Fibromyalgia Support Group
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This is long, but I really do have a question at the end :)
I have been in a flare for a while, but my current situation started Friday. My toilet overflowed, for the second time in a week, not really sure why. While the water level rose on the floor, I took off the back and tried to stop the water, hitting the flow tube in the process. It started spewing water all over the bathroom like a runaway hose. Got that under control, cheap walmart plunger was useless. Cleaned up with 10 or so towels, sanitized, gave up and went to bed. Had a hard time getting to sleep and had a lot of chills/tingles, starting at my head and moving down my whole body.
Saturday, I woke up with amazing pain. I called my two students, took pain meds and went back to bed. My plan to let things "stew" overnight fixed my plumbing problem. The rest of Saturday consisted of pain meds, bed, tv and chills/tingles.
Sunday at breakfast, I had a strong coughing fit. Wouldn't you know, I ended up getting three very large floaters and cloudy vision in my left eye. I didn't freak, but worried all day. I was at my dad's and my pain and chills/tingles continued. I had run out of my Pamelor Saturday, which helps me sleep, so I didn't get much sleep Sunday. And was still visited by the chills/tingles.
Monday, the pain continued, I made an emergency appointment with my opthalmologist for today, ran errands with my nephew driving because of my eye situation, and returned home for pain meds and more chills/tingles.
Today (still Tuesday, I think) started the same, called my dad to find that his tv is posessed and his roof leaked even though it hadn't rained in two days. Nephew took me to the eye doc, where I sat waiting to dialate with a migraine and fibro pain in a room as cold as a fridge, full of people who obviously were feeling no pain. After hearing that my eye problem was a normal sign of aging, with a "pretty" Weis' ring and the cloud would dissipate, I went back to dad's to hear more about the tv posession and help dry up the flood in his kitchen cabinets from the lovely storm moving through, which was also the source of my migraine. And I was still accompanied by the fibro flare and chills/tingles.
So, here's my question as I sit here waiting for the Vicodin to kick in, reflecting on the last few days and how it could be humanly possible for this much pain to exist: I know when I get to bed, I will be visited by the chills/tingles, and I'm wondering if any of you are plagued with this? I'm not necessarily cold, I just get a small area with a chill and it spreads into a whole-body chill/tingle/shiver combination.
And, if you get this, do you do anything that helps?
And, no, I won't be offended if you laugh.
Thanks!
Sandy
I have been in a flare for a while, but my current situation started Friday. My toilet overflowed, for the second time in a week, not really sure why. While the water level rose on the floor, I took off the back and tried to stop the water, hitting the flow tube in the process. It started spewing water all over the bathroom like a runaway hose. Got that under control, cheap walmart plunger was useless. Cleaned up with 10 or so towels, sanitized, gave up and went to bed. Had a hard time getting to sleep and had a lot of chills/tingles, starting at my head and moving down my whole body.
Saturday, I woke up with amazing pain. I called my two students, took pain meds and went back to bed. My plan to let things "stew" overnight fixed my plumbing problem. The rest of Saturday consisted of pain meds, bed, tv and chills/tingles.
Sunday at breakfast, I had a strong coughing fit. Wouldn't you know, I ended up getting three very large floaters and cloudy vision in my left eye. I didn't freak, but worried all day. I was at my dad's and my pain and chills/tingles continued. I had run out of my Pamelor Saturday, which helps me sleep, so I didn't get much sleep Sunday. And was still visited by the chills/tingles.
Monday, the pain continued, I made an emergency appointment with my opthalmologist for today, ran errands with my nephew driving because of my eye situation, and returned home for pain meds and more chills/tingles.
Today (still Tuesday, I think) started the same, called my dad to find that his tv is posessed and his roof leaked even though it hadn't rained in two days. Nephew took me to the eye doc, where I sat waiting to dialate with a migraine and fibro pain in a room as cold as a fridge, full of people who obviously were feeling no pain. After hearing that my eye problem was a normal sign of aging, with a "pretty" Weis' ring and the cloud would dissipate, I went back to dad's to hear more about the tv posession and help dry up the flood in his kitchen cabinets from the lovely storm moving through, which was also the source of my migraine. And I was still accompanied by the fibro flare and chills/tingles.
So, here's my question as I sit here waiting for the Vicodin to kick in, reflecting on the last few days and how it could be humanly possible for this much pain to exist: I know when I get to bed, I will be visited by the chills/tingles, and I'm wondering if any of you are plagued with this? I'm not necessarily cold, I just get a small area with a chill and it spreads into a whole-body chill/tingle/shiver combination.
And, if you get this, do you do anything that helps?
And, no, I won't be offended if you laugh.
Thanks!
Sandy
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My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
I hope you efel better soon!
Kandyland, I really like the hug idea :)
Mizroze, I have had a fever for a while related to my autoimmune stuff, at least that's what I thought. I never really checked during the chills. I'll have to do that,
Abotsd, I haven't used a heating pad, but I do bundle up at night, sounds like you! I even wear gloves to bed in the winter.
Imaskeered, they told me about my brain getting used to the floaters, but didn't give me a name. Now I know--PVD. Thanks!
Thanks for all your support and kind words, everyone!
Second time it happened, again I didn't know what in the heck was going on. But now I was getting dizzy spells. I go into the doc, and I walk out with a heart monitor. (yah, that was good for my anxiety).
Nuffin.
EKGs
Haulter Monitors
Echocardiograms,
More EKGs
Nuffin
By now I had migraines that would drop me. Dizzy spells and it wasn't until I talked with a friend who had Fibro that we realized I should ask my doc if everything was related or not.
Since all of that and the Fibro Dx...I've had a few of these 'Chill' like spells. I now understand them to being a misfire of nerves, and over load. But always have your doc check into things.
Hugs to you!
I take Lyrica now and it has made an amazing difference for that. No more shivers for no reason and less twitching in my finger..plus the tremors in my hands are much milder. I still get mild hot spots on occassion and mild burning pain but it is nothing like what I had before the lyrica.
I hope it get's better. I know anxiety is one of my worst enemies. If I get stressed, it's over! I take a hot bath, lay on my heating pad and count my blessings. Even if I have to start with the little bitty ones! Well, I hope the venting helps! I know it keeps me sane... Well, as sane as I can be.
Heather
http://faithvsfibromyalgia.blogspot.com/
Other times it starts and spreads, then starts and spreads, like a big shiver over and over again. Does that sound the same?