After knowing it was F for about 3 years, I gave up and moved to the high desert. We have very low humidity here.

My family still lives in the LA basin so I go there once in awhile but I really hate any kind of humidity.

HI and hello, Nice to meet you and WELCOME :0)
Sorry it's under these circumstances. Yes, we are weird and quirky sometimes and can be moody or agitated at a moments notice. Some things that haven't bothered us before - do now. It's okay, we just need to adjust little by little and stick together and we will all be fine That is just easier said than done sometimes. So, feel free to vent your frustrations, or just let us know how your day went whenever you want to.

Some things you can do to help are meditation, deep breathes/breathing, warm herbal tea, and anything that you find that brings you peace when or even before your agitated :)

It's your choice if you would like a facebook account or not. And you can chat or not on DS...totally up to you to try. If you like it GREAT - if not, that's okay too.

Take care and God Bless,
Eva

I used to handle the heat really well. Matter of fact. it could be 80 degrees outside and I would be comfortable in a sweater. I've always been a cold person.

Since this Fibro thing started at the end of April this year, I can't handle temperature extremes. Our apartment is usually kept at73 degrees. When I go out onto the balcony and it's 95 degrees & 60% humidity...it's extremely uncomfortable. Not that it wouldn't be to the normal person, but I instantly get agitated, get the hot/cold flashes, nauseated...just all over yucky. Soon as I walk back inside, I have to put a jacket on.

Doesn't help it's been the hottest summer on record for Maryland.

Welcome and I'm glad to meet you. Sorry for the reasons why but ultimately I'm still glad you found us. I don't think it's possible to find a better site, so cudos to you for finding us so quickly.

This place is full of great info and even greater people! I've had fibro for about 20 years on top of other things and I'm still learning. Agitation is not "weird" with fibro! Sometimes agitation itself is the symptom of the day or hour. Or it could be skin sensitivity and the grime is making it worse. There are just so many things, and we all suffer different symptoms to varying degrees. Best advice; Lsten to your body, carefully. Learn what does and doesn't set you off, or make you feel better. This takes time and effort. You may find journalling could really help this. I wish you well.

i live in myrtle beach in south carolina ,the humidity here is awful.i love gardening ,but my skin is so sensitive i have to keep a layer of lotion between me and everything else or i spend the whole day feeling like something is crawling on me.sweat ,stray hairs,dirt,all give me that feeling.god forbid a bug bite i'll itch to the point of insanity.lotion helps me alot,i hope it works for you.

sound perfectly usual to me

fA

Welcome to the Group.

I tend to breakout in sweats alot and I do get agitated by this our skin is very sensitive to just about every thing.

If you haven't had a sleep study you should get one done. alot of us have sleep apnea and problems with the stages of sleep. Sleep is probably one of the most important issues. Alot have found that the cpap machines work for them. I had to much facial pain at the time so I just use oxygen.

I would also get your vitamins D, B, and magnesium levels checked as alot of us are low in these. D3 is absorbed better by the body. I also take sublingual liquid B complex, Calcium/magnesium/zinc, cod liver oil and a regular vitamin with minerals. All of the above were recommended by my doctors.

I take the calcium/magnesium/zinc ( this is one supplement. I get it at walmarts) in the early evening. It is a natural muscle relaxer and sleep aid. I've notice a major drop in my pain level with this supplement.

Keep a log on how things affect you. I'm med sensitive the only meds I take for fibro are vicoden and a muscle relaxer and only when in extrem pain. My pain specialist is very good. He's working on a new combination of meds for trigger point injections.

Reason for log I just resently tried a new muscle relaxer and I went from being in a great mood to being depressed overnight. I stuck with the new muscle relaxer because my doctor wanted to know how it work for me. It took me a few days to realize that the change in mood and the muscle relaxer started at the same time. I stopped the muscle relaxer and it's been one day and my mood is so much better.

We all experience meds differently so it's good to keep a log on how they affect you so you don't end up trying the same med more than once if it doesn't work for you and you have your notes so you can tell the doctor why you don't want to try it again. That's one thing I really like about my pain specialist he respects my decisions when I say I won't try different drugs and explain why. I've heard of some doctors saying they won't prescribe anything else till you've tried what they want and to me that's the time to find a new doctor.

Once you find a doctor that works well with you hang on to them they are hard to find. Also don't let them tell you every thing is fibro everything should be checked out before it is pushed off as fibro related.

Hugs

I'm interesting in knowing if others feel better living in less humid places! I don't do well in the cold and the heat so I was wondering where to live that is more temperate.

I don't think we ever quit learning about fibro and all it's nasty little symptoms that crop up. When first diagnosed, I lived in Ohio...could not stand the heat and HUMIDITY of the summers there. Lived in constant air conditioning and with fans blowing on me. Since moving to a much dryer climate, I'm at least able to stick my head out the door during the summer months. Yes, the description of "aggitation" clearly says it for me! When in that state, I'm all tense and thus...a flare!!! Keep cool and don't overdo it in the heat.

when I was younger the cold bothered me and I moved to florida at first the change in climate helped but the longer I was there the heat and humity started to aggravate my fibro and by the time i moved back home the heat and humidity bothered me as much as the cold

it just seemed as the fibro progressed more and more things bothered
one of the worst symptoms is my hands would go numb in extreme temps and my hands would stop working on me-that was very frightening when I was 18

i have a germ phobia and i hate to be dirty sweaty ect, it didn't pop up untill the fibro started happening. you sound fine to me because alot of peopel with fibro have this same problem.

reading all these post made be realize i'm not a nut either and i'm pretty out there lol so if im not nuts, neither are you :)

Thank each of you for your comments. I feel as if I know all of you already. I also feel releaved and an inner peace after reading them. When I read other discussions I can honestly feel the caring emmotions in your comments and I know I found the perfect support group for me. Thanks for being here.

Hi!
I totally relate! I am heat and cold sensitive and I get aggitated at the drop of a hat,when it comes to sweating...
This is a toughie of an illness to totally figure out!
This is the perfect place for you to be!
Good Luck and Welcome.

Welcome to the group!
Yes, I share your extreme discomfort with any type of high humidity no matter what the temp is - however hot is worse for me. We're in the middle of a long stretch here in upstate NY and I've been in my bedroom with the air on and a strong fan blowing on me each day. I venture out to do the housework and dinner work as I'm able, but have to completely change my clothes when I'm done because of the heavy sweating and 'agitation' I feel.
Thanks for the use of that word for description, it's perfect. Funny, I had sharp pains in my feet, I swore I had broken bones in both, at the very onset of this fibro.
Gentle Hugs with Cornstarch Baby Powder.
Tressa

Hi!
Living in dry heat is very different than in a humid heat. Like everyone said our skin is very sensitive. You are working outside in the humidity, getting dirty and sweating. Your agitatated because your body is trying to tell you not to do it. You sound like how it use to be for me.Eventually, it got to and now I get bad headaches, my vision is noy right and I get very tired, then dizzy and I know I have to move indoors. If you start to fell better in air conditioning its because it is taking the humidity out of the air. I keep the air conditioner at a high temperature. If it is too cold, it hurts.
With dry heat, like out west, it could be in 100's and you will not feal the same as being on the east coast. The humidity is bad here.
If you can try to plan a vacation out west for about week and take note on how you feel. I think you will see a big difference.
Even out east in the winter, days that have a high humidity cut right through me and I have alot of pain.
Good luck with this, If you can try to stay indoors when humidity is high. Like some one said, listen to your body. Unfortunately, it governs how we live. If do not, than they let us know by making us miserable.