Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Morning everyone, yesterday was a rough day, I was insanely tired and painful, plus anxious about Miki. My mom said that she figured Miki would be fine there because my dad called her when she went near the woodpile and she came. He told me he's been standing by the woodpile when she's there, becauseshe wouldn't necessarily come if a dog walked by. Luckily I picked her up and my mom remarked on how much better she was around other dogs on walks. Took that as an opportunity to promote positive reinforcement training. I got home and got a coat of paint on the door and then had to mediate things between the cats. Nox has been a bit inconsistent-especially when Noah is moving around. He's laid 2 feet away from him and also gone after him so idk what's up with him. I'm hoping that when we get back to the normal routine this weekend things will improve, but at least Noah isn't acting like he's traumatized this time around. I had to get up at 4 again this morning for work and I'm working 11.5 hours in the MA office (that's not close to my house)so Miki is at work with me today. I also suspect I have tendinitis in my left arm, I'm genuinely not sure why-if it was my right arm I wouldn't be surprised because I've been using a screwdriver a lot for the doors and stuff. My left arm hasn't done anything out of the ordinary. Sorry for not making this more interesting. I'm so sleep deprived (I need more sleep after long runs or races because of the physical stress on my body and I'm sleeping way less than normal) and I had a few nightmares last night. My brain is in a weird and kind of dark place today. I just need this week to be over.
At least Alli was happy to see me this morning, she likes to roll on the floor when she's excited
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Welcome to the Perseid meteor showers, the "biggies" usually every year. (The Leonids beat 'em one year IMHO).AND today much of the northern hemisphere will see 5 to 99% solar eclipse. How cool is that? Your best bet is to be in the UK or norhtern Spain, where totality is excellent before sundown. Me, I'll get a super duper tiny itty bitty slice of it, so little that it won't be noticeable. New...
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... observed a solar eclipse.
tendinitis is awful
LilMiss brought me a dead bird.
either she likes me or thinks my cats aren't feeding me proper
horrible pain and little sleep here
5 mg of oxycodone a day that I can only take at noon b/c of other med interaction BS stuff so... nap nap i hope
hubby is cluing in a bit when he saw me in tears at PT just getting my fingers massaged on bad hand
i was joking to hide it but it was there and I felt sick to stomach ugh
trying to keep up walking and stuff but damn it's hard to stay up right!
one week down since surgery YAY
love to all:-)
Leo, I'm glad LilMiss is keeping you fed! lol Sorry for all your pain. Sending you hugs and prayers.
Well, I didn't do a lot yesterday except for futzing around the house and binge watching The Marvelous Mrs. Maisel. What a great show! I find I'm looking for things that will make me laugh which is not my norm. I'm a science fiction/fantasy nut most of the time. I've bookmarked a couple of movies to watch. Has anyone seen the new Mary Poppins? I love Emily Blunt so bookmarked it.
Not a lot on today's schedule. DH and I keep debating about changing the bed sheets. It's supposed to be chilly tonight and tomorrow night, but last night was so warm I couldn't sleep under the sheets until around 1 am. The summer sheets will probably be too light for those cooler nights. DH wants to tough it out being hot and I want to tough it out being cold. By the time we decide, it'll be time to change the sheets anyway! lol
Hoping everyone has a good day!
Miki, You've have been incredibly busy, you could have strained your arm w/o realizing it. Either way I hope it starts feeling better. I can't believe how busy you are all the time. Slow down. ;-)
Leo, don't try to hide it if it hurts, they need to know that stuff, especially your hubby so he can help out. I don't downplay anything anymore. I may not verbalize it to everyone, but I sure tell who needs to know. I hope you get a nice nap today.
Painedone, I plan on watching the new Mary Poppins after my surgery, it will give us girls something to do when I can't do anything around the house. LOL. Let me know if you enjoy it.
Angela, I'm praying your mom's surgery goes great and she heals fast.
Well the last time I talked to my GI's nurse I asked if we could try something else before removing my large intestine. They referred me to Women's Pelvic and Bladder Health at OU Medical. I'm very excited about this, because I still think I have issues down there not related to my slow motility, and they specialize in Pelvic Organ Prolapse. My appointment is May 20th, which is good I can recover from the other surgery.
I hope everyone has a good day.
Leo - PT is hard. And, feeling sick while they are working on you is the worst. Glad Hubby is finally catching on a bit. Just do what you can. Right now, extra rest isn't a bad thing given what you've been though. So glad to see you this morning. Enjoy your dead bird lol!
PainedOne - I've been eyeing Mrs. Maisel as something that I might like to watch. Thanks for mentioning it. I keep thinking about taking at least one of the extra blankets off of the bed. And then it snowed last night... I hope that you have a decent day.
AngelaJo - That was good thinking to stay in a motel close to the hospital. Apparently, I got some of your snow. Your Mom did very well for the first portion of the surgery last year. Think positive thoughts. She's going to do fine this time too. I'm very sorry that you lost a friend. Keep us posted today on your Mom! Sending you support and healing vibes to your Mom.
That's right folks - we got snow last night. Not a lot but just enough to annoy me. I posted late yesterday about my BIL's tilt table test. They ended up going back to Cleveland to do it. His BP tanked to 78 and he almost passed out. Now we wait for the final diagnosis. When they got home, their 13 year old Malamute was dying so he had to be taken to the vet. Not a great day in terms of stress.
I will be working on genealogy again today. I've had some head butting going on with cousins. They post their resumes on LinkedIn and then won't tell me which high school that they graduated from... Dumb and dumber. Eventually, I will get the information if not from them.... Shout out to Bear, Wonder, Ida, Milily, Blue, Twin and Autumn. I hope that everyone is doing OK! I will check back later!
Leo don't hide your pain. It is a good measure for your pt therapist and your hubby needs to see that this isn't a breeze for you.
Pained one I would wait to change the sheets but that is only because I can't stand to be under covers when I sleep. I watch things that make me laugh anytime I am in a lot of pain it really helps.
Angela try to breathe. I am praying your mom's surgery goes well and she is on the mend in no time. Hugs.
Twins it is always a good idea to exhaust options but don't wait too long. Getting the intestine done is still your best chance at some kind of health. I hope today is a better day for you.
Fantod I hope you get the info you need for your book. I have always wanted to do my family tree but don't know who my dad is. My sister told me that when she comes to visit this fall she will tell me and fill me in.
I was missing in non action yesterday. Night before last my pain level reached a 12 and I had to take both pain meds and flexeril. I was so sucked under yesterday I wasn't able to do anything. I tried to read but couldn't even do that.. Today my pain is still high and I wish my spine would just stop smashing nerves and stopping me in my tracks. They can fix it by fusing more of my back but I am already limited from the two surgeries I already had. I am going to make homemade soup today.
Hi to Ida, Blue and the rest of the gang. I hope you have a good day.
I had to get another 12 trigger point injections in my shoulders and neck this morning and am now at work trying to move with a hip that still doesn't want to work and feet that are shooting pain. Work has been extremely rough this week with poor communication from my boss all around causing major problems. You know it's bad when the person who used to be your position says they had to keep a log of all issues because of how bad it was just to cover their butt. I'm just going to call today a victory if I can get through work without crying. Each key stroke sends shooting pain through my fingers that makes me nauseous.
Leo I'm sorry you are still in so much pain! I am glad that hubby is at least starting to get the point. I hope you can get a nap until you can take some meds to help with the pain.
PainedOne I have heard of The Marvelous Mrs. Maisel. Did it succeed in making you laugh? I hope so, I feel like it really helps with the pain.
AngelaJo you have a lot going on right now to trigger your anxiety and depression. I really hope you are using your resources, your sponsor and therapist so you don't end up in a dark place. You'll be in my thoughts.
Twin I am glad you got an appointment with a clinic that may be able to help before the big surgery. At the same time I hope that you won't hesitate to have the surgery if they say that is really what you need. I want you to have less pain and be able to enjoy life more. You deserve it.
Fantod your cousins are just being ridiculous to not give you the info you need. I mean really, in this information age, everyone's information is out there somewhere anyway so what is the hang up with family? I hope you get to spend as much of the day doing genealogy as possible, I know you enjoy it. Thank you for the shout out! Sending hugs.
Oh gosh Autumn I am so sorry you are in so much pain and needing all those meds. I know i hate taking them myself but we have to. I hope that today you are able to take some time to relax but aren't in such a fog that you can't do some of those things like read.
Sending hugs to everyone. Going to see if I can figure out how to make an ice pack here at work and go hide in a conference room to work.
Miki, sorry about your arms hurting. I hope they're just tired from all the work you're doing and there's nothing really wrong with you. That would suck. I love the way Allii rolls on the floor, so cute. Spike does the same thing, he'll flop in front of you and roll around too when excited.
I feel like I'm sleep walking... I'm up a little early so I can bang a bit homework out before going to horse therapy. And I'll have to leave the session early because of an appointment at the property with the contractor to show him where we want the guest house. Our realtor wants to come too.
My school work this week is extra heavy and I can't get on top of it. Besides a paper being due, we also have our regular daily assignments. But every time I check the college's website, the professor has added something else to read or write. Ugh. I had a weird dream that I went to the school to turn my paper in, and dumped out my bag looking for it, and didn't have it.
The VA scheduled some labs for tomorrow morning to check my kidney function. It requires fasting, so I'm dreading it. This is for the CT scan of my digestive tract that will require dye- coming up next week.
Leo, I'm glad your hubby saw your tears.... I agree with the others about the pain. I know you want to look tough, but hiding it will only make things worse. He should be taking care of you.
Twins, I'm so glad you're getting that referral. It feels like good things are coming your way and it's about darn time. I pray healing finds you.
Fantod, I'm sorry about your BIL his test and the Malamute. I hope he gets some good news. Good luck getting that info about your cousins. My MIL has been working on hers, too, and discovered that her grandfather, and the relatives up to his generation, were slaves.
Autumn, ouch. And you've tried nerve blocks, acupuncture, or chiropractic treatments?
Back in a bit.
Reporting in from snow covered, sleet covered, thunder-hailed, Minnesota! LOL.
Miki, ouch, 4 am automatically = grumpies for me. I hope your day goes well and I'm glad your pup did well at your parents yesterday.
May today go by easily on you.
Leo, I couldn't imagine how painful that was at PT. I think I would have teared up also.
But how sweet of LilMiss to bring you a proper meal. Continue to heal.
Pained, I too get like that when I sit to watch movies. I go through my streaks, sometimes it's all comedy, sometimes drama, action, etc.
And my hubs and I started something new with our sheets. I haven't included a top sheet for a couple of months now. I love the look of them, but I always kick it off because I get tangled in it in my sleep...or my hubs gets tangled. Needless to say, by remove it, we sleep so much better. I still however, have two blankets on top, one foo-foo comforter and then my other prettier velvet comforter. And we do not get too hot. Or at least so hot that sticking one foot out won't solve, lol.
Angela, I hope this surgery (for your mom, right) goes well today and I'm sorry to hear of your loss. I recently learned of a guys I went to school with ended his own life. And when everyone started talking about it, I learned of another classmate too who recently died of complications from the flu this past Feb.
Twins, that's great to have that resource on board for May's appointment after your surgery. It's quite amazing what kind of pains and such can happen down there.
Fantod, I'm sorry to hear of your BIL's test finding a positive result. And then going home to needing to take their pup in....just a rotten day! And I do hope you find your cousin's info out. How frustrating. We got your snow and ice. Big old bullseye right over MN today! Ugh!
Autumn, oh geez, that sucks. Muscle relaxors do that to me too. I'm a cheap drunk so to speak. LOL.
I hope you can get what you want done today. Soup sounds really REALLY good today!
I might follow in your foot steps!
Maynard, I am so sorry you had to do the trigger point injections and then have to deal with that kind of boss. How soon before the injections kick in?
Blue, I'm sorry there is so much going on and your professors keep adding on new assignments as well. How frustrating. But I know you'll handle it with grace and come out shining.
Hope the meeting with the contractor and realtor goes well.
So I'm also posting on behalf of Ida, she still can not log on and got some rough news last night. She tries each day to log on, but DS isn't allowing her.
Because of this I did go ahead and create a Facebook group closed group. It's called "My Fibro Page". It's by invite only. If you want to chat and check in with Ida there, send me a PM, and I will help you get logged on.
After spending a year of not being able to log on, knowing how much I missed being on the board and getting that support, and seeing Ida go through all of this, just brought back some hurt I felt when I was off. I fully understand the pros and cons to DS here. But ultimately it came down to, how can we be a good support to one another if others can't log on? Where will they turn to?
So that is why I created this closed group. And being the admin, I can choose to make it a secret group, where only members will know it's there. But for now, I left is as a closed group. Meaning, non members can only see Me there not who has joined.
I'm not planning on leaving DS, but I thought I'd start something on the other end of the web for just in case I get bumped again for some unknown reason.
I also plan to add albums of fibro recipes, exercises, links to medical research and such.
Anyways, it's there, here is my offer, pm me if you are interested. And I completely respect your decision on why you might not want to go over to FB, all points made on my post a week or so ago were all good points too.
I really hope everyone has a great day. The good news about this snow here is that it's gonna melt fast! But that brings more flooding.
Hugs to all~
Wonder, I think it's a super idea. I'm glad you added it. Who knows we may all not be able to log in one day.
Autumn, I'm so sorry your hurting so much. I say do the surgery if it can help. You may lose some functioning abilities, but staying in bed all day isn't fun either. Prayers and hoping you get some relief.
Blue, I'm sorry about all of the homework. Just try your best! I hope you get some answers with your test.
Maynard, I'm glad you were able to get the injections, but I'm sorry you are hurting so much that you need them. I pray you get through work this week and have a nice weekend.
Fantod, your poor sister and BIL. What a day for them! I hope with these results they can better help him.
Wonder I may want to add your site to my list. I am taking the weekend to relax and deal with some heavy stuff that needs addressing. Please tell Ida I send hugs and prayers.
Twins I had total prolapse and had to have two surgeons on the table holding my parts up while another stitched. I also had several hernias in my bowels from having to push too hard to go. I felt much better after I had it done. If your large intestine isn't working you would be better off to have the surgery for it as well. Hugs and prayers.
Fantod I am so sorry about your BIL's testing going bad. I also feel for him that they had to take their beloved dog in. Hugs.
I spent the morning watching shows I had copied. I feel restless and like I am being lazy but I find that if I move around the pain starts up so I will stay down today. I decided to make shrimp alfredo for dinner instead of soup. My hands are too bad to be chopping and peeling. We have had a couple weeks of rain and it doesn't look like it is going to quit for the next week. I am feeling depressed and cabin fever is creeping in. I will check in later maybe.
'
We've had just about every kind of weather here today. Currently it's sleeting. And the skies are a strange, greenish greyish, where it doesn't know if it wants to be a thunderstorm (we've had thunder a few times today) or be a snowstorm. I just need to click my heels and let next tuesday's 60 degrees come back.
The ducks out back though don't seem to mind it much. The sleet got large once and I saw them take off. Otherwise this snowstorm is proving that thost little buffleheads are rather mighty.
I better go figure out dinner. I don't want to. But it might be a everyone eats spaghetti night here.