Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Well, just yesterday I was diagnosed with Fibromyalgia. It's been thought that I had it before but I didn't have enough of the tender points, now I do. I read the DS description of Fibro and felt like crying, to be honest. I have other problems with my spine but the Fibro is what's kicking my butt.
Right now is really bad. Yesterday was my first big day out of the house after a bad episode of back spasms, I had to use a wheelchair and walker for a while to avoid falling, but also because putting pressure on my right leg was excruciating. So, while it was nice to get out of the house it was also very painful. At the end I felt detached from my body, a kind of pain high.
Anyways...I have a question to this support group. I've noticed over the years as my symptoms have worsened that I'm having more problems with my speech. I know what I want to say but when I go to say it it tends to come out bass ackwards. Or my brain will use one word but my mouth tries to say another and I just stutter for a second.
Has anyone else experienced this? Or am I just a weirdo?
Language is very important to me and I hate having this problem, especially because I tend to get teased about it, no matter how many times I explain myself or mention that it's not funny.
Right now is really bad. Yesterday was my first big day out of the house after a bad episode of back spasms, I had to use a wheelchair and walker for a while to avoid falling, but also because putting pressure on my right leg was excruciating. So, while it was nice to get out of the house it was also very painful. At the end I felt detached from my body, a kind of pain high.
Anyways...I have a question to this support group. I've noticed over the years as my symptoms have worsened that I'm having more problems with my speech. I know what I want to say but when I go to say it it tends to come out bass ackwards. Or my brain will use one word but my mouth tries to say another and I just stutter for a second.
Has anyone else experienced this? Or am I just a weirdo?
Language is very important to me and I hate having this problem, especially because I tend to get teased about it, no matter how many times I explain myself or mention that it's not funny.
friends,
Fibrogram
I think it has a lot to do with sleep and lack of quality and quantity. I don't feel sharp, I hear words individually not as a sentence or their meaning. I go to say two things at once. I'll forget how to spell simple words. I'll forget where I'm going with the sentence. I won't know how to describe something and often lose the word I'm trying to use.
I'm 21 for goodness sake! My 80 year old grandmother seems to have better cognitive functioning than me.
I might add though that it seems that my speech is the worst affected. My writing is ok (I graduated from university in June). I sometimes have to re-read something 3-4 times for my brain to work out what it's reading. So frustrating.
It's difficult to deal with sometimes but as with everything else with fibro, I just laugh at it, it's how I deal, hope you find a way to cope with this as well
hugs
Vikki
Fibrogram - I haven't been on any constant medication until just this Tuesday when I was put on Lyrica and a strong anti-inflammatory. Before then it was just mild (to me) pain "killers" every once in a while when I couldn't cope with the pain.