Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I think I've been taking the LDN nightly for at least 2 weeks now (in fact, I better not forget to get my renewal ordered! ) and I think it's been slightly beneficial in some ways. I don't expect a lot too quickly because it's mainly expected to boost the immune system to work properly and that takes some time. But ... it works by blocking the opioid receptors in the body, causing the body to up the making of our natural 'morphine', endorphins. The blocking is only fora few hours and then the boost in endorphin production will make one feel a bit better overall in addition to the endorphins' involvement in the immune response.
I have noticed that when I do too much, I recover from the flare or fatigue much faster. Still havign a lot of pain, but I am doing way too much at this time of year, and perhaps without the LDN I'd be feeling much worse.
My sleep has been a little disturbed. I seem to be on 3 hour sleep cycles, and after 2 of those cycles, I'm done sleeping even if I'd like to sleep in a little. Also, having "too much" and very vivid dreams. And a few nights of night sweats. That may have ended after just a few nights.
I am still so hopeful that it will prove to be a measurable benefit to take the LDN.
I have noticed that when I do too much, I recover from the flare or fatigue much faster. Still havign a lot of pain, but I am doing way too much at this time of year, and perhaps without the LDN I'd be feeling much worse.
My sleep has been a little disturbed. I seem to be on 3 hour sleep cycles, and after 2 of those cycles, I'm done sleeping even if I'd like to sleep in a little. Also, having "too much" and very vivid dreams. And a few nights of night sweats. That may have ended after just a few nights.
I am still so hopeful that it will prove to be a measurable benefit to take the LDN.
I have been taking this as well, and it seems to take the edge off of the pain a little.
I'm going to talk to my rheumatologist. I have not been able to take any pain medication with any success. I have either pseuo-allergic reactions or allergic reactions to everything in the opioid family. Pain management has been a long ongoing problem. Ultram was offered, but gave zero relief, prescription creams and patches have not helped...
This may be a whole new avenue for me? Thanks so much!
I'll keep on keeping on....
have a laugh: last night's everlasting dream was... I somehow agreed to carry triplets for someone else (NOT something I would do, anyway, but TRIPLETS??) what a nightmare. My daughter is pregnant... maybe I was in sympathy with her, AND I had to go to the bathroom, and I had wicked awful hip and leg pain in bed last night.... wonder what tonight will bring. sigh
Hugs!