Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I have taken Xanax (1 at night) for over 10 yrs. It usually does the trick for me, relaxes me just enough to stop thinking I guess. But if I'm the least bit stressed about something even that won't work.
Lately I've been adding a Benedryl to the mix and that seems to be working.
Now I get good sleep, stages 3 & 4, every night. This restorative sleep has enabled me to get back into life. Now I am back in school, and going to movies again, reading books, and using much less pain meds, so I have more energy.
Good luck to you, I didn't find Ambien or any other drug, able to turn off my brain the way Xyrem does. Xyrem is fda approved for narcolepsy, but not for fibromyalgia, so I use it off label.
One of the hallmarks of FM is the sleep disturbances we all face, where the alpha waves in our brain don't shut down at night. I'm kind of appalled that a sleep specialist wouldn't know that and take you seriously.
In my sleep study I was monitored for 8 hours... during which I only reached stage 3 sleep for 45 minutes, and never reached stage 4....the restorative sleep. I spent the entire time in Stage 1 & 2. Yay alpha waves!
This is why the anti-depressants and seratonin enhancing drugs are prescribed for FM. The increased seratonin levels help our brains shut down and stay asleep. So far they've worked really well for me, at doses far lower (like 1/5) what they prescribe for depression; although I have to switch every few years as I build up a tolerance to each one. But I've got to tell you, that first night you sleep the night through is like a miracle come true!
Right now mine aren't working again. I think my pharmacy switched to a cheaper and ineffective generic. Before I could sleep on 20mg. Now I have to take 40 of the same drug... but different manufacturer. This time it happened over night, so I don't think it's tolerance... the old bottle worked, the new one doesn't. I wish they quality controlled this stuff better. This is the fourth or fifth time it's happened to me, and the pharmacy won't even listen. :-(
However I usually wake up in 3 to 4 hours because of pain waking me up. I then spend the rest of the night in my chair trying to get comfortable so that I can at least doze.
I feel for you and the rest of us because we sure do need to get some sleep!!!
I take trazadone, too, with my Cymbalta and a med for migraines. I've found if I take them around 7 pm, get in bed around 11 and read for a bit I will go to sleep.
I think it's simply a hit and miss to find what will work. As a pianist, music makes me wake up - even the nature sounds!
1. to get to sleep: read a dull book by a dim light- it takes my mind off my own thoughts and lets the meds and fatigue take over
2. if I wake up mid-night in speedy mode, for me it works better to eat something (especially cookies :-) ), and then read the dull book at bit more. Putting a little food in makes body/nervous system shift gears, can over ride or slowly turn down racing mind.
Additionally I plan ahead for nightly (non-speedy, just achy) wake-ups. So I keep a sports water bottle (no more spills on me) half a tab of my anxiety med (which is also anti-spasmodic) and 2 aspirin and 1200 mg of calcium w/ D3. So if after a couple hours I find myself waking frequently, can't get comf, take the meds without turning on light or even sitting up. Because am already still medicated from before, I often fall back to sleep and when new stuff kicks in I stay asleep.
Brief comment about restorative sleep, i.e. stage 4, obviously it's tied to how much we can lower our metabolism. There is a meditation technique called Transcendental Meditation that research has documented truly lowers metabolism further than stage 4 sleep. I learned this technique decades ago, and so when all else fails I sit up and meditate as an alternative to sleep. (also do daily meditation)
Hope this adds additional stuff to your mix of suggestions.
and sweet dreams
However, if I get woken up while I am on the sofa, like my partner laughs out loud at something on the TV, I can jump 3 feet in the air (startled) and then forget falling asleep again....that's it. It may take me 3 hours or so before I fall asleep again.
Silly me, I only have TV in lounge, I should have one in bedroom eh? But wanted to avoid that, thinking that a bedroom should be an oasis, a sanctuary of quietness etc. It's a paradox eh? As I have read that years of poor sleep can be one of the reasons for the onset of fibro! Not sure this is true though......