Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
bluesun
sorry i just had to jump on here and vent some.... *exhales*...been a long day!!
today was the day i finally got to see the rheumatologist (follow up). i been waiting for this for a while now and it finally got here!
i get to the clinic after NO parking was found anywhere (took 1/2 hr to find), a looonng check-in line, just for them to tell me that a different doc was standing in for my doc. wait, what? i don't get to see MY doc? why wasn't i told this BEFORE leaving the freakin house?? why didn't they just freakin call me and tell me?
so i figured i best give him the benefit of the doubt.... boy, i should have NEVER done that! i should have just rescheduled it and wait to see MY doc!
sub-doc told me that i'm staying on cymbalta even though it has had a bad impact on my ibs and my back pain has been worse, not to mention that my body aches have been making it hard to sleep (and that's with a MASSIVE dosage of valerian root)!
he (and his intern) told me that ibs is a separate issue from fibromyalgia. ----oh, really??? you sure about that? cuz not only have i read other wise, but every single person i know that has FM HAS IBS, TOO! oh and they didn't care to hear about the migraine issue either, said that was separate as well.
told me that i really need to get better rest and get more active. that i shouldn't let people do things for me at home (like chores) and that i need to get out and exercise more. that if i JUST do this, i SHOULD be able to (eventually) get off all my meds, because i'm just too YOUNG to have this.
hmm.... i guess you're right. i should get out more and exercise! i should sleep better, too. that's the cure to this shit! what's wrong with me? why didn't i think of this before?? *rolls eyes*... i think i wanna see MY doc next time. see, this is why FMS needs to start being handled by NEUROLOGY, since evidence has already proven that this shit is a brain (and nervous system) issue! grrr.......
k, i'm done venting now.... thanks for reading all this. wewhhhh
today was the day i finally got to see the rheumatologist (follow up). i been waiting for this for a while now and it finally got here!
i get to the clinic after NO parking was found anywhere (took 1/2 hr to find), a looonng check-in line, just for them to tell me that a different doc was standing in for my doc. wait, what? i don't get to see MY doc? why wasn't i told this BEFORE leaving the freakin house?? why didn't they just freakin call me and tell me?
so i figured i best give him the benefit of the doubt.... boy, i should have NEVER done that! i should have just rescheduled it and wait to see MY doc!
sub-doc told me that i'm staying on cymbalta even though it has had a bad impact on my ibs and my back pain has been worse, not to mention that my body aches have been making it hard to sleep (and that's with a MASSIVE dosage of valerian root)!
he (and his intern) told me that ibs is a separate issue from fibromyalgia. ----oh, really??? you sure about that? cuz not only have i read other wise, but every single person i know that has FM HAS IBS, TOO! oh and they didn't care to hear about the migraine issue either, said that was separate as well.
told me that i really need to get better rest and get more active. that i shouldn't let people do things for me at home (like chores) and that i need to get out and exercise more. that if i JUST do this, i SHOULD be able to (eventually) get off all my meds, because i'm just too YOUNG to have this.
hmm.... i guess you're right. i should get out more and exercise! i should sleep better, too. that's the cure to this shit! what's wrong with me? why didn't i think of this before?? *rolls eyes*... i think i wanna see MY doc next time. see, this is why FMS needs to start being handled by NEUROLOGY, since evidence has already proven that this shit is a brain (and nervous system) issue! grrr.......
k, i'm done venting now.... thanks for reading all this. wewhhhh
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Sending you big HUGS and hoping you feel better quick!!! :)
I find more and more that it's becoming increasingly difficult to find doctors like him.
I have no answer to your vent, but just wanted to let you know that I understand.
Vent away
i agree, it seems we know more about this shit than docs do these days. the rheumy i saw (MY doc) was pretty cool last 2 times! and she told me that if i didn't like cymbalta then i could chose from many other meds which one i would like to try. she was very sympathetic and understanding that not every med works the same for people. i want HER back! f*ck that sub-doc! he's just an ignorant asshole. i feel like i wasted i huge chunk of my time when i could have been doing other things.
btw.... i DID have another MRI taken since i haven't had one in 2 years. got the results yesterday over the phone and it basically said that there isn't much change from the last one. i still have bulging discs and a herniated disc but it may be just a tid bit more herniated. i'll have to look at the results my self later. my PCM said it isn't anything that should be causing more pain, though.
thanks for being there for me, everyone! you all rock! sorry you guys all have had this experience too.... i guess it comes with the territory (of fibro).... pretty sad. i can't wait for them to find the ultimate evidence about this shit to prove all those dumb docs wrong. then i could take it and slap em in the face with it!
I just don't get these docs. What...they can't fix it so they come up with some answer they just pulled out of their @$$!
Common docs! Give us a little credit! Geez! Get educated on it or just refer us out. And the sheer fact that we PAID them for this sort of service is just beyond stupid!
I wish I could get paid for being dumb!!
i'm gonna stop by there tomorrow since i gotta be in the same building (for neurology) and ask to see my original rheumy.
hang in there and see your own doc!!! hugzzz
Do you think maybe the Valerian might be interacting with the cymbalta or a problem ? Like all medications natural ones too have side affects. below is a website that talks about it. A short insert from that website:
Some of the possible side effects of valerian include headaches, morning drowsiness, and vivid dreams. The herbal supplement has also been reported to cause insomnia, excitability, and uneasiness when it was used for several months. You should seek immediate medical attention if you develop more serious side effects, such as signs of liver damage or allergic reactions.
http://insomnia.emedtv.com/valerian/valerian-side-effects.html
I do believe that IBS and migraines are seperate conditions from Fibro. Not everyone who has fibro has IBS or migraines but it is common to have both fibro and these conditions along with a host of others such as TMJ , thyroid, sleep apnea etc.
Both my rheumy doctors specialized in FM but figured the name rheumatologist meant they were all informed with the same info but beginning to wonder.
I do think excercise is important but feel it is equally important that they are not over done and start slow and build up listening to your body. My own fear is if I do not use my muscles eventually they will get weaker and weaker and someday not be able to move at all. I think what most of us have learned is pacing is really important. I do my own cleaning but just takes me allot longer, because have to do a little at a time and take frequent breaks... and have some days where no matter how bad I want to get something done can not.
I sure do not understand a doc who tells someone they are going to stay on a medication that they are telling them is causing them problems ... that is crazy. Hope you get into see your own doctor very soon. Again so sorry you had to go through this appt. that was a total waste of your time and was of no value.
Take care gentle hugs