Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hello fellow fibro friends,
I am in California and we have a heatwave (I know it's all relative) but I struggle to be outside when it's in the 90's even high 80's.
My question is .... I had a baby shower for my daughter at my mom's yesterday and my mom didn't turn on the air condition - I ended up many symptoms of heat stroke and had to go upstairs and rest and eventually went home to get into the air conditioning.
I am frustrated because my mom know's I have this issue and said she would turn the air on during the shower and set up the day before but chose not too. I wasn't the only one who was hot. People were asking me if I was okay and I said I'm just getting over heated.
I'm asking because I feel like a failure because I had the leave the shower and couldn't help clean up . People who don't have health issues just don't understand. It makes me sad and want to to and yet I have to make peace with my fibro ( the over heating has gotten worse since the fibro).
How do you feel like a worthy person with this condition and people don't understand. I've had it for a long time but when I can't attend a function or have to leave early I feel terrible.
Any words of advice or wisdom would be very much appreciated . Blessings to you all, PJ
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Another day, another ouchie?My bruised achilles tendon (don't ask) makes my foot numb. Wonky on meds, whacked it.Now, as to fibro:A lot of reports are going around some parts of social media that fibro (and dang near anything else) are caused by post-Covid, post-flu, post-vaccinations, post-pick-something.1. Your risk of death or serious complications beyond "ow, that shot hurt!" are typically...
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Years ago, I won a mirrored armoire from my job. It's in my bedroom but I rarely stand in front of it. Yesterday, I had to have a dexascan done so I had to change into a gown. There was a full length mirror in the changing room. I'm aware that I gained 5 to 7 pounds over the last year from cheating on Keto but I didn't know what it looked like. It was a reality check.
And it's gotten worse with age --- that is, menoapuse creeping along like it does for me --- so... I just keep socks in the fridge and cold towels to wipe my face/arms with, and make sure I'm hydrated (and meds are no fun addition to all this!)....
DO not feel guilty! You are not a failure. You felt ill. It would've been worse to pass out or something at the party...
This group is a God send to me - thank you again from the bottom of my heart. Blessings and love to you all a!!!
Why in the world would your Mom not turn the air conditioning on especially for guests let alone you? Even as a healthy person, I probably would have made an excuse and left the shower. My mother is now 92 and sometimes doesn't realize how hot it is in the house until someone goes over there. We have to insist that she turns the central air on.
I am sorry that this happened and spoiled what should have been a lovely occasion for your expectant daughter. Be mad at your Mom, not yourself. Not only did she make you unnecessarily ill but she made a lot of other people miserable too.
In the heat I get very tired very quickly; getting out of breath and light headed. Nausea is usually stress induced for me, and it will come if the uncomfortable heat persists. In the cold my feet and hands just loose proper circulation. My body is very tense so my joints don't last as long.
Along with fibro I have connective tissue problems, so walking or stranding for too long makes my joints unbearable. This is where people don't understand for me. They don't understand I literally can't stand. Being dislocation prone on top of this makes me feel useless, but I remind myself that society is very ableist. I am productive and I am useful. I do things that help myself and other people.
You're allowed to feel. I hope you feel better soon and get to enjoy baby :)