Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hello, I'm new to the site and originally posted this in the lupus support group and didn't receive a response. I'm hoping to hear from someone who may be able to relate to having sudden pain and not knowing what is causing it. For the last couple of months I've been having a lot of pain and aches( leg, knee, hip, back arms, neck, and wrist at times) fatigue, memory issues and brain fog ie. I can never think of the word that I'm trying to say, I also have headaches some days. OTC medicine don't work and the anti-Inflammatory that my PCP prescribed didnt work. I was referred to a rheumatologist who ran test and my ANA was 1:320 homogeneous and I was SSb positive and Ssa negative. All of the other test were negative. A week after those results I had to come back which was Friday and she stated that she didn't think I had an autoimmune disease, but bc my close relative had graves disease and thyroids my results may have been positive ( I never questioned her about anything specific, ie lupus). She asked a few more questions about rashes and canker sores which I don't have. She also asked about dry eye and mouth, I let her know that my eyes hurt but not what she described as sand in the eyes. I was diagnosed with dry eye in August. She asked more family history questions and I did more blood test and was told to look out for any rashes or other symptoms. I am now waiting on those results. I'm sorry this is so long but I am concerned. Would you worry about lupus given the above information? Also, did anyone go through anything similar before being diagnosed with lupus or anything else?Thanks in advance for any information.
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I'nm exhausted. This doxycycline thing has ripped me apart and I'm eating crackers and water. I can't take (anything) or eat (anything) except saltines and toast and maybe unbuttered watery mashed potatoes. Are we sure the cure isn't worse than the possible disease?!?!And a week to go. ***Fun cures that WERE worse than the disease:ARsenic. Popular against STDs, which just compounded misery...
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I am still very new at this myself, I've had similar symptoms for a couple years. I will do what I can to help. I'm sorry you're struggling with this. I hope you get some answers soon!
Susan
Thanks again.
I see a really good neurologist who started me on botox shots (my head, neck and shoulders) that really help the fibro and headaches. I hope you can see a good rheumy and neurologist who can do more testing to rule things in / out for you and get to the bottom of what's going on. Good luck and please get back to us with an update. In the meantime please feel free to keep coming here if you have more questions, need to vent, or feel like reading posts. HUGS