No I havent, I do have wild dreams at times which wake me up, I mostly dont sleep much,
I know B12 helps me with energy

I have waves where I'm so tired that all I want to do is sleep but I don't sleep. I have both sleep apnea and problems with the stages of sleep. I don't get the deep sleep the body needs to make repairs.

Yes you don't have to have sleep apnea to have problems with the stages of sleep.

I have absolutely experienced that. Before this, I have always had a hard time sleeping, and napping was just a thing other people could do. But yes, there were days when I just slept. I didn't feel guilty about it, because my body was telling me it wanted rest. And after so many years of not sleeping at all for 3 days, then maybe 2 hours after the 3 dyas, so I feel no guilt. I wasn't getting enough sleep then.

I had one today and conked out on bed before I got my boots off!

I have overwhelming sleepiness a lot. If it is during the weekend, I take a nap which closely resembles a coma. I love naps! LOL!

I sleep a ton. I think the pain makes you tired or something. I'm always in a lot of pain. most the time when i go to sleep i sleep for 12 hours + but off and on sometimes longer most the time i just live in bed and i forget to eat. are you in a lot of pain?

I do that too. For me its an almost overwhelmong feeling of sleepiness.

oh and sometimes i will get up and sometimes in the middle of the day and i yawn literally 8 times + and i fight it then i get real sick when i fight it. one time i tried to get ready for a sleep study and i was just barely tired and it hit me real hard and my skin started itching and burning and i couldnt see straight i thought i was gona die...seems that way if i ever try to ignore the tiredness i get REAL bad real fast

I have pain, but what really exhausts me sometimes is this constant nagging ache in my major muscle groups...sometimes I also have a crawling sensation in my back and legs. This all wears on me I think. I also have whacked out dreams and like FeelnPoopy. Weird stuff, sometimes I wake up thinking I can actually smell food cooking that I dreamed about, sometimes the colours are so bright in my dreams I wake up...I'm sure this adds to my drowsiness.

I get these too. And for me it seems to come and go. It's not that I over exert myself by any means, I just get exhausted from simply sleeping it seems. LOL.

I've often taken little power naps that last up to about 10-15 minutes and this seems to recharge me a bit.

But when I get this way I pull out my energy vitamins.
Guifenesin (this helps me, I know it doesn't help all)
Vitamin D
Co-Q-10
D-Ribose.

I start with one and if I need to take the next, then I do....I try to wait a few hours in between each one.

It was also mentioned above that someone said that the pain uses up our energy. He's 810% correct with that one. I've been listening to my body for several years now and that is one of the biggest complaints I have. If I am on a pain reliever/med for any reason, I have my energy back. But I'm sitting here on the young side of spectrum and no doc will prescribe pain meds in my area to 'someone so young'. I've choosen to respect that advice and I do what I can when I can.

I've also noticed that the precursor to the fatigue spells I get is increased brain fog. I haven't figured out why...but it is what it is I guess.

yes! i feel this way! fatigue is my 2nd biggest problem. Sometimes i just hit a brick wall and if i don't lay down and lay down NOW i will fall asleep sitting up stadning up ect. its horrible.

i used to think it was due to pain running me down, but even when my pain is controlled i have this problem.

so i guess the first thing i would ask yourself is, is there a correlation between your pain levels and your tiredness?

yep I get "waves of sleepiness" that last anywhere for a day to a week.

I've had them ever since I had mono at 17. I got diagnosed with fibro at 19.

it doesn't matter what I take during those days - my body just falls asleep.

I am tired all the time. Right now, I would love to take a nap, but I might not wake up until tomorrow morning. lol. I try to laugh at myself, but I am worried a bit about losing all my social time with my husband after coming home from work and crashing. Even on vacation I was sleeping 12+ hours a night and waking up unrefreshed. I am trying very hard to get my insurance to approve Nuvigil to help me with wakefulness.

You might know I take Xyrem (sodium oxybate) for sleep. Have been using this for plus 4 years and get the deep sleep we miss otherwise. It gives me stage 4, restorative sleep and I do wake up rested and not stiff as before. I had finally gone to an early appointment with my rheum. and he had never seen me in the morning, and was surprised at how awful I looked and felt. That's when I had the sleep study. Then the Sleep Specialist, then the Xyrem. Without good sleep there just is no hope for any kind of recovery. Please look into this, very few people are using this drug, it's labeled for narcolepsy and I'm using it off-label.

I can remember 3 years ago, before ever being dx, during summer months fussing at my teenagers if they woke me during the night because no matter the time I would not go back to sleep.
For the past week I have really been having some crazy dreams. Night before last I woke myself up an had Festus barking up a storm because in my sleep I screamed(out loud) "Get out of my house!" My brother was trying to force me into rehab for pain pills. The crazy part is in real life I've never spoke to my brother regarding meds. of any kind.