again in September and she said then we will finally have answers for how much pain im in and its rapidly gettign worse, and so is my fatigue. She said theres so much more to do for lupus pain than for fibro etc.