Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hi everyone! I am so excited to have found this web-site. I have been diagnosed with Fibromyalgia for several years, but being a skeptic, I changed Dr.'s only to be told I have Fibromyalgia. I don't know if it is because I am stubborn or I don't want to believe it. In 2010, I went the Scottsdale AZ, Mayo Clinic for gastro issues. I lost 28 lbs. in 3 months and was extremely fatigued as usual. After all the testing they said you have Fibromyalgia which has caused Gastroparesis (partial paralysis of the stomach). After a diet change I have gotten back to a healthy weight but still struggle with the other fibro stuff. Do any of you have sensitivity to fluorescent lights, medications, water temps (warm and hot baths), smells etc.. I would love any input. I currently take Cymbalta, Temazapam, Xanax and Omeprazole. I suffer with SAF and really struggle in the winter months. I also live in Colorado, where the barometer pressure kicks my butt.
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We're all troubled.WSo, to remind ourselves we're not at rock bottom (this is a reverse optimism thing I learned as a kid):We are not living on the island of Krakatoa when the volcano goes boom!Yeah, okay, that sucks.***Toay in 1942, Pierre Laval announced that the way to free France was for Germany to win WW2. Pierre did not win a lot of friends. When the war ended, quite quickly he was tried...
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Another day, another ouchie?My bruised achilles tendon (don't ask) makes my foot numb. Wonky on meds, whacked it.Now, as to fibro:A lot of reports are going around some parts of social media that fibro (and dang near anything else) are caused by post-Covid, post-flu, post-vaccinations, post-pick-something.1. Your risk of death or serious complications beyond "ow, that shot hurt!" are typically...
I will say "yes" to your list of sensitivities. Particularly medication.
If you don't have a copy of the book "Fibromyalgia for Dummies", I highly recommend it. You can purchase it online at Amazon. It will give you a comprehensive overview of this complex illness. Knowledge is power.
Enjoy your weekend.
I can definitely relate to the fluorescent lights and too strongly scented products.
Am living in igloo country and this winter has been kicking my butt!! Time to kick back though......
This is a fantastic support group with lots of information and so on. Daily check-ins are inspiring!
I have all the sensitivities you listed and many of us fibro people do. Part of the nervous system "the flight or fight " part is in over drive and causes a lot of other symptoms - it is not just a widespread pain illness.
Welcome to the group! I am new here as well having been recently diagnosed. I know what you mean about being stubborn and going into denial. I do it everyday! I hope you get the support you are looking for here. I find it very informative :)
I do have sensitivity to fluorescent lights, allergies to many medications, and smells.
I've heard about gastro paresis from a couple people who also have fibromyalgia, so you're not the only one.
Changes in barometric pressure can definitely affect symptoms of fibromyalgia. I get migraines and extra achy and flu feeling from it.
I will order the book Fibromyalgia for Dummies. I never heard of it before. Thanks again. Its nice to have others to relate too.
Communication is key.....My kids are older, but I always say something like "I cannot focus on that right now, give me half an hour or so and I will. If I forget, please remind me." Works great with them. The husband department is a different story; major tune up is in order!
Good that your husband is understanding and supportive; it's half the battle. Keep communicating your needs.......
Jo