Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Muscles & Bones
/ Fibromyalgia Support Group

recently dx with FM

JCJJ1227
JCJJ1227

I was recently diagnosed with FM. I have had Chostrocondritis for 8 years. I have depression issues, insomnia, restless leg syndrome, headaches. Vertigo,  and hypothyroid morning with Hashimotos. Basically I am a complete mess that feels like I am falling apart at 39yrs old. I have been having issues lately with bruises that I have no idea how they got there. Mostly yellowish in color, some are black and blue. For the last few days I have had pain down the side of my left leg from the outter side of knee going up. My husband says he can feel something there. It hurts to the touch and if it is touching the bed. I have had some pains that hurt to the touch of clothes or sheets. I tend to not get dressed unless going somewhere. 

wvgirl82
wvgirl82
So sorry for the problems you are having. I hope the doctors are giving you the medications you need to help you feel better. Diet and exercise has helped me. I can't take many of the usual medicines for Fibro. I found I feel better when I take gluten and processed foods out of my diet. I've also been doing yoga which helps me a lot. I think one of the most important things is to keep moving, no matter how much or little you do. Have you had a sleep study done? I had one done and even though I sleep all night, I don't get enough deep sleep. I've been taking Trazadone which has really helped. I hope things get better for you.

Susan
Mystic
Mystic
I'm sorry to hear that you are in pain. I've had a million different fibro symptoms, but I haven't experienced bruising. I know you've probably spent more time at the doctor than you can stand, but maybe you should have the bruises evaluated.

I agree with Wvgirl82--diet and movement is the key to surviving this.
Fantod
Fantod
Welcome to the group. We recommend the book "Fibromyalgia for Dummies" to everyone. You can find it on Amazon. It will give you a very good overview of this complex illness. Lots of ways to try and manage it too.

Being sensitive to pressure from clothing and bed sheets is called "Allydonia." It is pretty common among people with Fibromyalgia. Many of us have had to retool our wardrobes to accommodate sensitivities to fabric etc.

I urge you to go back to your doctor about that bruising. That is not a Fibromyalgia symptom and should be checked out. Not everything is Fibromyalgia related. The same for the pain running along the outside of your leg.

Take care.
Pam1100
Pam1100
Hello!
Welcome! Sorry for your pain.
Hope that you can find some relief.
Pam
JennJenn43
JennJenn43
I am so sorry. I know what you mean when you say you feel like you are falling apart. Just keep trying the best you can and remember that is good enough! :)
BlueSky
BlueSky
Aloha. Welcome to the group. Sorry everything hurts and you feel like such a mess. You are not alone in these frustrations. We're here for you. I hope you have a good PCP, rheumy /neurologist. If not, it may be time to find one. I also recommend reading some introduction books about fibro... because the more you know, the better you can advocate for yourself. Hang in there, ok?
Badge
Badge
I’ve been suffering with severe muscle cramping where I feel like dieing no one understands the horrible pain ur in I’m in debt up to my ass for medical bills now my arms and legs constantly hurt need to stretch all the time hurt so bad barely can move this is all sucks when doctors can’t figure u out 1000 of dollars later no diagnosis u feel like this is ur life now
CatinMichigan
CatinMichigan
Welcome to the group! Sorry you're having such troubles. Shortly before I was diagnosed with fibro, I'd been experiencing all over body pain. One morning, I woke up and couldn't move or get out of bed. I had to struggle to the phone beside my bed to call in sick to work. It was scary as hell! My PCP referred me to a rheumatologist and I was finally diagnosed with fibro. That was about 20 years ago...I'm now 54. We know how you're feeling. We're here for you. As others have said, get the bruising checked out, though. I'm sending positive thoughts and prayers your way! Take care.

Catherine
ALMONDJOY
ALMONDJOY
hi all does anyone know if fibro is anyway connected to costo chronditis ..I was wondering cuz t hat person mentioned that they had fibro and costochronditis ..I have both as well and suffer greatly with no avail ....also curious jdoes anyone struggle day to day like I do with feeling like u get up each day to deal with many problems day to day with no end thanks aj
ALMONDJOY
ALMONDJOY
I have a pain as well down my left side and I get numb in that area ...told dr but I have gone for every test imaginable ..all fine ..gld I'm not only one with these struggles
milily14
milily14
JCJJ - Welcome to this group. I was out of town for an extended period of time , so I missed this post and probably other newbies.

New symptoms need to be checked by your Dr for sure . I bruise easily and years ago when I told my Dr about it, he did blood tests.

I was 36 when fibro and other chronic illnesses appeared. I will be 53 soon and feel like 100.

I wear all cotton clothes and my bedding etc. is 100% cotton ( I am allergic to polyester and more) . You will have to figure out what type of clothing and bedding is best for you. I would wear less clothes around the house , but my son still lives at home while going to college.
milily14
milily14
Almond Joy - I have had chronic costochondritis since 2009. My Rheumy at the time said it was common with people with fibro. He was a really good Dr , he retired - boooooooooooooo.
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