Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I would love some guidance from anyone who has ideas to help my fibro pain. To outline my history, my nerve pain actually started after I was diagnosed with endometriosis in my early 20s. I had lower abdominal pain along with chronic joint pain for over 10 years. In 2015 I had a hysterectomy and no longer have abdominal pain which is amazing!! But I still have super bad chronic joint pain. Here are all of the things I have tried for my chronic joint pain:
Medications:
Savella, Zoloft, Gabapentin, Lyrica, Cymbalta, Effexor, Desipramine, and many more.... Some of these medications did nothing and others worked for a short period of time and then stopped working.
I have also tried a chiropractor and acupuncturist to help with the joint paint to no avail. I really just want to be able to live day to day with a pain level below5 which has not happened in a long time. In addition to these medications and other types of treatment, I swim 3-4 times a week since its really the only form of exercise I can handle since it's low impact and I also started Plexus two months ago since I know several people who have said this helps with Fibro. It's too soon to tell if that is going to help since they say it can take some people months to feel the affects.
Anything that works for other people that I should try or any suggestions on how to guide my doctor in a new direction?
-
Another day, another ouchie?My bruised achilles tendon (don't ask) makes my foot numb. Wonky on meds, whacked it.Now, as to fibro:A lot of reports are going around some parts of social media that fibro (and dang near anything else) are caused by post-Covid, post-flu, post-vaccinations, post-pick-something.1. Your risk of death or serious complications beyond "ow, that shot hurt!" are typically...
-
Well..my thyroid might be a problem. I have a high TSH but normal T4. TSH increases when your thyroid isn't producing enough thyroid hormones...if only the TSH is high, it could be early or subclinical. Will wait and see if they want to do anything about that or just recheck it at some point. Either it'll even out or my T4 will drop. Meanwhile it's hot and I'm working with Karen, and I have no...


I don't know if I just quit too soon because I start having negative side effects.
I am still working as a dental hygienist so I have to be able to physically and mentally function so I stop taking them.
I hope you will get some helpful responses.
Blessings and a warm gentle hug !! PJ
Take care.
I use ice, heat, biofreeze, and take Flexeril and Percocet occasionally . I wouldnt say my pain is controlled by any means though. I also have spinal issues and 3 tendons that are fried. I cant take anti-inflammatory meds for the tendons due to major stomach issues , which is also why I have to limit pain med and muscle relaxant usage, otherwise my stomach just stops working.
I had endometriosis quite bad. It took over 8 hours to get me cleaned up in there and I was so glad to get rid of my uterus. What a mess. Arent hysterectomys grand?
Have you tried massage therapy? Some people with fibro can tolerate it and some cant, the same with physical therapy and other treatments. Also, some treatments will give some relief to one person with fibro and not the next with fibro. Fibro is such a fickle witch.
I assume that your doctor has repeatedly tested for RA, OA etc. How about joint hyper mobility (Ehlers-Danios) of which there are many types. The latter is associated with Fibromyalgia along with endo. You may have a very mild form of it which could be causing your joint pain. See a rheumy and discuss this as a possibility.
Hot Epsom salt baths or Epsom salt lotion (Amazon has it), Arnica gel which is a sports rub for muscle pain, swelling and bruising You can also purchase this at Amazon, a health food store or CVS and Walgreens carry it. As a long time user of Arnica gel, I prefer the Boenicke & Tafel brand which seems to work better.
As far as massage goes, be sure to talk to the massage therapist about your chronic joint pain and Fibromyalgia. I had a total knee replacement last February. After every PT session the therapist did a massage. That really elevated my pain levels especially in my post op leg. She switched to a massage that stretched the muscle fascia which helped tremendously. You might have to experiment a bit to see what works better. Personally, I love a hot stone massage or having the muscle fascia stretched.
I swim all summer. I'm allergic to chlorine so my pool is salt water. I'm going to read up on Plexus and see what that is about.
Good luck and take care.
Many people with an autoimmune disease have to wait until enough symptoms show up to make it diagnosable. Doing well on a prednisone trial can speed diagnosis up.
If there is inflammation, Advil may help.
AnnNY, makes some very good suggestions too. Keep throwing stuff at the wall until something finally sticks. You deserve a better quality of life. Take care.
Look into other cultures for how they deal with things, like Chinese medicine. They have been dealing with the unknown with a lot of natural ingredients, and I have used some teas, and herbs, that have helped take some of the edge off when I have flare ups.
But I do really suggest to keep track of everything every day to help you see how every little detail affects your fibro. Everyone is different, and I have never known anyone to have relief from the same things that I do.