Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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levisgranny 11/02/2007

I have been dxed with FM for around 10 or 11 years, but am sure I have had it for most of my life. About 4 or 5 months ago, I started having severe pain in my left knee. Went to the specialist and was dxed as having tendonitis pretty much in my whole left leg. So, the treatment was for me to use ice and to do leg lifts to build the strength up in it. Ya right. That was around a month ago. I did that and more to try to relieve this awful pain. I am taking twice the strength of percocet I normally take and it really hasn't helped enough to speak of, AND in the meantime, something has happened to my right leg just from turning around to sit on the toilet. Everytime I move it just so, the pain in the right leg just about brings me to the floor! It goes around the top of my thigh and into my groin area. When I lay down, if I am on my back everything is okay. I am a side sleeper and when I turn onto my side, both of my legs start throbbing and shooting very bad pain down to my toes. And, if that isn't enough, my lower back is starting to hurt like back when I used to have menstrual cramps. (I am menopausal due to hysterectomy at 39 years old.)I have an appointment with a rheumatologist in a big town about 3 hours away from us. My regular doc refferred me to him. Gotta be there the 7th of this month. I am not too sure I will be walking by then. I can hardly stand up after I have sat down for more that a few minutes. Advice, anyone?

deleted_user 11/02/2007

Does heat help? Or does the ice help at all? I think maybe you should ask your doc for some muscle relaxers and some stronger pain meds hon.

deleted_user 11/02/2007

If it gets any worse I would go check it out at emergency room if you can't get a hold of your regular Dr. I wouldn't wait till the 7th. you are in my prayers marilyn

levisgranny 11/02/2007

I was doing the heat thing until the specialist told me to use cold, not heat. The cold actually does feel pretty good, but it doesn't stay feeling good. As soon as it warms back up, it's back tough as ever. I take cyclobenzaprine every night before bed. It doesn't seem to do much either. I am kinda wondering if it isn't something besides the FM causing me such pain. That is the reason my doc has sent me to a rheumy. He says he thinks I might have some other sort of muscle related thing. Kinda spooky.

levisgranny 11/02/2007

Thanks Marilyn. I am going to go there if it gets much worse. I told my doc a few months ago that I feel like I am not going to be able to walk much longer. And, my legs are getting weaker. My doc says he won't let me get to the point of not walking. He better hurry, then! Lol!Thanks to all for their input. Cheryl

deleted_user 11/02/2007

My dear, Levisgran...

I am so sorry!!! I don't have any suggestions that might be of help for you..

However, I can share some words from someone who does:

1 Thessalonians 5:17-18:
In every thing give thanks: for this is the will of God in Christ Jesus concerning you.

And Romans 5:3-5
But we also rejoice in our tribulations: knowing that tribulation worketh stedfastness; 4 and stedfastness, approvedness; and approvedness, hope: 5 and hope putteth not to shame; because the love of God hath been shed abroad in our hearts through the Holy Spirit which was given unto us.

And I can pray for you...

Love and hugs,

Cleveland

deleted_user 11/02/2007

levisgranny 11/02/2007

Thanks cleveland. Prayers are always welcome! And I do know he listens to us when we talk to him.

deleted_user 11/02/2007

I GET THAT IN RIGHT LEG WITH THE PAIN IN MY THIGH AND GROIN AND MY LEG GIVES WAY WITH THE PAIN, I DID MENTION SOMETHING TO MY DR ABOUT IT BUT HE THINKS I HAVE A TRAPPED NERVE IN MY LOWER BACK, I THINK ITS POSSIBLE MY FIBRO BUT WHICH EVER IT KILLS, I DONT HAVE TO MUCH LUCK WITH MY PAINKILLERS I'M ON TRAMADOL I'M SO SORRY FOR YOUR PAIN, LET US KNOW HOW YOU GET ON WHEN YOU SEE THE RHEUMIE LOVE AND HUGS ELLIE

deleted_user 11/02/2007

The first thing to come to mind would either be a pinched nerve in your back, or possibly a Connective Tissue Disease. I have CTD, and it is very painful, and painkillers reduce it a little bit, but don't take it away. It does sound more like it's a pinched nerve tho. Maybe you should have an MRI done to see what is going on in your back?

deleted_user 11/02/2007

ASPIRE, Since i am not a medical doc, I am just guessing at the cause, but I have chalked up my pain like that to fibro. They haven't found any cause for any of mine except fibro. That doesn't mean that yours is fibro. Maybe the rheumy can help you with that. When I would go to doc with those kinds of pains they use to chalk it up to tendinitis too, but it seemed like I had tendonitis all the time.
So...now you are not any better off than before, cause you still don't have any answers. GOOD LUCK, Harbi

deleted_user 11/02/2007

OOPS!!! I put the wrong first name. Sorry

deleted_user 11/02/2007

ya know...I get that alot...but have never been tested for anything concerning that...I have about every kind of leg pain there is I am thinkin...deep bone pain...muscle pain...soft tissue pain and very sensative skin pain...all of it starts in my hips and lower back....kinda waxes and wanes for me...if ya find any answers can ya send me a message so maybe i will know what to bring up to my Dr. the next time i go in....I would appriciate it alot....ty

Bonnie
P.S....lol....I just realized you were asking for advise......and i come here asking you to help me......good grief.....sorry hon.

deleted_user 11/02/2007

Hey, I'm really sorry for this intense pain....have you ever been checked for back problems??? Could it be something like that? Dunno...but I have MAJOR back issues along with the fibro and I'm actually going for epidurals soon.

My thoughts and prayers are with you.....and if things don't improve OR you just can't handle it, go to the ER......

Morus

deleted_user 11/02/2007

Sounds to me that we all have the same problems in the same regions. I have had back and both leg pains for over a year and they (the drs.) can't find the problem I told them it's just another fibro cond.

levisgranny 11/03/2007

Thanks to all for your input. I, too am kinda leaning towards a back issue. The last MRI that I had said there were degenerative changes in the lumbar area. The MRI's were of my knee, but the lumbar showed up because of the area the MRI took pics of. The doc said that the disc was pressing against the spine, but he didn't think it was that bad. The MRI also showed demineralization of the bones. All I can find on that is that it could mean RA. When I asked the doc about it, he says he'll have to do some blood tests, but then in the next breath, he said he wants me to see this Rheumy in Billings Montana. Closest Big town to us. So, I guess I'll just have to wait until I see him on the 7th. Again, thank you for all your input. Gentle hugs to you all!

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