Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Sleepy waves

ambling1
ambling1
Does anyone here have waves of sleepiness? If so, how do you treat them. I have days where I just have wave after wave of sleepiness and can't find anything that wards them off...I just have to sleep sometimes. I feel so resentful about this, it's stealing part of my life!! I've had 4 sleep studies and don't have apnea or narcolepsy, the doctors say it's because of alpha brain waves during REM sleep and that is due to the fibromyalgia.

Anyone else out there have a doctor say something similar?
deleted_user
deleted_user
Do you have any sleep medication that could help you get a deeper or longer sleep? As many of us are aware, Fibromyalgic's sleep is characterized by almost constant "wakeful bursts" that keep us from ever reaching the deep sleep we so desperately need.

I take Seroquel. I have sleep apnea and use a machine for it, but without Seroquel, my sleep disorder would have me sleeping ten minutes a night.
Seroquel is very sedating, so you may not need anything this strong, but the reason you are so sleepy is because you are TIRED! Find a doctor who will treat your insomnia and who understands this disease. I wish you the best in your effort to solve this frustrating problem.

Mizroze
deleted_user
deleted_user
when i take a daytime nap ( 5 or 6 hours ) i feel so tired after it that i wanna go back to sleep.

at night i talk out loud and tell my husband off for whatever im dreaming about, it is a constant occurence now, we think its funny or at least we pretend we do.

i cry , scream, shout, talk ,leg shake, itch like mad all when im asleep

carol xxxxx
Abotsd
Abotsd
I see a sleep specialist who prescribes Xyrem for me, I've been taking it for over four years, it gives me the deep, stage 4, restorative sleep I cannot get on my own. This helps a lot with pain and stiffness. See if you can find a Dr. to prescribe it for you. It's really a miracle, I swear by it.
deleted_user
deleted_user
Way over did it yesterday, and today my body said enough, and I slept from 1 pm to 5:30 pm and its 11 pm and I should go to bed I am tired, but I wanted to check in here first.
I can go days when all I want to do is sleep, even after a good nights sleep. I agree with Kittysims, your body is letting you know it needs rest.
deleted_user
deleted_user
There aren't many doctors that will prescribe Xyrem. At least not yet.

I go through periods of profound fatigue. This past week I've only been able to stay awake for about 2 hrs then I fall asleep again. I feel like my life is just passing me.

Other times I'll be so tired all day long but then when it's time to go to bed I can't sleep at all.

I have had a sleep study and of course it said I can't fall asleep or stay asleep but don't have sleep apnea.

It seems like a mad circle sometimes.
deleted_user
deleted_user
I take generic adderally during the day and it helps with energy, or otherwise I would want to fall asleep.