Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hello,My first post and introduction I guess. I have Cauda equina syndrome and had emergency surgery for that in 2015, thank God I am still able to walk. Also have fibro and, well, lots of other chronic back issues.
I'm a single mom and work full time. Working pretty much sucks up at least 90% of my life source, what's left has to stretch out for interacting and caring for my home and family.
I feel very isolated, very blessed to be able to work from home, its very hard to get out of the house. I tried a counselor, said she specialized in chronic pain but knew nothing about fibro...looking for a new one.
I just need to connect, to see understanding and compassion.
-
Another day, another ouchie?My bruised achilles tendon (don't ask) makes my foot numb. Wonky on meds, whacked it.Now, as to fibro:A lot of reports are going around some parts of social media that fibro (and dang near anything else) are caused by post-Covid, post-flu, post-vaccinations, post-pick-something.1. Your risk of death or serious complications beyond "ow, that shot hurt!" are typically...
-
Years ago, I won a mirrored armoire from my job. It's in my bedroom but I rarely stand in front of it. Yesterday, I had to have a dexascan done so I had to change into a gown. There was a full length mirror in the changing room. I'm aware that I gained 5 to 7 pounds over the last year from cheating on Keto but I didn't know what it looked like. It was a reality check.
First of all, welcome:-) We're a fairly active group, and chat daily on the check-ins. Sometimes we post a lot, sometimes less, as we can and need. So there's always someone around, as a rule. (Exceptions prove it, today, obviously. *facepalm*)
Second, if you haven't bought or read "Fibromyalgia for Dummies", we recommend it as a good book to start with, and to give to family and friends who think we're... well, not really hurting like this. Studies are constantly ongoing, and being debunked or confirmed or left in the "hmm" zone, so basically, this is a trial-and-error situation in terms of treatment and so on.
Generally what works for one, in other words, maybe works for a third of us (in my 7 years on the board here on DS, anyway). And other dx have to be ruled out. I've seen everything from celiac to sarcoidosis be called "fibro", so ruling out *anything* else is vital, to get best treatment ASAP. And fibro doesn't come alone, as you know!
I was doing pretty well for about 8 years, without emds even, just got the luck of the fibro remission lottery... Happens sometimes for some of us. Then... Well, stress is my biggest trigger. In 2011, I fell, seriously badly, and wound up with lifelong scarring in my pelvis and nerve damage in my lower spine and hip. (My right leg occasionally "disappears" entirely. Much fun when walking.) I say that to let you know... we talk about more than fibro. I m ean, life is hard, and pain just... Yeah. Not so simple to just "do it" sometimes. Even if it's not directly fibro-related. So feel free to vent and so on.
Again, apologies for not answering sooner. I have been scattered this last week or so.
Cheers,
Leo
(PS: Despite name, am female. We do have men aboard, but we gals are more chatty, apparently.)
I meant to just thank you all.