Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Muscles & Bones
/ Fibromyalgia Support Group

New to this group....hi!

Bon67
Bon67
Hello all, I'm new to the Fibromyalgia group, but have been with the MS group for a while. I'm trying to get a diagnoses, I have had pain from head to toe for the past 6 months, when I wake up it feels like someone beat me with a baseball bat in my sleep. Really deep horrible muscle/bone pain in my legs, arms, lower back and neck, even my hands and fingers hurt. I'm tired all the time. I also have DDD and Plantars Facsitis. I had a MRI of the brain and spinal cord, they found four old lesions on my brain and the MS specialist doesnt think I have MS, but she said to come back in a year for another MRI, in the meantime she wants me to see a Rheumatologist. I had the ANA blood test and all the other autoimmune diseases came back negative. I have a feeling that I have Fibro, but those darn lesions on my brain are throwing me off. Thanks for listening. (((hugs)))
deleted_user
deleted_user
i know how you feel, they think i have fibro...but are retesting my blood in 4 months i have some inconstant symptoms and blood elevations that concern them...hang in there it seems a DX takes a while
Bon67
Bon67
Thanks Cathy! :)
Fantod
Fantod
Welcome to the group!
CajunTiger
CajunTiger
Hi, Bon, and welcome to the group! Sounds like you have good testing going on to find out possible causes for your pain. Keep it out, to rule out anything else but fibro. It is also possible to have fibro AND another illness.

There's lots of great info and support here....I hope you enjoy meeting everyone!

HUGS from down south :)
maddiesgrammie
maddiesgrammie
i am so sorry for all you are going through.i pray you get answers soon,the waiting is so hard.glad you joined us,pull up a chair and rest your feet with us.we dont have answers,but we all sure do understand where you are at.we do our best to give hope,encouragement,the real bonus is we have much love many hugs to offer you.maddie.
deleted_user
deleted_user
Welcome to the group. I am newly diagnosed and this group has really been a lift for me. I hope you will find comfort here, too.
Bon67
Bon67
Thanks everyone! I'm happy to of found this site, lots of great people here! Big gentle hugs to you all!
fibrolizzy
fibrolizzy
Welcome to you, Bon...when my fibro is bad, I feel like I've been beaten with a bat or something in my sleep, too. Either that, or stretched in a torture device.

I wish you the best. This place is awesome for support, encouragement, and understanding. We do care!

Elizabeth
Cocoa1
Cocoa1
Welcome to this awesome group! This group has been a lifesaver for me and I just know you'll love it as well!
OutsideSmile
OutsideSmile
Welcome :o) I also can relate to the "nighttime baseball bat beatings". Makes for a really rough morning!

I hope you get some answers soon, and in the meantime you've found a great place for info and support. :o)
freelee
freelee
Hi and welcome and sorry for your pain. i have this too and think that many people with autoimmune disease do. I searched for years to find out what was wrong with me and all my tests were negative except i had lesions on brain. in the end i had an incurable muscle disorder (diagnosis was thru muscle biopsy) and fibromyalgia. Here are some sites for you to check out if you are into that http://autoimmunediseaselist.com/ which lists all autoimmune conditions and their symptoms. Another is http://undiagnosed.synthasite.com for undiagnosed people with strategies to help.
countr
countr
Welcome aboard Bon67. Hopefully you will get a diagnosis soon. I usually say I feel like I have been hit in the back of my head by a 2 by 4 piece of wood. Sounds like you should also look into CFS. An ANA test is not always accurate, It can test negative when you are positive, and it can test positive when you are negative. My Dr would run the ANA several times and look for other signs of Lupus. CFS and fibro often present together. We are hear for you.
LeoX3
LeoX3
Hello! :-) Nice to meet you Bon:-)
Bon67
Bon67
@Free, thank you, that is good information. @Countr, I had no idea you could get a false positive with the ANA, thanks for that! Hugs to all!
skinnybinny
skinnybinny
Welcome to the group!
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