YES, Stress definitely increases my pain. It's the anxiety! I get very anxious, can't sleep and I go into a downward spiral. It sounds like our circumstances are similar. I haven't been properly worked up. Partially because I am so busy dealing with personal issues and I had crappy health ins. I am newly married with good health ins. now, so I think it's time to figure this out (after I get my son situated). I was dx with fibro approx. 8 years ago. I also have a high ANA titer, hypothyroidism, migraines, bulging discs in my c-spine and l5s1.. majority of my pain is in my neck, shoulders and back but I do get pain in my hips, knees and ankles. I would give anything to be in remission. I wouldn't know what it is like to live a day without pain. The closest I have come to no pain is swimming in the lake with a life vest on. There's no pressure on my joints and the cold water alleviates the pain. If I only I could live my life in a lake with a life vest...Anyway, I would love to talk more. Feel free to message me anytime. I have been visiting this site more frequently. Even though I wouldn't wish this on my worst enemy, it is nice to know that there's people out there who understand. My friends and family say they do, but they have no idea..

your right, my friends and family haven't a clue. I hope you go soon now that you have better insurance.

Your profile looks like your doc has tried you on different meds. I use Tylenol with 8 mg. Codeine to cut the edge of the pain when I can't sleep for the pain. Sometimes doctors will refer you to pain management people. Also, there are so many great suggestions here to help relieve stress. Meditation and quiet music for 30 minutes gets me calmer. I too had a son who took a wild turn. He amazingly grew up out of it and now HELPS youth. Thoughts and hopes for you and your situations. Love, Isabelle1954

Isabelle1954, I do not know what you mean by my profile picture looks as if I have tried many drugs? I take nothing for the pain EVER! I work 10-12 hr days and I have to be alert. I do take gabapentin, plaquenil, procardia. and tizzandine (only at night) But I do everything in my power to keep busy and keep my mind off this pain and weakness. I am super down over this and I already feel bad, fat, ugly , sick and don't want to be seen and I am usually not a depressed person,. You have made me feel like a worthless ugly person with your comment. I cant help what I look like. Thanks for making me feel worse. I'm so
done with this

I think she meant that she read what you wrote about the different Medications that you have tried that have not worked for you to the right side on your profile page. I think that is what she was and is referring to but I can understand how you took it the way you took it.
Yikes. People need to be so careful. H

Hang in there sweetie. Deep breaths...I know this all just sucks!

I hope isabelle will come back and clarify herself and what she meant.

Kido818,

I think she meant that she read what you wrote about the different Medications that you have tried that have not worked for you to the right side on your profile page. I think that is what she was and is referring to but I can understand how you took it the way you took it. Yikes. People need to be so careful. I hope you are okay and not too upset. I can see how that came across the wrong way.

Hang in there sweetie. Deep breaths...I know this all just sucks!


I hope isabelle1954 will come back and clarify herself and what she meant. Please come back and explain. Thank you.

We are all here to help and support each other. Not to hurt each other. Sometimes there are misunderstandings and they can be resolved.

Isabelle1954, Can you please explain to kido818 what you meant by your post? Please if you could just clarify it to her so she understands exactly what you meant. I think there has been a misunderstanding. Thank you so much! :)



" Your profile looks like your doc has tried you on different meds. I use Tylenol with 8 mg. Codeine to cut the edge of the pain when I can't sleep for the pain. Sometimes doctors will refer you to pain management people. Also, there are so many great suggestions here to help relieve stress. Meditation and quiet music for 30 minutes gets me calmer. I too had a son who took a wild turn. He amazingly grew up out of it and now HELPS youth. Thoughts and hopes for you and your situations. Love, Isabelle1954 "

I agree with Daisy on this one. She didn't say profile PIC, she said profile.. and I assume also that she looked at the right hand side at what medications you have tried to treat fibro. You know when you join the fibro group and you fill out that info.... you check mark the boxes of the medications you have tried and then have to click on the drop down box saying if it worked, didn't work, or too soon to tell.

I can see how it could have been misread though. We all just want you to feel better, I'm positive it was a misunderstanding.

Pain is horrible, and when it flares and we have a lot of stress it gets so much worse. I have a lot of family problems too, I have a brother who uses drugs and threatened to kill family members. I have parents who enable him. I feel like I don't have anyone in my family because they all want to baby my brother. He's 29, lives at home still, no job for the past 3 years, drugs, and then my grandparents "reward" him and my mother who also can't support herself.. with trips to vegas.. He and my mom can't get it together to hold a job and work and pay bills, ... and my sister and I struggle .. but nobody is offering us a free vacation or to pay our bills.
Anyway, there's a zillion more things going on with the family but point is that it is very stressful and when I'm dealing with it I get worse and worse. I moved 3 years ago to get away from them. I was tired of my brother threatening me, slashing my tires, etc. for noreason except that I wouldn't loan him any more money. Between him and my mom, they drained my savings account by borrowing and borrowing with promise after promise to pay me back. Now my mom is telling the whole family I won't speak to her etc.. when really she's avoiding ME because she owes me money. I kept her little secret for a long time, finally when I started getting nasty letters from my grandparents, due to lies my mom and brother were telling them, I finally let them know what was really going on. Now they're mad at me too, the don't believe me...of course, because I waited so long to say something. So that's where I'm at... a family who talks crap about me, threatens me, lies about me, treats me terribly. It really sucks, especially with holidays coming up.
The drug situation is a tough one to deal with, my sister and I have been trying to get my brother help, You just can't help someone who doesn't want to be helped. The best thing you can do is try an intervention, maybe go to some type of counselor for yourself to talk about these issues and that professional could set up the intervention or give you other advice on how to handle things. I know it's not easy. I've tried, my sister has tried, but with the rest of my family being enablers, we haven't been able to get anywhere, so we had to tell him we don't want to hear from him when he's being mean and threatening, we wont reply to calls or texts. he gets really mad too, and tried to make up lies to get us to reply...even went to thee xtreme to say my dad was in the hospital, had a heart attack, and I contacted my dad instead of replying to my brother. My dad was at work, fine, nothing wrong with him. He tried it a few more times. finally I did have one final conversation and told him if he keeps making up these "emergencies", pretty soon there will actually be a real emergency and I won't believe him because he lied so much. He didn't listen..he did it again.. NOthing stops him.. he got the attention I guess, it was m fault for even talking to him about the "crying wolf"... I should have left it alone, it only made things worse. Idk what to do anymore either.

Thank you both for opening my eyes. I took the post how I was feeling. I am so sorry. I realize Isabelle was kind enough to offer me advise and I read the post wrong and over reacted and I feel really bad for that, I didn't sleep at all last night. I had chest pains so bad at work today, my throat was closing, couldn't breathe. My assistant ran to get me bayer aspirin but I really thought that I was going to die. I was upset about that because today I curled my hair which I never do and didn't want to dies with curly hair, ughhh! I think I had a panic attack.

Isabelle, I really am sorry, I hope you will forgive me for my stupid over reaction.

Here it is 2:20am, have to be up at 6am and I cant sleep again.

White Dolphin, wow does this sound familiar. Does you brother have these :rants" only when he doesn't get what he wants (money)

The entitlement generation. Ughhh!

Like you, I've never had any help. I rather have nothing then to cry, bully & have a complete melt down. I video tape these events.
I feel for you I know this isn't good for the fibro

Thank you white dolphin & Daiseygirl!

Dear kido818,
So sorry, I never meant to belittle your situation. You are on some good meds to manage your situation and I thought a small dose of analgesic would help you as well get through this tough time. Please, I'm here to help, not hurt. Love, Isabelle1954

Isabelle: Thank you. I know you didn't mean to hurt and I apologize to you. I have been in so much pain, I cant sleep (may 2-3 hrs at best) and I am just overly sensitive to everything. Please forgive me!