Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
One warning I would give you, be careful with eating. NuVigil made me lose my appetite, at first I couldn't eat at all and slowly I had to force myself to eat. Then, gallbladder problems made eating even more difficult and I was back not eating at all. I lost over 30 lbs since May, for me it wasn't a bad thing since I'm overweight. Not eating, thogh, is not the way to go about to lose weight and it could be dangerous.
Good luck with taking it, I hope it helps you as much as it helped me.
Thanks so much for your reply. I'm only taking half of a 150mg pill and I can feel a slight difference . I'm thinking about asking my Dr. if I can take the whole150mgs. I'm wondering if if was taken on a daily basis if it would be harmful in anyway. Anybody know?
So happy to hear of your good fortune with Nuvigil. I took a half of a 150mg. today and haven't felt this good in years. I hesitate to take anything stronger, since I feel so good. My doctor knows I have bad reactions to prescription medications and I'm assuming that is why he put me on such a low dose. I pray that it doesn't cause any problems with continued use. Wishing you continued good days.
you look it up online - like at http://www.rxlist.com
I can't take it - according to what I read - because I have angina. 'there are warnings if you have high blood pressure or heart problems.
I also saw that it interfers with birth control pills.
Thanks for your reply. Actually I do have high blood pressure, but it is under control. I also have an irregular heartbeat that I have had since childhood. I am certainly going to call it to my doctors attention, although I have been under this doctors care for many years. Could be the reason I am on such a low dosage. Here's hoping I can continue using this medication, since I haven't felt this good in many years. Thanks again for your input.
Good luck, hope they work for you.
It works very well, so I will continue using the free packets! Lol
He asked about the sleep stuff, if I snored, did I feel refreshed in my sleep. Also, told him, how I could be walking or driving and fall a sleep all of a sudden. Scary stuff, especially, since I had a couple episodes of falling asleep at work (only for a few seconds at a time, but, to me, unacceptable). So, he sent me for a sleep study which proved I got sleep apnea. He gave me NuVigil right that first day, for excessive daytime sleepiness, and suspected sleep apnea, sleep study scheduled, or something like this. They approved it within a couple of days. There were times I really did feel I had narcolepsy because of how sudden the "sleep attacks" were and how sleepy, weak, and tired I was most of the time. I would be in bed, and go in and out of sleep every few min. Pain was not controlled at all at that time, even though, I was seeing a so called "pain specialist," a quack who's biggest problem was that the dentist accross the parking lot from his office, drove a German sports car and he only had a Honda Accord(I think it was Accord) The old doc laughed in my face about fibro, and only stuck me with lidocaine injections, so he could milk my insurance as long as he could. He never talked about anything other than pain (which according to him, was all in my head."
Insurance is so complicated and so frustrating sometimes. I have a coworker who has fibro, and she told me she's been having sleep attacks, narcolepsy was her guess and her fear. Her GP, who dx'd and treats her fibro, wanted her on Provigil, but insurance would not approve it. She has the same insurance as mine, so what the heck? I believe, like mjanice said the cost makes insurance insane, but just like her example with birth control vs medical costs of having a baby, isn't taking a pill gonna be cheaper than, lets say, a person falling asleep behind the wheel and needing surgery as a result? I know, sounds scary because it is, teriffying.
Thanks for all your great information. I think my problem is not being able to get a prescription for Nuvigil. I don't believe I have sleep apnea, since I don't actually fall asleep during the day. My doctor gave me samples because I am so completely exhausted that I find it almost impossible to perform the most simple tasks. Of course pain is a whole other issue. Trying to tackle one problem at a time. My best to you.